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Welcome to the world of "normal labs, normal tests" oh gee, you must be depressed and menopausal.... do I sound bitter? and I am a nurse and my docs LISTENED TO ME and with a positive ANA and anticardiolipin antibodies, after 6 years I found a rheumy who looked at me, and said lupus and started plaquenil and neurontin, and feldene for the pain, and every 6 months asks me if my pain and symptoms are being managed ok and I could hug him, actually the nurse who bucks me up when I hesitate to say anything because I have lived so sick for so long and I AM TIRED!!(*&#&^#&_!_!_@#&*&*(#(@!! Speak UP! Go to that appt. with the knowledge that you are worth pain medicine, start a diary, list your tests and treatments, I used a calendar format, write down all your questions, demand answers and write them down on your diary that is open in front of you at your appt. and insist on copies of everything, I used a 3 ring binder, and the notes I took about me are echoed in this forum time after time and we are not alone. this is our life, welcome to autoimmune illness..........and even without a diagnosis, you deserve, and pay your doctors for their help. A tenet of nursing and medicine is first do no harm and pain is whatever the pt. says it is! and yes, there are alot of jerk health PROFESSIONALS!! who refuse to SEE THEIR PT because they are too darned comfortable looking at the box of "NORMAL" lab tests. I could scream when I hear about all the lupus and ms pts who live sick, I think I read that the average time to dx is 8 yrs. Hugs, and NO YOU ARE NOT CRAZY and even if you were you deserve to be seen with care! Gee, thats maybe whats missing from HealhCARE! sue
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
Good Luck and be tough! Keep us posted, and know that we wouldn't be here posting if we didn't care! and you are absolutely right, how sick to we have to get to "prove" we are really sick????? I know I was really so sick I wanted to die.... and you are not alone. Let us know how it went,