FINALLY SEEING RHEUMY ON MONDAY!

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wolftrades
Regular Member


Date Joined Aug 2005
Total Posts : 301
   Posted 2/1/2008 1:22 AM (GMT -7)   
It has been a long, strange journey. I have chronic pain from 3 bulging discs, spinal stenosis and facet hypertrophy and scoliosis. But recently, I have been cold constantly. Blood test revealed very mild anemia which led to appointment with hemotologist which led to ct scan that showed enlarged spleen (just by 1 cm), an enlarged thymus and enlarged lymph node (very very minor). Hemo said to do nothing until May.
 
Meantime, Primary Care Doc dx'ed me with psoriatric arthritis. Hemo said I had a ton of arthritis and my Sed Rate was elevated in blood tests.
 
Still, I am fatigued, itching, with periods of malaise, lack of appetite, weight loss...etc. Came down with Lupus type mask on face.
 
Then, 2 weeks ago, blood in urine. CT Scan showed possible kidney stone, so I let the blood resolve itself which it did.
 
New blood test showed normal red cell count, but platelets were 131,000 vs. 150,000 low normal.
 
Decided to see new hemo who felt this was result of dental infection. He basically poo pooed all of the non-normal blood readings as being too minor.
 
Even though I am a stock and option trader, this guy insulted me by telling me that if I couldn't afford it, univeristy pre med students could do the dental work for free. 
 
Anyway, he felt I needed to see a rheumy and I agree. So I am seeing one that I saw years ago before I had health problems and symptoms.
 
This guy said I was not chilled, but cold and he blamed that and the way I feel on the dental problems.
 
But no one has done a urine test. After I peed blood, for a few days I had a glossy film like urine with bubbles and foam which could be protein and a sign of many different things.
 
I will update after the appointment Monday.
 
Alan

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/1/2008 6:28 AM (GMT -7)   

Hi Alan, Glad to hear you are seing a rheumy you feel comfortable with. Your right the bubbles sound like posible protein. I''m sure your doctor will take a urine sample. Sounds like you have quite an assortment of things wrong with you. I hope you get some answers soon.

You know I wish more doctors would make suggestions about where to get help free or cheap. I wouldn't be insulted at all. I'm a widow living alone and trying to survive on disability. I'm thankful for any help I can get.

I know fatique can make you cold too so I'm not so sure about the teeth being the culprit but it can be dangerous to have dental infections.

If you go to the dentist you need to tell them what is going on with your health and find out if you should stop or start taking anything before your appt.

thanks for the update let us know what the rheumy says

hugs

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/1/2008 10:07 AM (GMT -7)   
Hi Alan . . . glad you are seeing a rheumy Monday . . . finally.

If the docs have done the right blood work, they can see kidney problems there too. If certain blood work is wrong, they look at the urine too. Your rheumy will likely do the urine with the first batch of testing and then they monitor more thru blood if everything is ok with the first urine. At least, thats been my experience. But the foam is a red flag so make sure to tell the rheumy about that.

I'll be watching for your update after your appointment Monday.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/3/2008 2:35 PM (GMT -7)   

Hi Alan,

   Good luck with your appt on monday. I hope it goes well and you get some answers soon. Let us know how it goes and take care.

                                                            Babs


 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2008 8:25 AM (GMT -7)   
Hey Alan, I just wanted to wish you luck and your appt: today. I hope you get some answers. We will be waiting for an update!
hugs

carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/4/2008 3:46 PM (GMT -7)   
Hope the appointment went well. I also hope you get some answers.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

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