contact lenses?....

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KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/3/2008 1:42 PM (GMT -7)   
Hi. I have been having problems with my contact lenses lately. My eyes start to hurt and  trun red  when I put them on. It's like I'm alergic to them, never had this problem before.
 
Anyone?

Lynnwood
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Date Joined May 2005
Total Posts : 7019
   Posted 2/3/2008 1:52 PM (GMT -7)   
I can't remember if you have been dx w/lupus or not, but there is an illness, called "Sjogren's Syndrome" (or Sicca Syndrome) that often accompanies lupus & some other connective tissue diseases. It's initial symptoms often include dry eyes and dry mouth.

I would definitely tell your rheumy that your eyes have been having this problem, or your ophthalmologist (not optometrist) if that's easier. Either of them should be able to dx Sjogrens if that is the case.

Some people (like me :-) ) need only OTC treatments - Eyes Natural II and GenTeal Eye Gel are eye lubricants that my rheumy suggested, and they work quite well.

I know there are others here who have contacts, (I don't), hopefully they will come along and comment as to whether they are still able to wear them or not. I suspect that as with the rest of lupus, "your mileage my vary".

Cheers,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


Post Edited (Lynnwood) : 2/3/2008 2:29:08 PM (GMT-7)


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/3/2008 1:58 PM (GMT -7)   
Well, I really don't have dry eyes or mouth, my eyes just turn red and get inflammation when I wear my contacts now. Very weird.

p.s. what does "your mileage may vary" mean?

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/3/2008 2:06 PM (GMT -7)   
Hi KaAl,
    I tried to wear contacts before I ever thought I had Sjogren's or was told I did. I wasn't able to wear them very long due to redness and pain. I hope you find out whats going on soon and get some relief. Keep us updated and take care.
                                                            Babs
   
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


BumbleBee1
Regular Member


Date Joined Oct 2005
Total Posts : 130
   Posted 2/3/2008 2:18 PM (GMT -7)   
Hello

"Sicca" syndrome ( dry eyes and mouth ) is also associated with lupus. There's an eye test called " Shirmer's" which easily shows how dry the eyes are. Other tests can indicate Sjogren's and the presences of anti -Ro antibodies is significant for a lupus diagnosis and also a Sjogren's diagnosis, especially if the anti La antibodies are also present. It would be a good idea to see an ophthalmologist or an optometrist if that isn't possible.

Bee

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/3/2008 5:38 PM (GMT -7)   
KaAl

When we start getting dry eyes/mouth . . . we do not even realize it. It seems "normal" to us and we may have some stinging or feeling of grit in the eye, stinging etc. So many of these problems come on very slowly and there are no big bells or whistles like with a heart attack.

(mileage may very . . . means each of us is different and will be affected differently, so what is being said may or many not apply to you)

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


FW
Regular Member


Date Joined May 2007
Total Posts : 477
   Posted 2/3/2008 9:54 PM (GMT -7)   
I wore contacts (the old fashioned hard ones) from age 11 until about 18 months ago (age 47). At the time I started having a lot of problems like you are describing. I was diagnosed with sjogrens and had to stop wearing the contacts.
Take care,
Fran

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Prednisone.


Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 2/3/2008 10:04 PM (GMT -7)   
KaAl,

I was going to point out exactly what Rosie said. In my case, it was a slow progression to the dry mouth and about a year later, I started having trouble with my contacts. Just like you, my eyes seem inflamed and get reddish. This has made it impossible to wear my contacts now. My opthamologist recommended "Optive" for my dry eyes and this has been great! He also said to be careful about having the heater in my car "blow" in my face. Keeping the air flow down by my feet has been very helpful. (Lynnwood mentioned GenTeal Eye Gel and I tried that, too. It worked well but, for me, the Optive was more soothing - hence "the mileage may vary" comment.)

All my best to you!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/4/2008 10:25 AM (GMT -7)   

Well I don't have dry mouth but my eyes do feel dry at times.....can you have just dry eyes with sj, or do you have both dry mouth and eyes?

 

Thanks


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/4/2008 11:21 AM (GMT -7)   
You can have either one alone, also you can have other symptoms. Those just happen to be the 2 symptoms most often noticed before diagnosis.

