frequent UTI's

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 1/23/2008 7:44 PM (GMT -7)   
are they a part of lupus?

Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 1/23/2008 7:50 PM (GMT -7)   

Loni:

Me again!  LOL

I feel like your symptoms are mimicking mine!

I have an appointment with a urologist tomorrow.  I've been on Cipro for UTIs four times since July.  I was on Topamax for headaches that made me want to put a bullet in my head.  The topamax made me get a kidney stone - which I passed.  But, when the PCP sent me for an ultra-sound of my kidneys, they found I had something called "hydro nephrosis".  They think I may have a problem with a valve or something...or it could just be normal for me.  That, in addition to the UTI that won't go away, they thought it best to get it checked out.

As for whether or not it is lupus-related...haven't figured that part out yet.

~Kim


SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/23/2008 7:53 PM (GMT -7)   
Yuppers!!!  They can certainly be a symptom, especially if the kidneys are involved.
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 1/23/2008 7:55 PM (GMT -7)   
Lol our symptoms are alot alike! I am going for an ultra sound friday afternoon. I have had 13 UTIs since July, so my urologist decided it was time to get a better look. Have they talked about doing a kidney biop on you?

Post Edited (Loni123) : 1/24/2008 12:49:02 PM (GMT-7)


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 1/23/2008 8:00 PM (GMT -7)   
OMG!  I feel like a whimp only having four UTIs since July!  LOL
 
They have not talked about a kidney biopsy at this point.  I have to go to my rheumy every three months to get blood and urine tests done.  My Anti-dsDNA stayed >300 up until my last visit (Jan 3rd).  At that point it had dropped to 193...which, is still way high.  However, my urine tests have never showed blood or protein - which is what he told me they look for to diagnose kidney involvement.
 
~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil


Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 1/23/2008 8:08 PM (GMT -7)   
What do u mean whimp??? any UTI is a pain! I just hate that it is hard for me to know when I have one because I already have really bad bladder spasms since my hysterectomy, so it has time to sit there and get worse before I finally get checked. My urine test usually show protein when I have an infection but not when I do not. You sound like you really deal with all of this very well.

Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 1/24/2008 6:59 AM (GMT -7)   

Loni:

Sorry - it was getting past my bedtime last night...

My UTI has to be pretty bad for me to feel it...I have a really high pain tolerance.  Usually it is:  you need antibiotics because you have an infection...OH!  OK.

As for dealing with things...it is pretty much a roller coaster ride.  Sometimes I can joke about getting fat from the prednisone, being tired and forgetting things...  But then sometimes, none of it is even a little bit funny.  Pretty much, I think that is how it is with everybody.  I think it has a lot to do with how much you are hurting too.

End of last week and earlier this week - I was not a nice person to be around.  (In fact, I apologized to my co-workers ahead of time in case I bit their head off).  Of course - I had a migraine and since I'm allergic to sulpha - can't take anything for it...just have to ride it out.  It has finally subsided - so I'm a little bit nicer. 

I'm very lucky...my co-workers are very understanding about my situation.  The two men I share an office with even unscrewed the flourescent light bulbs above my desk because of my migraine.  And, my boss told me the other day that he appreciates me "hanging in there as much as I can".  We are a small company - so even one of us being gone is stress on everybody else.  It meant a lot to me that he said that.

Hope you have a great day!  Good luck at the urologist tomorrow!


SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil


Loni123
Regular Member


Date Joined Jan 2008
Total Posts : 60
   Posted 1/24/2008 12:53 PM (GMT -7)   
Thats okay, I had to get to bed to. But of course I had to play some video games with my son 1st LOL! Again thank you for all of your advice. It feels good to talk with people that understand, as much as the people around you try to they just really dont! (Though my husband has been more of the researcher then I have been). I will let you know the U S results when I get them.

Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 1/24/2008 4:09 PM (GMT -7)   

Yes...be sure to let us know what goes on with the ultra sound.  I'm going to start a new post about my venture to the urologist.

~Kim


SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil, 25 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil

New Topic Post Reply Printable Version
Forum Information
Currently it is Friday, December 09, 2016 10:09 PM (GMT -7)
There are a total of 2,735,739 posts in 301,326 threads.
View Active Threads


Who's Online
This forum has 151429 registered members. Please welcome our newest member, terrance.
283 Guest(s), 8 Registered Member(s) are currently online.  Details
terrance, Tnmproject, Job_the_Phoenix, ks1905, joavila92, Sarakt, Octorobo, Csweeney1002


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer