joint pain.....

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Regular Member

Date Joined Sep 2007
Total Posts : 151
   Posted 2/4/2008 4:26 PM (GMT -6)   
Can you guys tell me what your joint pain is like? Do you have inflammation and joint pain, or just joint pain? Does it hurt when you press on your joints or do you just have a pain/ache that comes from deep inside?
Share please :-)   Thanks!

Regular Member

Date Joined May 2007
Total Posts : 474
   Posted 2/4/2008 5:09 PM (GMT -6)   
My joints hurt from deep inside. And I can get relief by forcing the joint backwards slightly. For example, when my knees are bothering me, I extend my leg and my DH will push down on the kneecap while pulling up on my ankle. The immediate relief is astounding. Of course, it comes right back, but for a few seconds it is gone! Strange but true! I often say that I need a chamber to squeeze all my joints at the same time (like they use on divers). That would be heaven!
Take care,

Dx: Lupus, sjogren's, celiac, severe allergies.
Daily Meds: Plaquenil, Zyrtec. Prilosec, Nasacort, Prozac.
As Needed Meds: Epinephrine, Benadryl, Proventil, Xopenex, Tylenal, Prednisone.

Veteran Member

Date Joined Oct 2004
Total Posts : 2244
   Posted 2/4/2008 6:07 PM (GMT -6)   
It HURTS tongue , no really..... I can't see the inflammation in my joints but my rheumy can feel it. When my rheumy examines my joints they are a little tender but not when I touch them. It's a pain that is sometimes constant and like Fran it feels deep inside.

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

Veteran Member

Date Joined Dec 2004
Total Posts : 8198
   Posted 2/4/2008 8:04 PM (GMT -6)   

 My joints are tender to the touch. I always have some swelling around my knees. The deep pain is better now with the Arava and low dose pred but, they are still tender to the touch.


Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 2/4/2008 8:31 PM (GMT -6)   
Hmmm. I'm no sure how to describe my joint pain - it hurts pretty bad all the time and then it is also tender to the touch. Sometimes when I'm in a flare or the pain and inflammation is really bad, I have redness and swelling too, especially in my hands. My rheumy can always find the painful joints on examination - I'm not sure how he does it, but he can tell by feeling them which are the worst.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 2/4/2008 10:22 PM (GMT -6)   
My joints hurt deep inside. I can usually see the inflammation, too. My rhuemy can feel the inflammation at the times it is not visible to me. Like last week, I had just had my full dose mtx injection, taken Relafen, plaquenil, and 5mg prednisone for the past month and she could still feel the inflammation. Hence the med changes.

As I look back, I wonder if I should have "lost it" sooner to get to a more aggressive treatment? I had been on the meds described for about a year and a half. The only time I had relief was if I was on at least 5 mg of prednisone and then that stopped working, too.

Do you think we should all expect more aggressiveness in our treatment plans?
Audrey Ann
Lupus and RA and LOTS of Medications!


Barbara Lee
Veteran Member

Date Joined Sep 2003
Total Posts : 2889
   Posted 2/4/2008 10:28 PM (GMT -6)   
Hi KaAl:

My joints are tender to the touch and my Rheumy can feel the inflammation when touching the joint. I sometimes has swelling in my ankles but the rest of my joints there isn't any swelling. I have pain daily in all my joints and I'm talking like a 5 out of 10 to start the day and end the day in a 8 or 9 out of 10.

Hope this helps you. I'm sorry that you're having to go through the DX limbo.

Take care,
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.

Regular Member

Date Joined Oct 2007
Total Posts : 184
   Posted 2/5/2008 5:41 AM (GMT -6)   
My joint pain is tender to touch and deep...
sometimes when my grandkids hold my hand, like to cross the street..... it hurts...
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