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KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/24/2008 2:31 PM (GMT -7)   
Hello everyone. I hope you all are doing o.k.
 
I don't know if you remember my post regarding my eyes. I had episcleritis  in my left eye with little bubble like bumps on the whites of my eye. That was maybe a month ago, well today my right eye was bothering me and when I looked in the mirror, the coner of my eye was red (same as it was in my right) and it also has a bump on the white part of it (looks like a long bubble).
Do you get this? Is this what is called nodular episcleritis?
 
 

KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/24/2008 2:32 PM (GMT -7)   
ooops! I meant corner of my eye not coner.

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/24/2008 2:38 PM (GMT -7)   
Hi KaAl,
 
I've never heard of episcleritis before.  I'll have to do some investigating to see if it's related to lupus or autoimmune diseases.  Did you get treatment for the other eye, or did it just go away on its own?
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/24/2008 3:32 PM (GMT -7)   
Hi ginny, I did see my eye doctor about the other eye, he said it was episcleritis and prescribed eye drops. it went away in a couple of wks. Now I have the same thing in my right eye. I did some research on episcleritis and I found that it can be associated with a systemic condition like Lupus, lyme disease, RA, syphillis or can even happen with no association to any diesease!

KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/24/2008 3:34 PM (GMT -7)   
Oh I forgot, the article did mention that "nodular episcleritis" is more common in systemic diseases rather than episcleritis.

That's what I found....what can you gather ginny?.....

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/24/2008 6:27 PM (GMT -7)   
Yes, I came up with the same info KaAl.  I learned something new today!  If I ever get an eye issue that resembles this disorder, I know who to talk to!!
 
Is this a disorder that you can expect to get on a regular basis, or is it something that once treated with those drops, will go away and you won't have to deal with it anymore?  Does it hurt? 
 
I'm glad you have treatment for it KaAl.  I guess that is one more major symptom to add to your list.  One more piece to the growing puzzle, right!
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/25/2008 8:02 AM (GMT -7)   
Hey Ginny, Well to tell you the truth, I would think that this eye issue will most likely happen again, since I had two episodes within two months! I did read that if it does occur more often, then it is probably due to an underlying systemic disease.
It doesn't really hurt, it just feals a bit uncomfortable.
 
Yes, here is another symtom to my diagnostic puzzle! But, still no dx.
 
Later!

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 1/25/2008 11:21 AM (GMT -7)   
I had a terrible eye infection that was lupus related... It was an infection of the (sclara)... I had steroid eye drops...
My Dr. told me that you had to gradually lower the drops and not just stop using the drop.. If you just stop it will come right back...

My eye swelled up and my eyeball was in pain for 13 days... It was a terrible experience because I had not been fully diagnosed with Lupus yet... and when I went to the eye dr.. he said to me that he usually only saw this infection in people that had auto immune disorders... My head just dropped and I told him that I had been seeing a Rhuemmy for so many months.. He then told me I was to call the Rhuemmy and tell him... at that point, that was the last thing that I had before I was finally diagnosed....

KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 1/25/2008 12:34 PM (GMT -7)   
Weleetka, you are right in that problems with the sclera (I think it is called scleritis) has to do with autoimmune disorders, more so than episcleritis (the thin layer of tissue that covers the sclara).

Was what you had an infection, pain and discharge? Or was it inflammation of the sclera (scleritis)?

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/25/2008 1:09 PM (GMT -7)   
I find this strange that so many of us have eye issues before our dx. When I was 16 I had a really bad eye infection- light hurt so much, they were blood shot and watery yet itchy at the same time. I ended up with eye drops that burned. It cleared and then came back a few weeks later. The eye drops helped the second time too. I was told it wasn't allergies and the sensitivity to light has been a problem ever since. I had 20/20 vision before the infections and have needed glasses ever since with my vision getting progressively worse. I was never told what the infection was either. I can't wear mascara anymore since it happened- it makes my eyes hurt really bad. I also occassionally had my eye lid swell closed for no good reason. That stopped once I got treatment for the lupus. I hope your problem clears up soon.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 1/25/2008 1:25 PM (GMT -7)   
I'm almost sure he told me an infection of the sclera.. That is how I remember it...
The only thing that really helped me was a hot hot towel over my eye... I was still working then... and never missed a day of work but I had to stop a lot and cover my eye... I did hair for 15 years but am now not working... I'll be honest. I never knew your eyeball could hurt but it does......
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