Clickable: LUPUS INFORMATION & LUPUS RESOURCES.
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In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Lynnwood, Co-Moderator: Lupus ForumSLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Post Edited (Lynnwood) : 2/1/2008 1:26:48 PM (GMT-7)
This is a tough struggle with the mind and body. It's a constant battle going on with us. When we feel decent we wan't to do more and when we feel rotten we just want to lay around and sleep. It's hard to get the right balance at times.
Rosie and Lynn had some great suggestions. With me working part-time, I have to conserve my energy for work and let things go around the house. Thank goodness my kids are grown and I live alone. It was so very hard when they were younger. My heart goes out to you!
Fortunately, I have a very high tolerance to pain. I can't take most pain meds, so thats a blessing for me. When I do have extreme pain though, its misery. The fatigue is bad enough on its own but, with pain added it will wear you out.
I hope things get better for you soon and you get a break. Hang in there and keep us updated. You are in my thoughts and prayers.
Lynnwood, Co-Moderator: Lupus Forum
Dx Lupus since '00, new Dr wants to Dx Fibro instead....SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Post Edited (canuckgirl) : 2/4/2008 7:03:50 PM (GMT-7)
Thanks for the topic and all the tips in the replies. I am pretty much homebound. I don't plan activities for 2 days in a row. I usually take a trip to see a movie or to a coffeeshop once a week. I find that when I do too much around the house my fever goes up. Does anyone else have this symptom? Thanks for the timer idea Rosie. That might keep me from overdoing it. I try to take a shower every other day, do some laundry, vacuuming, load or unload the dishwasher, just do small things around the house and rest in bed inbetween. Thanks for the naltrexone tip Canuckgirl. I will check that out . . . and Ann Ireland, you are a superwoman! We all are. It takes a lot of courage, determination, every ounce of such limited energy, patience, and fortitude for us to make it through each and every day. Compared to how some healthy people breeze through their days -- we are all superwomen and supermen.