Back from Neph Appt. Good news!!!

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MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 1/16/2008 6:44 PM (GMT -7)   
Hey y'all!  I had my nephrology appointment today.  I am back up to 74% kidney function!!!  I was end stage!!  Isn't that awesome?  I'm now up to stage II kidney disease.  All of my labs looked better.  I really pray I am on my way to remission.  I am desperate to go back to work.  Hope you guys are having a good day.  All my love,  Judy

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/16/2008 7:00 PM (GMT -7)   
Wooooooo Hooooooo!!!!!! WAY cool !!! Yaaaaaa Hoooo!!!!

Thanks for the encouraging update!!! Keep us posted, ok?

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 1/16/2008 7:28 PM (GMT -7)   
That is AWESOME news!!!!!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 1/16/2008 8:04 PM (GMT -7)   
Fantastic.
Prayers said that things continue to go well.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Imuran, Zyrtec, Prilosec, Nasacort, Prozac.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Prednisone.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/16/2008 8:31 PM (GMT -7)   
Thank you guys so much for your enthusiasm. I really feel guilty almost to report my good news. Maybe it will give hope to others who are battling tough issues. Things can get better! God Bless You all, Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/16/2008 9:18 PM (GMT -7)   
NO GUILT ALLOWED for recovery celebrations!!!! We all live to see news like that from ANY of our members . . . gives hope to all!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/16/2008 10:24 PM (GMT -7)   
CONGRATS!!!!
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 1/17/2008 10:36 AM (GMT -7)   

Yay, yay, yay!!!!  Here's a happy dance for you yeah yeah yeah yeah yeah yeah

Don't ever feel guilty about sharing happy news - it gives everyone hope.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/17/2008 11:42 AM (GMT -7)   
That's great news Judy!!

One thing, Did you forget about me? You were going to ask your doc about Dr. Wallace. You probably forgot due to your excitment, right? ;-)

MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/17/2008 1:15 PM (GMT -7)   
I'm sooooo sorry KaAl, I did forget. That was so selfish of me!!! I should have written myself a note!!! I will give her a call. She's out of town until Monday. I am soooo sorry!! Judy

KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/17/2008 1:20 PM (GMT -7)   
Judy, you are worthless!!! Just kidding, LOL. That's o.k I don't think his practice is near by anyhow. I think he might be in LA.

Still happy for you even tho you forgot about little ol me!

Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 1/17/2008 2:33 PM (GMT -7)   
Judy,

I am so glad that you got this wonderful news! I had just posted the other day about being in stage 2... scary. I am wondering, are you currently taking any of the Immunosuppresive meds? Specifically, Cellcept? My rheumy has put me on that one, and my GP has referred me to a nephrologist. My brother is in End Stage, and is on dialysis. He sees the only Nephrologist here in my town, and does not like him at all... so I will be looking for another.
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Plaquenil 400mg, Cellcept, Vicodin, Benadryl, Zyrtec


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 1/17/2008 3:34 PM (GMT -7)   
Judy,
   That is wonderful news! It's always good to hear something positive! I pray you continue to get better with each passing day.
                                                      Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/17/2008 4:21 PM (GMT -7)   
Thanx every one for your support! What a battle the last few years have been. Victoria, I have taken Cellcept, I failed it twice. I have taken every thing out there including chemo (cytoxan). It's kind of ironic. They actually decided to stop treating my kidneys after my last biopsy because of the amount of scarring. Then I had heart/brain involvement so I had to have aggressive treatment again. Then, they had to take me off of the cyclosporine, which was kind of a last straw, so I am back down to prednisone, imuran and plaquenil and my kidneys started improving kind of "out of the clear blue". I would like to encourage you about the cellcept. Most people have alot of success with it. Mine is definiitely an atypical case. Stage II ckd probably sounds pretty scarey to you, especially in light of your brothers situation, but some people can sit at stage II and never progress any further and some of us have bounced back from End stage. So don't get too stressed out. Keep a close eye on your blood sugar and blood pressure. Be very vigilant about your medicine. Keep up with all you test and appointments. You will be in my prayers. Keep me posted!

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/17/2008 5:54 PM (GMT -7)   

Wow Judy!  That is fantastic!  What a significant recovery for you.  Good job, keep doing what you're doing and you'll be back to 100% in no time!!!  We'll keep praying for ya!

Hugs

Ginny


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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