I did have an MRI several years ago because I was experiencing symptoms of MS, which is classified as an AI disease. fortunately, the MRI showed nothing. My symptoms were most likely related to other AI things (e.g., RA, and/or sjogren's). I don't know that I've ever experienced brain fog like you're referring to, however. My symptoms concerned paresthesias (tingling) in my feet and hands. I do know that lupus is related to MS, among other things, and with some of these drugs we're all taking (e.g., the biologics), drug-induced lupus and drug-induced MS is a real threat.
I'm certainly no expert, but I wouldn't think an MRI would show any obvious brain abnormalities related to brain fog, would it? An MRI/brain scan would only show physical abnormalities (e.g., lesions associated with MS). I don't know how they would track a decline in cognitive functioning (e.g., memory, etc...) without using a cognitive test battery (paper/pencil tests). Just my opinion, though--perhaps others will have more information on this.
I was sent to a neurologist in November because of headaches I was having - felt like someone was pounding a railroad spike in my temple and they would last for DAYS...
Rheumy wanted to check on CNS involvement. When I talked to the neuro - he said that if I had CNS involvement, my brain would "light up like a Christmas tree" on the MRI. The MRI came out normal.
As for the brain fog: I've only been dealing with the "official" diagnosis since July - but I can tell you this: next to the fatigue, the brain fog is what is bothering me the most. We are talking - I used to be able to multi-task like crazy. No more. In fact, if I have any expectation of remembering anything - I have to write it down. I struggle for the right words...they are in my head - but I can't pull them out. I end up having to explain what I'm talking about and somebody usually says the word for me. I look at things, and it will take 15-20 seconds to figure out what it is I'm supposed to do with it. Last week, I hit my hand on something (and it REALLY hurt)...10 minutes later, I couldn't remember what I hit it on (and still haven't remembered).
I don't know if this helps any. I think the brain fog is ridiculously frustrating....and scary. But - doesn't necessarily mean you have CNS involvement.
I want to thank you all for taking the time to read and share your experiences with me. To tell you the truth I don't even know what CNS means. I guess I'll have to look it up bu than I'll probably just scare the heck out of myself if I knew. I do know that they are going to add more hours to my home care because I am doing some scarey things. I realize that people do forget to turn off the stove fro time to time but I have left mine on several times in the past month. The only reason I noticed is because I walk thru the kitchen a notice that it;s hot in there. I have a plastic dish drainer and it was all melted. That scares me. I feel like I'm just loosing it. I read a little about a/i plus brain and it mentioned somthing about a PET scan ?????? not sure what that is either. I'm very very depressed today. I was supposed to go to the rheumy tomorrow but sooner ride was to take me. They pay for the gas and everything. There's no way I could drive. plus it's out of state and this company won't go out of state. So I had to canceal. I just don't have 60 dollars for gas to get there and back if somone else took me. The home health people finally found a rheumy for me that's much closer the soonest I can get it is may 13th! I just wanna cry. I don't want to do this anymore.
but I love you guys!
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