Sick with questions...

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 2/8/2008 11:58 AM (GMT -7)   
Hello everyone! Its been so long since I have been here! I haven't had a computer for a long time! But I am back...and I am sick..waaaaa.

I have a quick question before I have to go back to my bed....

I have WBC 3.7, differenitals are ok. Swollen left cervical node, very painful, pain in left side lymph nodes down to my knees, low grade temp and sheer exhaustion.

Went to the doc, not the rheumy, who said I have viral parotitis, or mumps. But.. he was guessing, and I know he was guessing. He was a first year PA. I do not have parotid gland swelling, but do have some pain in the saliva gland.

The PA, nor the doctor at the urgent care could tell me if Lupus/auto immune can cause just the left side lymph nodes to swell, or does it have to be all over?

They didn't seem concerned, told me to just wait it out, but its been 10 days now and I am feeling no better, maybe worse.

I want to call my Rheumy, but I do not have a phone right now. Yep, its winter in Montana and the financial aspect of my life is in the dumps.

Thanks for any help you can give.

Also, I have possible sjogrens, but the doctor said that if my parotid gland were infected as a by product of the sjogrens, I would have an elevated WBC, not low. Plus, I have plenty of saliva right now, but it is rather thick. Prior to this happening I was feeling good, but was having NO saliva in my mouth all night long.

Thank you again, I hope you are all doing well. I will read posts that I missed when I am able to sit up here longer.

Love and Hugs,
Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/8/2008 2:19 PM (GMT -7)   
Hi Darlene,

Sorry you are having such trouble.

Do you have insurance??? Was your question, should you contact your rheumy?

If you have been feeling bad for several days, you might want to get to a phone and give them a call. This being Friday, you probably won't be able to reach them till Monday and by then you'll really know if this has gone on too long.

The ER is not a good place to get a dx. Even the rheumy takes several visits to get a good history, do mega blood work and piece everything together.

I hope you have some medical insurance, as it sounds like you are having a lean time of it right now. If your heat isn't warm enough, the cold can make you feel worse too. Make sure you find a way to sleep warm. If you don't have electric blanket or corn bags, you can heat up a good heavy frying pan and wrap it in a towel to place under your covers and warm up the bed.

Keep us posted!

Sending you some hot tea and a hug!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 2/8/2008 3:19 PM (GMT -7)   
Hi Rosie

Thanks for the reply. I guess my question was this... can lupus cause us to have just the lymph nodes on the left side of our neck, collar bone and underarm swollen? Or would it have to be bilateral throughout the whole body.

Thank you for the advice on keeping warm, thankfully I do still have electric! But, I do not have medical insurance, and it is a big problem for me right now. I went to the doctors office where my primary was, he had left the practice at the beginning of the year, and thats where they did the bloodwork. I suppose that since my WBC count is low, it means it is not a bacterial infection.

I did put a call in to my rheumy's office, but like you said will have to wait until Monday for a reply.

Not sure if you remember, but I had clostridium difficile for a long long time. I finally got rid of that horrible thing and now its something else. Seems like thats how it goes!

THanks again Rosie

Darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/8/2008 3:47 PM (GMT -7)   
Hmmm... I don't know if lupus would cause the swollen glands just on the one side. I'm like you and would be wondering if it's related to the sjogrens or maybe something else. I think I have read that a low white blood count is a symptom of lupus but I can't remember why.

It's good to hear from you but I'm sorry that you are getting hit with one thing after another. I'm glad you called your rheumy and I hope that you can start to get some answers soon. Not knowing what is worng is really hard to deal with. Please keep us updated on how you are doing and what you find out.

(((((Hugs)))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/8/2008 5:50 PM (GMT -7)   
Monkeyme,
It is so rare to see mumps this day in time because of immunizations. Can you go to an emergency room? I realize you don't have insurance; but they can't refuse to treat you. Swollen lymph nodes for that length of time is nothing to play off. You need to see a real doctor!! Take care of yourself! God Bless You, Judy

Ginny
Veteran Member


Date Joined Feb 2003
Total Posts : 5514
   Posted 2/8/2008 7:04 PM (GMT -7)   
Hey Monkeyme,
 
Mumps are really a problem up here in Alberta right now.  Where do you live?  The immunizations we get as kids aren't lasting long enough apparently.  could be mumps.
 
But I have had swollen lymph nodes that only affect one side of my neck. We couldn't distinguish if it was the sjogren's or a lupus flare. I was treated with more prednisone, and they went away.
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/8/2008 9:35 PM (GMT -7)   
I'm really sorry Darlene, I just don't know that there is a sure answer to your questions. Lots of Lupus stuff IS bi-lateral. . . but not all. But like the others have said Sjogrens, Lupus, Mumps . . . You need Doctor House!!! LOL

I'm so sorry you are stuck with no insurance. Is there any way you can apply for medicaid??? Not sure what qualifies a person, but income is one of the criteria. Something to check into. Also, in Lupus Resources (link in my signature) there is a post about free or low cost meds. Make sure to check into that if you haven't already found a way to get help with your meds. Also, make sure to ask your doctors for samples from the office. They are usually happy to give them to patients without prescription coverage.

Keep us posted.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 2/9/2008 4:04 PM (GMT -7)   
Thank you wonderful people so much for your answers.
 
On Monday I am going to call my rheumy again since I didn't hear back. My gland is still swollen, and very painful. My fever has come down though.
 
When they told me "mumps" or a form of mumps, I asked them why my face wasn't swollen. She said it didn't always have to be.
 
I always feel like the doctors are just guessing. Really, I have rarely had an answer that has satisfied me.
 
I am still exhuasted to the extreme. I forced myself to get out of bed for one hour, and am now at the end of that time frame. I am utterly exhausted to the point where breathing feels like a chore.
 
It did help to know that others have had some bilateral lymph node swelling too. I just have a feeling deep in my bones that this is lupus and not mumps, but we'll see!
 
Thank you again
 
Love and Hugs
darlene
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 2/9/2008 4:13 PM (GMT -7)   
Ginny,
I live in Kalispell Montana, which isn't all that far from Alberta... something to think about any way! Thanks for that info.
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07

New Topic Post Reply Printable Version
Forum Information
Currently it is Monday, December 05, 2016 3:43 AM (GMT -7)
There are a total of 2,732,879 posts in 301,067 threads.
View Active Threads


Who's Online
This forum has 151222 registered members. Please welcome our newest member, TAS-MS/lupy.
176 Guest(s), 2 Registered Member(s) are currently online.  Details
Skyy, delta30


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer