What kind of Doctors do you have?

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2008 8:12 AM (GMT -7)   
Alot of you have asked me if I've seen such and such a doctor. Most of them I have never even thought of needing. So I was wondering how many doctors do you have and for is it all related to A/I? Maybe my eyes need to be opened a little bit as to what all is or could be involved.
 
thanks in advance
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 2/4/2008 8:24 AM (GMT -7)   
Hi Carol,
 
I have a pile of specialists. But never needed them until I had a problem that required me to see them!  So my pcp and rheumy "hooked me up" with referals whenever an issue came about.  Here's my ever-growing list...
 
rheumatologist, Neurologist, dermatologist, ophthamologist, cardiologist, Internal medicine specialist, Gastrointerologist, psychiatrist, physiotherapist, immunologist (waiting to see him - regarding allergies), nutritionist.
 
I think that's it. Yes, they're all related to my lupus. 
 
Unless you have problems that require a specialist, I wouldn't go looking for any! If the US system is like the Canadian one, you have to get a referral from an existing doctor before any specialist will book an appointment.  They want to know why you need them. 
 
How are you doing today?
 
Ginny 
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2008 8:40 AM (GMT -7)   
Og Ginny, bless your heart! When do you have time for anything else? Trust me I won't go looking for a doctor I don't need. I don't even want to go to the ones I do need. I guess I was under the impression that a pcp and rheumy maybe a derm and a optomologist. would be able to deal with everything. Of course because of my lungs I have a pulm. but I have had that for years.
Thanks for sharing your list with me When I find myself feeling down I always think about your phil. 4:11-13. It makes me try harder.
love ya
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/4/2008 9:40 AM (GMT -7)   
Hahahaha, well.... My doctor appointments have become a part time job for me.  I often don't have any time to "enjoy" things.  I'm either working, or dealing with a doctor, or medical related appointment.  January was a gong show.  15 appointments to go to.  I already have 5 so far in the first week of this month.  Stuff like blood tests, seeing my physiotherapist for my arthritis, getting travel letters from my doctor, follow up appointments for tests I had done in January.  Garbage like that.  It's constant.  The blood test stuff is happening twice a week right now.  I just can't keep my blood at a thin enough level.  It wants to be thick and sticky.  So I have to test it twice a week to avoid having another stroke!!!  all the other appointments are from the continual problems I'm having from that medication allergy 8 months ago.  The issues don't want to go away.  I'm like you.  I don't want to see the doctors I already have either.  I'm feeling very "done" by all this.  Sound familiar??? LOL. 
 
I keep leaning on that scripture as well Carol.  It's hard to be content when you're in a constant state of upheaval, isn't it?  Another scripture passage I really like is 2 Corinthians 4:8-9.  It's perfect for what we go through too!  I'm praying for you Carol.  Thanks for being such a good friend to me.
 
(((((hugs)))))
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/4/2008 10:16 AM (GMT -7)   
Hi Carol...

How goes it today? How is the weather your way? Ohio is supposed to hit a balmy 58 tomorrow!

As for docs... Here's my list:

rheumatologist, neurologist, ophthalmologist, urologist, gastrointerologist, and my primary care. Oh! and let's not forget the phlebotomist...I almost feel like we are related I see her so much! lol

The rheumy, neurologist, and urologist are all new since being diagnosed. I did see the opthalmologist before...but only when I felt I needed to. Now I have to go every six months because of the lupus meds.

I'm about tired of all the "ologists" I have.

~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 2/4/2008 11:39 AM (GMT -7)   

My list:

General Practitioner, Rheumatologist, Gastroenterologist, Neurologist, OB/GYN, Nephrologist, Endocrinoligist, Dermatologist, and Allergist.  And then my wonderful and oh so godly dentist, and my optometrist.. and then theres my favorite three ER physicians.   Whew... looking at it on paper, thats a lot.  I'll bet my insurance company hates to see my name in the stack... LOL! smurf

 

 


 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, suspected Lupus, Pancreatitis Dec. 2005
 
Meds:  Medrol injections; Plaquenil 400mg, Cellcept, Vicodin, Benadryl, Zyrtec


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2008 12:36 PM (GMT -7)   

Hey Dakata and victoria, well the weather here looks pretty nice but I ain't going out to find out. (is it spring yet)?

