Catch myself loosing my balance

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/1/2008 6:45 AM (GMT -7)   
I noticed the last couple of days I've turned to leave a room or somthing and I have to tighten my leg real straight because I feel like I'm gonna fall if I don't. It feels like the big muscles in the front of my  right thigh has no muscle tone. It's only happened 3 times in two days but I still find it kind of odd. Geesh what else could go wrong? Never mind don't answer that lol
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 2/1/2008 7:50 AM (GMT -7)   
Carol, that doesn't sound good - make sure to tell your doc about this. Also add it to your list of symptoms when you see the new rheumy, even if it goes away. There are some autoimmune diseases that cause muscle wasting, so don't let this go on too long without mentioning it to your doc. There are some tests they can do to see what might be causing this. I know you are sick of doctors - I'm just being a mother hen and I worry about you.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/1/2008 8:46 AM (GMT -7)   

Thanks Hippi, I'm thinking maybe with these questions I am having with the brain/confusion and other things now with my legs that maybe this bout in the hospital is bringing out some new symptoms. I'm also having alot of muscle twitches. I have been trying to write things down so I don't forget. Things are so bad that I am even practicing talking to my doctor so she understands what I'm trying to say to her. But you know what......I don't want another pill. I want some answers. I love my PCP but after a year and ahalf we aren't getting any closer. Of course it's not her fault that finding a rheumy around here is so hard. and the waiting list are so long.

Anyway I'm gonna go lay down, My insomnia has been so bad that I can't think straight. Well I couldn't anyway but this isn't helping I'm sure. How's your daughter doing?

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/1/2008 8:54 AM (GMT -7)   
(((Carol))),
   Do you have an appt with a Neurologist? Stay on your doctors about these symptoms and get the answers you need to help you feel better. This really needs to be addressed by a specialist right away.
   Please be careful and take care. Rest all you can and update us when you can. Hang in there. You are in my thoughts and prayers.
                                                              Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/1/2008 9:58 AM (GMT -7)   
Okie . . . as I move my foot up and down, that muscle helps lift and lower the foot. I wonder if you have "drop foot". This would cause difficulty in lifting your foot as you take a step and therefore tripping as you move forward. I think the doc will have you stand with your legs together and stand on tip toes to begin checking for this. DO tell him about it. And think about using a cane or a walking pole until you figure things out.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/1/2008 11:10 AM (GMT -7)   

 

No bab's I don't even had a neuro because the brain stuff that went from humorous to scarey just started a few weeks ago to the point where I can't ignore it anymore. I have a PCP appt on tuesday and I wish I had one of you with me because no one here understands and I'm afraid I won't be able to get thru to her about what I'm going thru.

Hippi thanks for the mother hen thing. I love ya for it. I'll never be able to eat chicken soup the same way again. I hope your daughter is getting better has her fever gone down any?

Rosie thank you for doing that test for me that was pretty cool. if you figure out anything else please let me know You'd probably make a better doctor for me than most of the ones out here.

love ya gals

carol

 



God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 

Post Edited (okie) : 2/1/2008 4:32:28 PM (GMT-7)


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/1/2008 3:00 PM (GMT -7)   
Hi Carol,
 
I know you're scared about seeing a neuro.  But I agree with the others.  You really need to see one.  They might say, oh, here's the problem, this is how it's fixed.  Then you can start feeling better again.  Please see someone, okay. We love you and want the best for you.
 
Take care today, friend,
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/1/2008 4:35 PM (GMT -7)   
Thanks Ginny I'll discuss it with my PCP on tuesday. It's probably nothing more than somthingto do with the new meds they put me on in the past month. Plus my mind is feeling real fried right now from being so tired. I hate it when I get insomnia!
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/1/2008 4:46 PM (GMT -7)   
okie, I'm sorry you are having to deal with insomnia...I had it for 9 days in a row and was ready to lose my mind! You just can't function without sleep.
I had it so bad that I was taking a sleeping aid and still was up in 2 hours!!

