big blow - my doctor is leaving....

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Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 2/4/2008 4:46 PM (GMT -7)   
I nearly had a coronary this afternoon when I saw my pcp for an appointment.  Okay, not a coronary, but I burst into tears.... My doctor, who is the hub of my care, is leaving at the beginning of May.  She's moving to another province.  This doctor is the best doctor I've ever had.  She has saved my life on numerous occassions.  She knows me so well, and knows what needs to be done for me.  I'm devestated.  I've been crying all afternoon. 
 
They do plan on hiring another doctor, but who knows what he/she will be like?  They won't know my complex history or the way my body works.  I feel like I've been kicked in the gut.  They don't know when the doctor will be hired either.  It has to be a very experienced doctor who can look after all of her patients.  She has a lot of chronically ill patients who will need a lot of extra care and attention.  This new doctor has HUGE shoes to fill.
 
I never thought I'd be facing this.  She's not old.  I thought I'd have her as my doctor for a very long time.  I guess I was naive.
 
One thing after another......Just needed to vent.  Thanks guys....
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/4/2008 5:09 PM (GMT -7)   
OH NO!!!

Oh (((((((((Ginny)))))))) . . . I'm SOooooo sorry sis!!! What a blow!! I don't blame you for being so upset. I know how intricate your care can be and I truly understand your concern.

I'm hoping, since she is SO dedicated, that she will remain available, by phone, for consults with the new doctor. *sighhhhh* Sorry Ginny.

Sending you a whole box of tissue and a whole pot of tea sis.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Dakota0917
Regular Member


Date Joined Oct 2007
Total Posts : 100
   Posted 2/4/2008 5:35 PM (GMT -7)   

Ginny...........

I am so, so sorry... sad

You have to be going through so many emotions right now.
Please, please, please take extra care of yourself to try to keep things in check.

Also sending tight hugs your way...

~Kim


SLE: 07/07, Irritable Bowel Syndrome, migraines
400 mg. plaquenil,  10 mg. prednisone, 2400 mg. ibuprofin, 15 mg. methotrexate, folic acid, asacol, caltrate-D, wellbutrin, paxil, lybrel


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/4/2008 5:48 PM (GMT -7)   
(((Ginny))),
   Bless your heart!! It's so hard to find the right doctor and then to loose them is devastating. I hope and pray this new doctor will be just as caring and involved in your wellbeing as the other one. Hang in there and try to relax and wait and see what happens with the new one. Keep us updated and take care. You are in my thoughts and prayers.
                                                      Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/4/2008 6:25 PM (GMT -7)   
Oh Ginny, I really feel for you - I'm so sorry you are losing such a wonderful doctor. I went through the same thing last spring with my pcp and I was just sick about it - she was exactly how you descrbed your pcp and she was the one who was really instrumental in helping me get a diagnosis.

I pray the new doc will be great too - it's so hard to find docs like your pcp though - the ones who really care and see the big picture and know your case inside and out. If you don't care for the new doc do you have other options?

I don't blame you for being so upset - a great doc is priceless, especially when you have multiple health issues. Hang in there and take extra good care of yourself. I'm sending you love, gentle hugs and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



canuckgirl
Regular Member


Date Joined Jan 2007
Total Posts : 146
   Posted 2/4/2008 7:09 PM (GMT -7)   
Oh Ginny I know how you feel we have such a shortage of Doctor's here in Saskatchewan it is not even funny. We have one Rheumy in Regina for all of souther Saskatchewan so if you don't like him you are out of luck or you drive at min 2.5 hours one way. Thank god I only see my rheumy once a year as I don't really care for him. Let me guess she is going to Ontario they have all the good Doctors
UCTD and sjogrens ( terrible dry mouth) Plaquenil 400 mg with 150mg of diclofenac as needed, all biotene products and refresh liquigel eye drops and now LDN therapy which is a life saver


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/4/2008 8:10 PM (GMT -7)   
I know exactly how you feel -- I am still struggling to accept that my wonderful rheumy of 7 years (my entire lupus experiance) is gone.

