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Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/4/2008 11:45 AM (GMT -7)   
Are you guys tired of me yet?

So - I did my pred drop last Friday - down to 9 mg.
Things seemed to go ok.

Saturday night, my daughter had a school dance and then went to her friend's house. She didn't get home until 2:30 am. Of course, I stayed up and waited on her. (She doesn't usually go out like that...but it was just a fun night for her)

Got up about 8:30 Sunday morning. So - that was about six hours of sleep. After church, took about a three hour nap. Then, went to bed at 10:30 and got up at 6:30 this morning.

My butt is absolutely dragging today! Not sure if it is because of the chip-chopped sleep or because of the pred drop.

Thoughts?

~Kim
SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/4/2008 6:10 PM (GMT -7)   
Kim, I'm guessing your fatigue could be caused by both the broken sleep and the drop in prednisone. Try to be patient with your prednisone taper. I know a lot of us here have found that we have to do a prednisone taper really slowly so our bodies and adrenal glands can adjust.

It's really important that you try to get lots of rest since you are so tired so that you can hopefully get some energy back.

PS: we aren't tired of you - we're glad to have you here. It's great to be able to come to a place like this and be among people who really truly understand what it is like to live with this disease everyday.

Take care and get some rest :)
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

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Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 2/4/2008 8:32 PM (GMT -7)   
Hippimom is absolutely right! The prednisone drop needs to be done VERY slowly. Trying to get some extra rest will help some, also.

Most important, we could never get tired of you! You are too wonderful!

(PS - My rhuemy has me taper REAL slow. For the first two weeks she has me go back and forth between 10 mg and 9 mg each day. Then do 9 mg for a week. Then do 9 mg and 8 mg every other day for two weeks. Then 8 mg for a week. See the pattern?)

Big smiles for you!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/4/2008 9:23 PM (GMT -7)   
Ya, probably a bit of both Dakota.  And NO we're not tired of you!!!! Heehee.. You're funny.  Like the others said, take this taper SUPER SLOW!!!!  We're watching you!!! tongue
 
Ginny
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

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