Lynnwood, Co-Moderator: Lupus Forum
Dx Lupus since '00, new Dr wants to Dx Fibro instead....SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Post Edited (Lynnwood) : 2/3/2008 2:29:08 PM (GMT-7)
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Well I don't have dry mouth but my eyes do feel dry at times.....can you have just dry eyes with sj, or do you have both dry mouth and eyes?
I've only been recently dx with sjogren's, but I realize in hindsight that I've had dry eye and dry mouth, in particular, problems for a number of years. It's just that prior to the past year or so, the eye problems in particular were very transient. The dry eyes might last a day or two, a week maximum, and then it would even out. I stopped wearing contact lenses last year--eyes were too irritated to continue with the contacts. I chalked up the dry mouth to allergies and/or anxiety issues? Both problem got significantly worse in the past 6 months. My eyes are routinely sore, itchy, and I wake up every morning with mucous in them. Often I have a filmy lense over them, which I think is probably my eyes making excessive mucous. My mouth feels like it has cotton in it most of the time, but especially in the morning. I have to have something to drink all of the time. I cannot talk without having liquid; I cannot eat without having liquid. I often choke, and I also have trouble swallowing at times (food sticks in my throat). When i research this, sjogren's comes up every single time. Oh, I also have arthritis, non-erosive, and a positive rf, both of which are also consistent with a sjogren's dx. I guess my point is that the symptoms of this disease are so insidious that it took several years for me, and my rheumy, to actually put it together. I still need diagnostic testing done, probably from my opthamologist, but I'm pretty sure I have sjogren's. I never mentioned the sx to my rheumy before because it seemed like they were such mild sx compared to my arthritis sx. Unfortunately, it was probably a piece of the puzzle that my rheumy needed a long time ago. Definitely mention your sx to your doctor; let him or her put the puzzle together. That's what you're paying them for anyway.
I have worn contacts for 35 years now and I have found my eyes to be drier the past few years. I can still wear my contacts but not as long as I could before. Have you changed what type of solution you use? I believe I am developing sjogren's and perhaps you are too. I would consult an opthamologist just to be sure. The last time my eyes felt the way you describe I had pink eye.
Post Edited (canuckgirl) : 2/4/2008 7:12:34 PM (GMT-7)