Esp. since he was the most concerned doctor - a genuinely caring and healing individual - that I have ever met. He met up with serious health issues of his own, and could no longer practice. I, too, expected him to be around until he cured me!!!

This was in August, and I've had 2 visits w/another rheumy and ... well, I miss my doctor!

Hang in there, and we'll all hope for the best for you and all of us going thru these frightening changes.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 2/4/2008 8:24 PM (GMT -7)   
Hi Ginny:

Oh sweetie I'm so sorry that you're loosing you doctor. I don't blame you for being so upset. It's so hard to loose a good doctor that you have a good relationship with. I truly know how you feel, being a military dependent, I'm always getting a new doctor every three years. I truly like and trust my current doctor but I know I'll be loosing her in the next 1 1/2. I'm not looking forward to her leaving at all.

Try to do as Babs suggested, try to relax and know that we're praying that you get a wonderful replacement doctor. Wishing you the best Ginny, I'll be praying for you.

Love,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/4/2008 9:20 PM (GMT -7)   
Thank you everyone for your wonderful support and encouragement.  I knew you guys would know what I was feeling.  So many of us have had to go through this sort of thing.
 
Yes, Canuckgirl, she's going to Ontario......NO comment. LOL.
 
I do have an option here.  Actually, it's a bit of an answer to prayer for so many people in Calgary. There is a brand spankin' new clinic opening up. It's going to cater to chronically ill patients ONLY!  No healthy people who only see their doc once a year for a pap smear....:)
 
This clinic is designed specifically for ME!!!  I'm really quite amazed that it just came up on the news a couple of days ago.  The only thing is that it's clear on the other side of the city.  It's an hour's drive away, on a good day, from where I live.  I already drive myself into a stooper with all my doctor appointments.  Soooooo, hubby and I are going to move to that end of the city.  All my doctors are there anyway.  So is the hospital that has all my records.  I'm so sick and tired of all the driving I'm doing.  Especially with 15 appointments a month!  It's stupid.  So moving is a good idea. 
 
Here's a terrible factoid about Calgary.... There are 200,000 people looking for a family doctor!  That's how the shortage is here for family docs.  Isn't that awful.....
 
So I"m feeling a little more encouraged tonight. Just knowing that I will eventually have a clinic all set up with all the specialists right there!  They'll know exactly what I need and be able to offer me additional services I don't get now.  God is looking after me!  I'm calling the clinic tomorrow to get an appointment. 
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/5/2008 5:06 AM (GMT -7)   
Wow Ginny . . . all that in just a day!!! What a huge decision . . . but I see where it would be very advantageous for you. Does this put your hubby way far from work??? How will it affect your photography business?? Oh dear . . . I'm worrying for you!!!

Glad there is the hope of a solution here.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/5/2008 8:32 AM (GMT -7)   
How amazing! I'm so glad you get a chronic illness clinic - that sounds like a real treat. And the timing is pretty neat, huh?

I know moving is no fun, but accessible health care is a big deal when we're too sick to travel often, isn't it? Take the move easy and gentle!

Hugs,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/5/2008 12:40 PM (GMT -7)   
No Ginny God's not going to throw you to the wolves. But I do know how scarey just the thought of loosing your favorite doctor could be. If couldn't care less about most of my doctors but if I lost my PCP I would be crying too. I would probably be grabing ahold of her leg as she's dragging me out the door with her. It takes a long time to build up a relationship with trust and honesty. I just pray this new clinic will be the ticket you need to get even better care. Some times things happen for a reason.
I'm praying this will be a good experience for ya
love ya
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/5/2008 2:13 PM (GMT -7)   
Rosie, the move won't affect my business at all.  In fact, now this is funny, most of my wedding clients for this year are in this quadrant of the city I'm moving to!  They'll be thrilled because they might not have to drive from here to eternity to get their pictures!  I currently live in the extreme south east end of the city, and we need to move the extreme north west end.  So it's a big move.  It will be about the same distance for hubby to get to work.  He works downtown, so the commute on the train is about the same.
 
