Hi Emmi, Hi Ginny!
I took Neurontin for a very short time for a horrible nerve problem I had that caused me to feel miserably prickly\itchy all over. It was so bad for so long that I couldnt sleep, I was miserable. My neurologist thought it may have been peripheral neuropathy and tried the Neurontin. It didnt work very well, and made me gain weight and have incredibly vivid dreams. I think I took it for two months before stopping last summer. I wouldnt take it again. I have heard that Lyrica works much better with less side effects, but I cant say for sure since I have no personal experience with it.
Ginny, I have to second your statement on the benzodiazapenes. I took Ativan for over a year. Thats back when I was going through the first of my illnes... you know, when the doctors try to tell you that you are depressed and its all in your head. I tried to come off cold turkey. I had no idea how dangerous that was. I remember having the worlds worst headache for four days and getting injections in my neck of steroids and lidocaine for the pain before my Neuro realized what was happening. TWO HOURS after I took a dose of Ativan, the pain and sick feeling was gone. My Neuro weaned me off of it for over six months and I will never allow anyone to prescribe me a benzo again.
I hope others chime in on the Neurontin!
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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I'm on my 4th day of Gabapentin for fibromyalgia. My doctor advised me to take the first capsule at bedtime and then in regular intervals 3 times a day from that time on. Each capsule is 350mg. After taking only two, I was quite dizzy and felt "out of it". That same day (a weekend and also pcp on vacation) I called my pharmacist who advised maintaining the dosage for a few days. If my symptoms worsened, to try taking only one capsule a day.
Today is my 4th day of taking 3/day, and my leg pain is excruciating! I can't believe I actually asked my pcp for this drug!! I had been taking Percocet for the pain, but he wanted me off that to avoid addiction. So, I'm really not sure where to turn now. From reading the other posts, I can't quit cold turkey, but should wean myself off. Any recommendations for doing that?
Diagnostic Limbo: Seeing Rheumy since November 07, Taking plaquenil, Cymbalta, Flexeril,Claritin, Zantac,Ambien, vitamin D, Darvocet.
UCTD, Inflammatory Arthritis, Diverticulosis, (recent dx - Sjogrens, Crohn’s 4/08)
Very interesting to read all these responses. Clearly it seems to work for some and not for others. I was put on it for fibro pain in 05- lasted a month - before quitting. I started on the lowest possible dose - which I later learned actually results in greater bioavailability than some of the higher doses. At any rate - it didn't help much with pain, but I felt lethargic and depressed and had nightmares, along with weight gain - which just seemed to add to my problems rather than reduce them. Rheumy felt that Lyrica probably would not work for me either, since it is in the same family as Neurontin. I have problems with all kinds of meds, though - very difficult to take anything - so I'm probably not a good "test case".