Stomach Spasms Anyone?

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Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 2/3/2008 10:04 AM (GMT -7)   
Well, really the spasms I'm getting are lower than the stomach, in the small intestine. They seem to be somehow related to gas, and definitely cause rectum distress (must-do-it-now diarrhea).

They do not seem to be related to food, but might be related to stress -- yet don't always arrive when stress does. It's a very definite feeling of a spasm traveling down the intestine - I can feel it move through the lower abdomen.

For several months early last year I had this problem, then it went away for several months. This week it's back, and I've started wondering if it's related to lupus or fibromyalgia.

Anyone with something like this?

Thanks,
Lynnwood
Dx Lupus since '00, new Dr wants to Dx Fibro instead....

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Post Edited (Lynnwood) : 2/3/2008 10:21:19 AM (GMT-7)


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 2/3/2008 11:33 AM (GMT -7)   
hi Lynnwood,
 
Oh dear, that sounds very uncomfortable.  I know that with Fibro, irritable bowel can be an issue.  I notice the "urge" much more frequently if my fibro is active.  I have nothing but really loose, or the "big D" when that happens. 
 
Did you notice your previous episode with this during a lupus or fibro flare?  It's so hard to pinpoint isn't it....
 
All I know is that taking my daily acidophilus has helped tremendously with my bm's and the gas too.  I had a hydrogen breath test done a couple of weeks ago to see if I had any intestinal bacteria issues.  The results came back 100% normal.  Not a single bit of bacteria in my system. My GI doc said it was from the 3 years of probiotics that I've been taking.  He was thrilled and said that very few people who are on acidophilus have gas/diarrhea, cramping issues. 
 
I can't remember if you are on a probiotic already?  I recommend it for anyone!!
 
Hopefully someone else will have more info and ideas for you. 
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/3/2008 11:40 AM (GMT -7)   
When it occurred previously, I had no reason to look for fibro symptoms, so I have no idea if it occurred during a flare of either. I'm fine once my stomach, etc. empties, which occurs in a matter of 20-30 minutes.

Couldn't it be the only manifestation of a flare? IE, intestine cramps are the flare? Hmmm.........

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 2/3/2008 12:00 PM (GMT -7)   
Lynnwood, I was reading on another post (the "how do people feel everyday" post) that several members said they could tell they were in a flare when their GI problems flared up. It looks like a real posibility that the flare could be manifesting itself in your GI symptoms. It seems like this disease doesn't stop throwing curveballs.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 2/3/2008 1:04 PM (GMT -7)   
Ya, I think you're both right.  The GI issues could be the flare itself.  Just like when my fibro flares, the brain fog becomes my flare up.  I guess, like you said Lynnwood, the actual symptoms we get, are the flares.  Makes sense to me!  Definitely bringing this up with your rheumy is a good idea.  Just to see what their opinion on this is.  I get all freaky freaky when my it's my GI that causes problems.  A lot goes on in there that affects the rest of our body. 
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 2/3/2008 1:28 PM (GMT -7)   
hi lynnwood,
sorry to hear you are having problems, i have had diarrhea on and off now for months because of the cellcept but the docs wont change it cause unfortunately the benefits out weigh the risks, so the doc told me to take imodium for the diarrhea. are you taking anything to help with the diarrhea? the imodium helps but now that i am on oxycontin it helps with the diarrhea because one of the side effects of it is constipation, go figure. have you talked to your doc about it yet? i hope that your stomach soon, your in my thoughts and prayers.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/3/2008 2:20 PM (GMT -7)   
Hey Lynnwood,

Sorry you are dealing with this. . . . but SO glad it disappears with a trip to the broom.

I have had several boughts with severe lower abdomen (bowel) pain in the last year. It is how my flare begin now . . . or this is causing my flares. It starts with sores in my mouth (not open sores, just sore, red spots) then crampy feeling, then full out, doubling over pain. Sometimes I can't even walk to the bathroom. I'm not actually having D but definitely related to bm's and there is a bit of bleeding sometimes. A few years back I was having bleeding and similar (not as bad) problems and I went to a GI doc who did the c-oscopy and said I had inflammatory bowel and diverticulosis. No treatment, just encouraged more fiber. I never thought another thing about it and ignored the issue ever since (because he seemed to ignore it). NOW! OWE!! I have an appointment in March with a new gastro at the Cleveland Clinic to check into things. I like the new rheumy who is also with the Cleveland Clinic . . . so they will be able to share my file. I may also get a PCP there too. Much less hassle than trying to get records from one doc to the other. They just pull everything up on the computer. Anyway, I'll let you know what I find out. From what I'm reading, the inflammation can be an autoimmune thing and can be associated with lupus, ulcerative colitis or crohns. . . . ewwwwww to each one!!