Lynnwood, I totally agree with you!  It is soooo important to our mental and physical well being to be close to our doctors.  It's not always possible, but if you can make it work like that, it's wonderful.  I'm absolutely DONE with the excessive distances I'm doing all the time.  We'll take the move real slow and gentle, and during my less busy time of year for sure!  Thanks for the hugs.  I need them!
 
Carol, hahaha, I know God won't throw me to the wolves.  That's funny though.  Sometimes I wonder if I'm already their play toy, LOL.  I'm still feeling the shock of finding out that she's leaving.  I have had her for my pcp for 7 years now.  Almost the entire time of my diagnosis. 
 
 
So here's the scoop on that new chronic illness clinic.  I MUST have a north west address to be a patient.  They only cater to the north west part of the city.  (Calgary is divided into quadrants). So I will need to have an actual address before they accept me.  The other clincher is that if there is a replacement doctor at my current clinic, I have to stay with them.  No matter how much I don't want to.  This new clinic will only take people who have no other options.  I'm hooped.  There will be a replacement doctor at my current clinic.  Just don't know who they are yet.  So the move to that end of the city is still planned.  Regardless of the clinic location, everyone is in that northwest part of the city anyway.  So the move will be handy no matter what.  PLUS, with the sale of our home, we can take a chunk of the profit and pay off all out debt!!!  We'll be debt free!  We'll still have a huge downpayment for the next home too.  It's an excellent plan.  I wish we were more excited about it.  We built this home and it's our baby.  We've only been in it for 2 years.  So this is all bitter sweet right now.  I'm getting on the internet to look at houses this afternoon.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/5/2008 7:53 PM (GMT -7)   
((( Ginny )))) I read your post the day you wrote it but couldn't think clearly enough to give you some words of encouragement..... now it looks like everything is working out just as God wants it too. I am sorry you lost your other doctor but this new clinic sounds pretty good! I know this is a HUGE step for you, but you know it will happen and go smoothly if it's meant to be. You are in my thoughts and prayers yeah
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


emmi
Veteran Member


Date Joined Apr 2005
Total Posts : 1529
   Posted 2/5/2008 9:43 PM (GMT -7)   
Ginny,

We can all feel for you whether or not we have had to go through a change in our doctors or not. As has been said, this will work out as it should. It may not be the way WE think it should, but we will adjust to situations as we should if we look for help in the "right" places.

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


curlyhair
Veteran Member


Date Joined Jan 2005
Total Posts : 659
   Posted 2/6/2008 7:49 PM (GMT -7)   

Hi Ginny,

I just read your post and I know exactly how you feel. My neph, who I absolutely loved, left a few months ago. He was also young, responsible for saving my life on more than one occasion, friendly, caring and compassionate. He moved several states away to take on his own private practice. I have also been devastated. The two nephs that are left are not good. One is so nasty you can't stand to be near them and the other one is uncaring. Hopefully whoever takes over for you is good. Also, I am glad to hear you are moving. I have to drive an hour and a half one way to see my specialists and it gets to be draining, not to mention expensive gas wise. I know god is looking out for you and I'm sure things will work out well.

Sandy


DX: Kidney Disease, (? Lupus Nephritis) 2002
DX: Raynaud's Phenomenon and Lupus (SLE & Class V Lupus Nephritis) 2005
DX: Anorexia and Hypokalemia 2006
 
meds: plaquenil, amiloride, klor-con


Kookla
Regular Member


Date Joined Mar 2005
Total Posts : 401
   Posted 2/6/2008 8:44 PM (GMT -7)   
GIN! GIRL... I am so sorry....I dont even know what to say..Actually u know I cant say crap. NOthing I say will make you feel better hon... I have been there and It feels so horrible.. So Violating.. and I felt so vulverable.. This is the truth. I am not sugar coating crap Gin... I did not read the other ladys posts.. Just speaking from e xperienece.. BUt guess what girl.... Some times CHANGE IS GOOD FOR YOU! GIN you never know.. OFCOURSE THE NEW PERSON is gonna read your file from back to front.. They will take care of you... I have faith.. You are gonna be ok hon...
PLEASE let me know how things go for you .. please??

Steph
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