Pulse steroids tomorrow

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momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 1/16/2008 7:04 PM (GMT -7)   
I'm not looking forward to it, but tomorrow is the first of 3 treatments. Yuck.   I did Pulse steroids 8 years ago as an inpatient but this time I'm outpatient?  Anyone else do it that way?
 
Lupus and Sjogrens Syndrome since 1995
 
Plaquenil 400 mg, Prednisone 70 mg, Imuran 200mg, Calan 40mg, Nexium 2x's a day, Ultram 50mg 4x's day


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/16/2008 7:15 PM (GMT -7)   
Sorry Mom . . . this sounds a bit scary for you. I really don't know what pulse steroids is. I have heard of it . . . but don't have a clue. . . could you explain it???

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 1/16/2008 7:29 PM (GMT -7)   
I don't know what it is either, but you will be in my thoughts and prayers. Take care and let us know how is goes.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 1/16/2008 8:39 PM (GMT -7)   
It's 1,000 mg of Solumedrol by IV for 3 days.  I start tomorrow and finish on Saturday.
 
I had it before a few years ago and ended up w/AVN, and a bunch of side effects. 
 
thanks! 
Lupus and Sjogrens Syndrome since 1995
 
Plaquenil 400 mg, Prednisone 70 mg, Imuran 200mg, Calan 40mg, Nexium 2x's a day, Ultram 50mg 4x's day


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 1/16/2008 8:49 PM (GMT -7)   
Hey mom I know exactly where you are at. I've done it several times. My very first sign of lupus was kidney failure. I did pulse of 1.000mg of solumedrol IV for 7 days. It is rough! Remember to bring some gum because it tastes nasty! Please know you are in my thoughts and prayers. Keep us informed on how you feel. God Bless You, Judy

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/16/2008 9:20 PM (GMT -7)   
AKKKK . . . sorry Mom . . . that does sound wicked. Will be thinking of you!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 1/16/2008 10:23 PM (GMT -7)   
Hi Mom.  I did pulse solumedrol as an inpatient about 3 years ago.  I still remember that I was awake 24 hours at one point and yes, it tastes wicked. I just got a steroid injection Tuesday so here it is after midnight and I'm wide awake.  It's great to have some pain relief and energy, but I'll be glad to get some rest soon. I also discontinued my Imuran and started CellCept Wednesday-so far no problem.  I sure hope your pulse solumedrol goes well.  It should make you feel much better.  Please let us know how it goes.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


momof2girls
Regular Member


Date Joined Jan 2008
Total Posts : 30
   Posted 1/17/2008 6:29 AM (GMT -7)   
thank you!  I didn't sleep at all last night, worried about today.  The last time I had pulse steroids I ended up w/avascular necrosis in my left hip.  I am so worried it will happen again.  This time though I have two kids, it makes it so much harder.  I started Cellcept last week but we discontinued it yesterday.  My RA is deciding whether to start cytoxan again or not.  I"ll find out on Monday.
Lupus and Sjogrens Syndrome since 1995
 
Plaquenil 400 mg, Prednisone 70 mg, Imuran 200mg, Calan 40mg, Nexium 2x's a day, Ultram 50mg 4x's day

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