Birth controll and Lupus

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tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/25/2008 12:23 PM (GMT -7)   
I have a question ... Why shouldn't we use birth controll pills when we have Lupus? I have Lupus and am on BCP  I aslo have Fibro and have terrible pain ( That puts me to bed for days and nothing helps except very strong pain pills) with my monthly and it help out.I guess What I am saying is I choose to take BCP but I heard we should not take it with Lupus. I did bring this up to my DRs. and they said to weight the options. Can any one help???
                  Thanks Denise
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/25/2008 12:29 PM (GMT -7)   
Hi Tink,

It is "thought" that estrogen can increase the risk of a flare. Some women find that their Lupus symptoms decrease after menopause. I think Dr. Daniel Wallace talks about hormones in his book. If I can find an excerpt I'll try and give a link.

I hope some of the others will respond to this as well . .. because I have limited knowledge on this subject myself.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 1/25/2008 12:41 PM (GMT -7)   
I was on birthcontrol for years and never had any problems, but because I have APS I had to come off of them and I had a IUD put in last march and since then I have been in a flare it seems like. Im only thirty and dont plan on having any children. but I wonder if the birthcontrol was helping I know thats sounds wierd. or a least keeping things at bay.
JessieRose


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 1/25/2008 12:41 PM (GMT -7)   
I belive for some of us artificial hormones pose more of a problem than for others. Any artificial hormones- BCP or Depo shot cause an autoimmune response in my body and make my lupus much worse. Others seem unaffected. I guess it depends on what your body can handle. You do have to weigh the risks. I know BC can increase the risk of blood clots and many with lupus are already at increased risk. I would have your lupus anticoglutent and anti-phospholipid/cardiolipid antibodies tested. If the any of tests is positive then BCP are very high risk for you, if they are all negative then you are not at such a high risk of blood clots. There is a doctor out there who has said all women thinking of taking BCP or Depo should have those tests run no matter what their health status because there have been enough cases of women on one or the other getting a blood clot that caused a stroke or even death. I am not trying to scare you just giving you what facts I have. There are some other options out there, but you would have to know 100% if you wanted kids/more kids EVER before even considering them. I had a rough time with my monthly until I tried an herbal supplement for a year. It is called vitex/chasteberry at the advice of my old gyn. 
 
HealthTouch.com ---- that site gives more information. Estrogen can increase the risk of a flare, so you want to consider a pill with either none or very low levels of it.
 
I hope this information helped.

(Post edited to shorten link so page width wouldn't be so long :-) )

Post Edited By Moderator (AlwaysRosie) : 1/25/2008 12:55:08 PM (GMT-7)


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/25/2008 12:47 PM (GMT -7)   
This quote taken from Lupus.Org

______________________
Are flares related to hormones?

We do not know for sure. There are many anecdotal reports (personal accounts) of lupus flaring with pregnancy, the menstrual cycle, birth control pills, and hormone replacement therapy. We suspect that hormones play a role, but we don't know precisely what the role is. Lupus has a 9:1 female to male ratio so it is likely that hormones play a role, perhaps by influencing the immune system. Also, we know that female hormones have a definite effect on lupus mice used in research.
__________________________

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/25/2008 1:42 PM (GMT -7)   
Redrose I thing you finally told me how this all started. I was on the depo shot just before I got sick and one day my body just froze up. I use to work for walmart as a department manager of paint and hardware. I put every product on the shelf and one day I could not find where to put the nuts and bolts. I knew that 4 foot sections like the back of my hand. I could tell you the row and how many pegs to go to find what you wanted. That day I just stood there looking at them. I could hear what was going on around me but could not speak. That was in September the next June I was DX with Lupus. I now think that was the start of it. I am not a Dr but I think now it could have caused it. Now I find out all the stuff it can do to you.    confused

Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 1/25/2008 1:43 PM (GMT -7)   
PS I do not have problems with flares with the BCP but more when I am off of it.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/25/2008 5:15 PM (GMT -7)   
Ironic, I was ill before I took any BC but was on Depo for years and the sad truth is it made me tons worse.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


firebabe
Regular Member


Date Joined Aug 2007
Total Posts : 206
   Posted 1/25/2008 6:50 PM (GMT -7)   
Funny Tink-I too was on the Depo shot for a few years.  I got off the shot about 6 months after I got married-we thought it was time to start a family.  I had extrememly sore breasts for about 6 months and even went up a cup size.  That's also when I started to notice the aches and pains throughout my body.  You may be on to something here.  I also want to state though that I am on a birth control pill presently because I am also on Methotrexate-it is precautionary to be on it since methotrexate is toxic to a fetus.  I haven't noticed any side effects from it, except for the first few months I had breast tenderness.  That pretty much sucked.
~Firebabe~
 
"Challenges make you discover things about yourself you never really knew."
 
SLE and Class II Lupus Nephritis


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/25/2008 8:12 PM (GMT -7)   
I actually developed fibrocystic breast disease/syndrome on depo and my breasts just kept growing and growing. I had a reduction in June last year and suddenly I was in remission- something we never expected to happen. I know depo is stored in fat cells and other tissues and it does not all go away after 12-13 weeks or even after several years. It stays in the body for a very very long time. After I was off depo for about 6 months my breasts stopped growing and the FCBD/S went away- something it supposedly doesn't do.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 1/25/2008 9:09 PM (GMT -7)   
Hi Denise:

I see the others have responded as to why we shouldn't take hormones and have lupus. I had a total hysterectomy in 1997 and had been on hormone replacement until Sept 2007. I then developed a 2cm blood clot in my IVC. No more hormones for me. Since coming off the hormones I feel no different from when I was on them. I do have more hot flashes now but other than that my lupus doesn't feel a bit different. So I guess I was one of those ppl the the hormones didn't bother me at all.

Wishing you the best as always Denise. I hope you continue to do well with your BC pills. Let us know how things are going.

Take care,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/27/2008 7:24 PM (GMT -7)   
Bump!! up you go for sheshe!!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/28/2008 4:26 AM (GMT -7)   
Barb, Actually the funny thing is in lab mice genetically engeneered to develop lupus removing the ovaries BEFORE lupus developed prevented the disease but removing the ovaries AFTER lupus developed resulted in worsening of the disease. So you will never know how things would have gone had you hasd it all removed before the lupus developed. The artificial hormones can cause some serious problems for some. Clots are only part of it. Sorry you got one though.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

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