Interesting morning...

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Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 1/31/2008 3:08 PM (GMT -7)   
I went for my IVP this morning. What a mess. Originally I was scheduled for the testing center across from the hospital. But, because I'm allergic to iodine, they changed it to the hospital (you know, in case I decided to stop breathing or something).

Got there before 8 this morning. Got called in at 8:45. Changed into my beautiful hospital attire and got started. The tech took my history, etc. Then took some pictures. She went to show them to the radiologist. about an hour later, she came back and said "we can't do this test here...your doctor ordered tomograph (sp?) and that can only be done at the testing center. So - I called over there and they are waiting on me to walk you over there and they will take you right in." So - after much adieu, the test finally got done.

Here is the interesting part:
This was my first experience of being in a hospital, telling the staff that I have lupus and getting that glazed over, heading shaking look of "I have no idea what you are talking about".

~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 1/31/2008 4:02 PM (GMT -7)   
Glad the test went okay. LOL I get that glazed I have no idea what you are talking about look all the time. Heck even my family gets that look.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 1/31/2008 4:14 PM (GMT -7)   
Kim . . . I'm glad its over . . . the glazed look is likely *Gee, I should know how that disease work . . . but I'm really confused about it*

Keep us posted when you get some results. glad they went the extra step and took care of everything today!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 1/31/2008 8:25 PM (GMT -7)   
Hey Kim,
 
I'm glad it all went smoothly!  Good thing you could just walk over the center where the Tomography was. I had a tomograph done when I was about 17 years old.  It was to help in the doctors figure out what needed to be done to correct my TMJ issues. 
 
So when do you get your results back?  Are you back down to your original prednisone dose?  I sure hope so!!!!
 
Sleep well tonight!!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 2/1/2008 7:18 AM (GMT -7)   
You have to love that glazed look - I always get that look when I can't get in to see my pcp and have to see a different doc. I had a pcp that I loved and when she left the area, it took me a while to find another one who didn't give me "the look".

Take care and let us know what you find out about your results.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/1/2008 8:05 AM (GMT -7)   
According to the tech yesterday, the doc would have the results yesterday afternoon, then, they would be transcribed and faxed to my doc.

I figure I'll wait until this afternoon and then give them a call.

I'll keep you posted.

I called my rheumy yesterday and asked about the prednisone. The nurse said she thought it was fine to do my drop to 9 mg today...but that she would talk to the doc and call me back.

Of course, no call back. So, I'm dropping to 9 mg and see how it goes.

~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/1/2008 1:36 PM (GMT -7)   
Just letting you know...
Called the doc's office and he reviewed the results of my IVP and everything is normal.

Yeah!

~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/1/2008 2:32 PM (GMT -7)   
Yeee hawww!!! Good news Kim!  Thanks for updating us.  So what is the next step?  Is there one? 
 
Gin
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/1/2008 2:52 PM (GMT -7)   
No next step, I guess. All the tests came back normal from the urologist... I have an appointment to go back to see him in three months.

So - now I just work on trying to get off the prednisone.

~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/1/2008 3:01 PM (GMT -7)   
Excellent!  What a relief to not have any more doctors to see for a while.  You feel okay on that 9mg of pred?  You'll probably know better tomorrow too.
 
Have an excellent day!
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/1/2008 7:47 PM (GMT -7)   
So far, so good with the 9 mg pred.  I'll stay here for two weeks like everyone suggested.
 
I think I might actually have two weeks that I don't have a doctor appointment!  woo-hoo...
 
Take care guys...
Hope everyone sleeps well...
 
~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel

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