21 questions.....

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meeks
Regular Member


Date Joined Dec 2007
Total Posts : 27
   Posted 1/29/2008 7:23 PM (GMT -7)   
ok maybe not quite 21 questions, but I do have questions.  I apologize in advance if some of these questions are repetative, there are so many thread topics that have come up thru my searches I would be online FOREVER. Excuse my ignorance.
 
 
  1. Does Prednisone make you itch (in high doses)?
  2. are there any OTC meds you should steer clear of?
  3. Do meds for Lupus make you lose you sex drive?
  4. If Pred. makes you lose muscle mass, would it be safe to lift weights?
  5. Does Lupus make you easily confused?
  6. Are tattoos & piercings out of the question for people w/ Lupus?
  7. Can Lupus/Meds for Lupus make your hair & teeth fall out?
  8. Can people w/ Lupus have any type of surgery ( recon. or cosmetic)?

 

 
 

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 1/29/2008 8:15 PM (GMT -7)   
Hi Meeks,
 
You are not being ignorant by asking these questions.  That's what this forum is for - learning!
 
Does Prednisone make you itch (in high doses)?   It can for some people. Not for others.

are there any OTC meds you should steer clear of?  Always ask your doctor first before taking ANYTHING.  Even herbs and vitamins.

  1. Do meds for Lupus make you lose you sex drive?  Some can, especially the anti depressants.  The disease itself is blamed on a loss of sex drive too.
  2. If Pred. makes you lose muscle mass, would it be safe to lift weights? Yes, you should maintain strength exercising.   Prednisone causes more bone mass than muscle mass though.  Doing strength exercising with help with bone loss too.  Consult with your doctor first before starting any exercise regime.
  3. Does Lupus make you easily confused?  Depending on the individual, yes.  If your lupus is flaring you might notice it more.  We call that "lupus fog" or "brain fog".
  4. Are tattoos & piercings out of the question for people w/ Lupus? Probably not recommended.  Especially if you're on blood thinners.  I have a lot of knowledge on this one.....
  5. Can Lupus/Meds for Lupus make your hair & teeth fall out? Yes. Both the disease and the meds can do this.  The hair loss is usually temporary, and the tooth loss is usually due to sjogren's (dry mouth).
  6. Can people w/ Lupus have any type of surgery ( recon. or cosmetic)?  Depends on the person, their disease activity, which medications you're on, etc.  Most surgery is avoided unless it's emergency or critical.

I hope this helps meeks!  You might get some more responses too.  Someone with experience with tattoos would be nice! Not sure what happened with the numbers for the first two questions!  LOL, there's an example of some "brain fog" for ya..... OY.

Ginny 


I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 1/30/2008 7:34 AM (GMT -7)   
I pretty much agree w/Ginny's answers to you.

OTC stuff to steer far away from -- anything that is supposed to "boost" your immune system.

Tattoos and surgery -- in both cases it refers back to your general health, what meds you are on, and what your doctor suggests. Most elective surgery's are NOT recommened, and we usually are given extra high doses of prednisone surrounding a surgery to make sure it doesn't kick off a flare.

I personally would not risk anything that might trigger a flare -- OTCs my doctor didn't ok and elective surgeries/tattoos/piercings would be part of that.

Hope that helps,

Lynnwood, Co-Moderator: Lupus Forum
SLE(’00), Sjogren's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Cellcept, Prednisone, Trazodone, Fosamax, Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS(4of11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 1/30/2008 7:39 AM (GMT -7)   
Hello Meeks.
Thank you for asking those questions - some of them were questions I had, too. Ginny and Lynnwood - great answers. One of the great things about this board is having "real" people explain things in a way that make sense. Beats all the medical mumbo-jumbo!
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Prednisone.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 1/30/2008 1:53 PM (GMT -7)   
Thanks for such a thorough answer Ginny . . . I agree with Ginny also.

One addition I would make is re: sex drive. For women, there are a list of things that will affect sex drive.