It's best if you check with your doctor, but the OTC ideas may help in the meantime.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



elcamino
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Date Joined Sep 2005
Total Posts : 1744
   Posted 2/4/2008 11:34 AM (GMT -7)   

I've only been recently dx with sjogren's, but I realize in hindsight that I've had dry eye and dry mouth, in particular, problems for a number of years.  It's just that prior to the past year or so, the eye problems in particular were very transient.  The dry eyes might last a day or two, a week maximum, and then it would even out.  I stopped wearing contact lenses last year--eyes were too irritated to continue with the contacts.  I chalked up the dry mouth to allergies and/or anxiety issues?    Both problem got significantly worse in the past 6 months.  My eyes are routinely sore, itchy, and I wake up every morning with mucous in them.  Often I have a filmy lense over them, which I think is probably my eyes making excessive mucous.  My mouth feels like it has cotton in it most of the time, but especially in the morning.  I have to have something to drink all of the time.  I cannot talk without having liquid; I cannot eat without having liquid.  I often choke, and I also have trouble swallowing at times (food sticks in my throat).  When i research this, sjogren's comes up every single time.  Oh, I also have arthritis, non-erosive, and a positive rf, both of which are also consistent with a sjogren's dx.  I guess my point is that the symptoms of this disease are so insidious that it took several years for me, and my rheumy, to actually put it together.  I still need diagnostic testing done, probably from my opthamologist, but I'm pretty sure I have sjogren's.  I never mentioned the sx to my rheumy before because it seemed like they were such mild sx compared to my arthritis sx.  Unfortunately, it was probably a piece of the puzzle that my rheumy needed a long time ago.  Definitely mention your sx to your doctor; let him or her put the puzzle together.  That's what you're paying them for anyway.

 

Elcamino
Current dx: Rheumatoid Arthritis
Suspected dx: UCTD/Early Lupus
Current Meds: Enbrel, Plaquenil, Methotrexate, nexium, tramadol, nasonex,Tylenol PM
Past Meds: Relafen, Vioxx, Mobic, Voltaren, Sulfasalazine, Entocort, Prednisone, Humira, Reglan, zyrtec, zegerid, aciphex


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 2/4/2008 4:10 PM (GMT -7)   

I have worn contacts for 35 years now and I have found my eyes to be drier the past few years. I can still wear my contacts but not as long as I could before. Have you changed what type of solution you use? I believe I am developing sjogren's and perhaps you are too. I would consult an opthamologist just to be sure. The last time my eyes felt the way you describe I had pink eye.

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 2/4/2008 6:50 PM (GMT -7)   
My dry eye came on literally over night I wore my contacts for likely 350 days a year for years. Now I can not wear them for even 5 minutes this all came about within 6 days from wearing them everyday to not being able to wear them at all. I went to the opthamologist thinking I needed new contacts she did tests and I have very dry eye. I had no idea she said it was likely progressive but I didn't notice until it became bad enough that it bothered my contacts. You mention that you don't have dry mouth but if memory serves me correct you posted a while ago about swallowing issue's and mucous well that is likely caused by dry mouth.
 
And no you don't have to have dry mouth and dry eye together there is a woman in my sjogrens group who has had it for 31 years and still does not have dry mouth at all.


UCTD and sjogrens ( terrible dry mouth) Plaquenil 400 mg with 150mg of diclofenac as needed, all biotene products and refresh liquigel eye drops and now LDN therapy which is a life saver

Post Edited (canuckgirl) : 2/4/2008 7:12:34 PM (GMT-7)


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/4/2008 8:33 PM (GMT -7)   
Find out if the lenses are made of silicone because it can cause problems. Also, some of the lense solutions can cause eye irritation. I hope you find the solution soon.

Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/5/2008 2:59 PM (GMT -7)   
I do believe that I have dry eye, just last night it felt like I couldn't even blink because my right eye was so dry. But, my mouth is fine, not dry at all.

redrose-what's wrong with silicone? Does it affect people with Lupus?

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/5/2008 3:28 PM (GMT -7)   
Silicone can cause an immune reaction in those with AI diseases as per my eye doctor. There is no study to prove it, but the anecdotal evidence from eye doctors at national conventions apparently bears this theory out. My eye doctor said the contact companies avoid doing a comprehensive study and stack the studies they do have done so that they can sell the more expensive silicone based lenses and claim it doesn't affect those with AI diseases. The problem is that it does affect a large group of those with AI diseases like lupus. I personally had a very bad reaction to silicone contacts- my eyes dried out and got really red and painful in less than 2 hours.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/6/2008 5:24 PM (GMT -7)   
Hey red, my contacts are not silicone it's called something like trilicone or something I can't remember exactly. Is that something different than silicone?
Have to ask my eye doc.

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/6/2008 6:11 PM (GMT -7)   
Trilicone is 3 types of silicone. So maybe you are reacting to the contacts.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


KaAl
Regular Member


Date Joined Sep 2007
Total Posts : 151
   Posted 2/7/2008 7:03 PM (GMT -7)   
I thought the contact case read trilicone, but I looked at it again this morning and it actually reads tefilcon (some sort or plastic).

P.S. red, I looked had looked up trilicone and found no information on it. Where did you get that it is 3 plastics? I don't even think it's an actual word?
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