I'm watching this topic for more info from the others!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 2/3/2008 2:43 PM (GMT -7)   
Hi Lynnwood,
    I hope you find the culprit soon and get some relief. When was your last colonoscopy done? Keep us updated and take care.
                                                        Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 2/3/2008 2:55 PM (GMT -7)   
This only occurs immediately after a meal (about 45 minutes) - and it's like my insides find something they don't like in the meal - so they discard it totally within about 30 minutes. Then I'm fine the rest of the day, or till the next meal it decides to treat this way.

I've never had a colonoscopy -- I don't think the regular ones start till 55, do they? The only other time I had anything like this was in the early 80's, when it turned out I had an ulcer, and it didn't involve cramps like this.

Wouldn't most of these diseases have bad reactions to every meal? What I have seems more random, like breakfast one day, dinner the next, lunch the 3rd...for about a week then dies down for a couple of weeks (or a few months last time).

Thanks for everyones comments and suggestions...I was mostly just wondering if you guys thought it was part of the lupus package...

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/3/2008 3:19 PM (GMT -7)   
Hi Lynnwood, your symptoms sound a lot like mine before I was dx with gluten sensitivity in addition to finding out lupus attacks my GI tract (intestines in particular). Imuran has helped me immensely along with the gluten free diet that I will have to follow for the rest of my life. But as I mentioned in the other post, when I am headed for a flare I get rumbling intestines, like you I can literally "feel" it as it moves through. I also cannot eat a lot of fruits and veggies, it makes me cramp up.

Before both of my dx's the mornings were the worst time for me, there were many many times I had to turn around and go back home or stop at the store to use the restroom, sometimes I didn't make it and then had to head back home to clean up. This happened every morning and I never eat breakfast. Sometimes it would bother me right after eating lunch or dinner but not always. it was all very weird.

Check out this website: www.celiac.com

I hope you get some answers soon. I can't remember who your rheumy is in Atlanta but I would definitely mention to him/her. I know I am probably forgetting to tell you something so feel free to ask more questions. Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Blubryprncss
New Member


Date Joined Jan 2008
Total Posts : 14
   Posted 2/3/2008 3:23 PM (GMT -7)   

Hi Lynnwood,

Sorry to hear that you are having trouble. I can't say I am having the same issue now but, after I had my gallbladder removed I had the same issue. I also wanted to let you know about Habba Syndrome it is something you might want to look into. I don't know if it is related to lupus or not.

Blubry


diagnosed rheumatiod arthritis, raynauds, MCTD 2002, lupus 2007
 


katy_33
Regular Member


Date Joined Jan 2008
Total Posts : 147
   Posted 2/3/2008 3:35 PM (GMT -7)   
Hi Lynnwood,
I dont have much knowlegde about lupus ,but stomach spasms are tricky ,if you describe them to your family physician he/she can recommend some med to prevent it ,as some ppl are prone to spasms/cramps and some are not.The C-scopy can be done anytime even if you are under 50 if deemed fit by your doc,so dont worry.Don;t ignore it and many medicines are out there just for spasms which can be alleviated by stress.

hope this helps .
katy
Happiness is not the absence of problems; but the ability to deal with them." Jack Brown


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 2/3/2008 10:19 PM (GMT -7)   
Hi Lynnwood! I can relate to the symptoms you describe because I notice similar symptoms, on and off, in myself. My rhuemy questions whether or not I have ulcerative colitis or IBS and has scheduled a colonoscopy for me. She says that many of my lupus symptoms can be the beginnings of ulcerative colitis so, yes, I would think what you describe could well be related to lupus.

I'll let you know what I find out.
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/4/2008 5:24 AM (GMT -7)   
Lynnwood,
   Routine colonoscopy's start at age 50 but, if someone has a change in bowel habits, chronic diarrhea, unexplained abdominal pain, or blood in stools they will do them at a much younger age. The doctors in our office have done them on teenagers but, that is rare.
                                                        Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

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