I hope it gets better for you.

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/2/2008 10:16 AM (GMT -7)   

Hi Kaal, I'm sorry you have had to deal with that. 9 days how awful! how did you finally get over it? I was told don't worry when you get tired enough you'll sleep. That's all well and good but trying to function in the mean time is too much. I can't even imagine going for 9 days.

hugs

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/2/2008 11:47 AM (GMT -7)   

Carol, I have to say I thought I was going to lose it! It was so awful, feeling dead tired amd unable to sleep. I went to my pcp who prescribed me ambien, would take it and still would be wide awake in two hours!!! I even thought of double dosing one night, but I thought to myself, "what if I don't wake up in the morning?". I really don't know how I was finally able to sleep again, it just happened. You never know how important sleep is until you don't have it.

How many days has it been for you?

 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/2/2008 4:31 PM (GMT -7)   
KaAl, do be careful about increasing your Ambien - I'd hate to see something bad happen because of an accidental overdose. It wouldn't hurt to call your doc about how much trouble you are having. As I'm sure you know, not getting sleep makes everything worse because your body doesn't get that healing and restorative rest that it needs for healing.

I really hope both you and Carol get some relief because the severe insomnia sounds just miserable.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/2/2008 6:58 PM (GMT -7)   
Oh no, hippi, that was in the past.....Thank God I don't have the insomnia any longer. I had it real bad for 9 days in a row. I sleep fine now. I really hope it stays that way!

Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/2/2008 9:13 PM (GMT -7)   
Hi Carol:

I'm sorry that you're having so many additional symptoms. It's so hard when you can't remember what you're having to say to someone else. I'm glad to hear that you're going to the doctor on Tuesday. Please make sure you mention the issue with your leg to them.

I'm praying that your insomnia goes away quickly and that you begin to start to feel better really so. Hang in there Carol, we're pulling for you.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Bsime
Veteran Member


Date Joined Apr 2006
Total Posts : 1298
   Posted 2/3/2008 9:14 PM (GMT -7)   
Carol,
 
Please see a neurologist or a rheumy who is experienced with lupus and inflammatory muscles diseases like polymyositis and dermatomyositis.  Muscle weakness can be caused by many things and you should not ignore it. 
 
Myositis diseases like polymyositis and dermatomyositis tend to hit the proximal muscles around your hip girdle and shoulders the worst.  Symptoms are difficulty in getting up from chairs/toilets, climbing stairs, raising your hands above your head, and swallowing.  General weakness often follows and fatigue is always present.  Often patients do not realize they are becoming weaker until they go below a level of functionality for a particular action.
 
There are many other causes of muscle weakness such as ms or md which is why a neuromuscular doctor is probably a good place to start.  You should not hesitate.  Also keep in mind that you might not have another disease but that your weakness could be simply muscle atrophy and you did not notice it until it got below a level of functionality.
 
See another doctor.
 
Bill
Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena, Hypertension, Barrett's esophagus.
 
Meds: prednisone 5mg, 50mg imuran, Lotrel 40/5mg, maxide 37.5/25mg, folic acid, potassium, aciphex 20mg, multi vitamins.
 
Maintain your optimism and you can beat the odds.
 
"Although the world is full of suffering, it is also full of the overcoming of it."  Helen Keller
 
 


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2008 8:17 AM (GMT -7)   

Thank everyone. Thanks Bill for all the info. I was a little concerned about finding out my first cousin has MS. Before that I couldn't find anyone in my family which I though was strange. I was wrong it's actually my mom's sister's daughter. Which sort of follows the pattern of women getting it more than men. I can't get in to see my new rheumy until may 13th. I know it's rediculous. I have an appt with my PCP tomorrow and I'm gonna let her know of the new symptoms and new findings. She's good at listening. Now that I've gotten a little sleep I think I can explain things a little better.

love ya all

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 

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