Energy (low energy just isn't conducive to good sex) . . . So intentionally chose a time of day that works for you . . . just before dinner or lunch is great because after a meal your body is working hard on digestion, leaving poor blood flow for more important body parts . . . he he. By the time we go to bed in the evening, there is just little hope for enough energy left to enjoy sex.

how we look (or how we "think" we look) can really dampen things or improve things. Even a bit of lipstick can improve self-image and make sure to have some nice undies . . . really. Even those of us who are way overweight can feel much more appealing with some pretty undies and a bit of makeup.

anti-d's are not all created equal . . . if you've noticed a change in your libedo do talk to your doc. . . I switched anti-d's three times till I found one that least interfered. I don't recommend this w/o doctor's approval, but on some anti-d's it seemed that if I wanted to make "plans" and I skipped my anti-d that morning, things went better . . . not sure if this is placebo affect or for real . . . but who cares . . . w/doctor permission . . . if it works, it works.

I just feel like this is a very important aspect of our relationship. For all our hubbies endure with this dd, it is really important to find a way to make this area of our lives work. Making it a priority is a great way to enrich our lives.


Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 1/30/2008 4:44 PM (GMT -7)   
meeks said...
ok maybe not quite 21 questions, but I do have questions.  I apologize in advance if some of these questions are repetative, there are so many thread topics that have come up thru my searches I would be online FOREVER. Excuse my ignorance.
 
 
  1. Does Prednisone make you itch (in high doses)?
  2. are there any OTC meds you should steer clear of?
  3. Do meds for Lupus make you lose you sex drive?
  4. If Pred. makes you lose muscle mass, would it be safe to lift weights?
  5. Does Lupus make you easily confused?
  6. Are tattoos & piercings out of the question for people w/ Lupus?
  7. Can Lupus/Meds for Lupus make your hair & teeth fall out?
  8. Can people w/ Lupus have any type of surgery ( recon. or cosmetic)?

 

 
 
1. Don't know
2. Don't know
3. As others have stated antidepressants can.  Prednisone also can have that effect but it is not that common.
4.  Prednisone will not cause you to lose muscle mass directly.  Inactivity or some type of inflammatory muscle disease like polymyositis or dermatomyositis will. Prednisone can cause some muscle weakness but that is usually reversed by a lower dose or tapering off prednisone.  I have PM and lost 40 lbs of muscle as well as had atrophy from being bed ridden and totally crippled for many months.  It is safe and beneficial to use weights.  Use common sense and start out with lighter weights and focus on range of motion and sets with 8-16 reps each.  Try to do 3 sets.  If you have an active muscle disease then you need to be careful not to overstress them.  Listen to your body and it will tell you if you are overdoing it.  I have gone from a quadriplegic state 2 years ago to a fairly active lifestyle again...skiing, playing golf and working out 4-6 times a week.  I am lifting heavy weights now and have farily vigorous workouts.  Just remember that you probably have a lot less stamina than before getting sick so balance what you have to do with what you want to do.
5.  Yes.  Call it lupus fog or prednisone whatever.  Lupus can affect you neurologically and many if not most of us have those symptoms.  It hit me with short term memory, lack of concentration, and less ability to handle stressful situations.  The change was very sudden and noticeable.  You are not imagining those changes.  Over 2 years later I still struggle with those things but it has improved.
6.  I would avoid any potential infecting agents...like tatoo needles and piercing...particularly if on prednisone or immunosuppressants.  You can probably get away with it but why take the chance for something cosmetic?
7.  Yes
8.  Yes but I would decide to postpone any elective surgery particularly if it was for cosmetic reasons.  If you are in remission and not taking high doses of prednisone or immuno suppressants then there would only be the normal risks.
 
Bill

Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/30/2008 5:17 PM (GMT -7)   
I had a breast reduction last June, I had been in basically a constant flare for a couple years but the problems with my back made it absolutely necessary to do SOMETHING to help. Ironically 2 weeks after the reduction I got my remission. Now, this is a very unusual result from surgery, most likely it had more to do with medication adjustments. So yes surgery is possible but must be weighed carefully and rheumy approved.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

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