I'm sorry you all have so many doctors to see. I had no idea. Heck half of them I don't even know what they do. I have to admit my stack is getting larger as well.

I don't want much I'm just looking for a maricle so I eon't have to meet any more doctors.

thanks for sharing ladies. It must completely drive you out of your mind. If this is what things are going to be like for me I think I'll have to straighten out my filing cabinet and put all the doctors in alphebetical order.

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/4/2008 1:55 PM (GMT -7)   
My nephrologist is a precious angel who also acts as my primary care; she also treats my lupus although we do ocassionaly consult a rheumatologist. I have had to see a neurologist because of the Neuropsychiatric Lupus, other than that I see a cardiologist and a gynecologist. My nephrologist has been so good about handling things unless it is drastic and requires a specialist. Judy

curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 2/4/2008 4:02 PM (GMT -7)   
I see my general practioner, rheumatologist, nephrologist, opthamologist, gastroenterologist, and therapist. I was referred for all except my GP.
Sandy
DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/4/2008 5:14 PM (GMT -7)   
Over the last 5 years, I've seen or am seeing:

Internal medicine doc, dermatologist, ortho-hands, ortho-hips, spine/pain management doc, opthomologist, rheumatologist, and gastroenterologist.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/4/2008 6:00 PM (GMT -7)   
Good topic Carol,
   My list: Internal medicine, GI doc, Cardiologist, Opthomologist, Rheumatologist, Neurologist, Pulmonary Specialist and Pcp when needed.
                                                      Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/4/2008 7:38 PM (GMT -7)   

Boy you all are a real eye opener for me. I had no idea that there were so many doctors involved. redface speaking of which I have a doctor appt in the morning so I guess I better go to bed soon. I need to throw some clothes in the dryer. The home health care came out and put in a hand held shower sprayer and a chair in the tub. Everything has been approved now all I need is somone to show up and help me out around  here. Hopfully somone will come this week.

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/4/2008 8:20 PM (GMT -7)   
Hi Carol:

You know my list is gonna be a long one but here goes it anyway:

I see Internal Medicine, rheumatologist, cardiologist, gastrointerologist, ob/gyn oncologist, hematologist/oncologist, pulmonologist, urologist, dermatologist, endocrinologist, dermatologist, anesthesiologist (for pain), general surgeon, my internal medicine doc handles all my day to day things, and determines when I need to see one of my various "ologist"

I also get blood tests drawn bi weekly and always seem to be at the hospital doing something medically related. It's a full time job just seeing my doctors. I normally see at least one of my doctors every week.

Thanks for bringing this up it helps to know that others have as many doctors as I do. Hoping that we all can see less of our "ologist's" this year. Wishing you all well and soft warm hugs.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 2/5/2008 3:46 AM (GMT -7)   
I have a family Dr. here in Russellville, Ark, my Rhuemmy is in Tulsa, Oklahoma.... and my eye Dr...is in Clarksville, Arkansas....they are my main ones....

phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 2/5/2008 4:41 AM (GMT -7)   
Well, all I can say is.....DITTO

i think my number is....SIX
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, AND CREAMS
Enjoy what you can today and leave the rest for another day.
 
Frank
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 2/5/2008 6:02 AM (GMT -7)   
Hi Carol.  I see an Internist, Rheumatologist, Psychiatrist, Neurologist, Pulmonologist, ENT, Gyn, Gastroenterologist and Ophthalmologist.  You know pharmaceutical reps hold dinners for doctors to learn about their wares.  I think we should crash so we can meet more doctors.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/6/2008 8:58 AM (GMT -7)   
Carol,

No matter how many doctors or ologists you go to, I believe we should each have one doctor (our primary care or PCP) who refers us to the ologists and gets reports from them. When I go to my PCP, she has copies of any labs that have been run by other docs, reports of my visits to them, new prescriptions, etc. That way at least one doctor has the whole picture of what's going on with me. The problem is finding just the right PCP, which I know has been a struggle for you. I've sure been thinking of you.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin

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