What are your symptoms, hives?

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Jenisis
Regular Member


Date Joined Jun 2007
Total Posts : 339
   Posted 2/8/2008 6:33 PM (GMT -7)   
Hi all,
I've been here before, and have a few questions I'm sure you've heard before.
 
Do any of you ever break out into hives?
 
What are the main symtoms of Lupus?
 
Are there any foods that aggrivate you?
 
 
Thank you so much for your help, :)
Brainfog is cruel.


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/8/2008 6:49 PM (GMT -7)   
I break out in hives when I am exposed to really cold weather or cold water, it started when I was a teenager. I also broke out in hives while in the sun, this has happened only once, I usually only get a lacey type rash.

The main symptoms of lupus that I have are: fatigue, joint pain, sun sensitivity, headaches, mouth sores, fatigue & GI problems.

I am gluten sensitive and stick to a strict gluten free diet. There are some foods we should avoid... night shade veggies (peppers, eggplant, tomatoes, white potatoes), alfalfa seeds and sprouts.

If you search on the internet for "foods to avoid with lupus" it will bring up a ton of sites, here is a link to one that I trust: www.uklupus.co.uk/news42.html

I hope this helps. I am sure there will be others along shortly to give you more information. Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Jenisis
Regular Member


Date Joined Jun 2007
Total Posts : 339
   Posted 2/8/2008 6:51 PM (GMT -7)   
Wow, thank you, that was fast :)
Brainfog is cruel.


Jenisis
Regular Member


Date Joined Jun 2007
Total Posts : 339
   Posted 2/8/2008 6:57 PM (GMT -7)   
Also, these mouth sores, do they actually open up into sores, or are they bumps?

Does anyone experience the classic butterfly rash on the face?

Any shocking shock like pain one one side of the head?

How are your kidneys?

I'm sorry for all of th questions, all.
Brainfog is cruel.


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 2/8/2008 7:01 PM (GMT -7)   
Yep, we get all those things too.  Some get all of what you mentioned, others of us just get a bit.  I get the hives.  But only recently.  Still waiting to get to see an immunologist about them. I'm allergic to something, we just don't know what!
 
The zinging pain in the head is something I get too.  Just lupus I'm told!
 
have you been diagnosed with lupus?
 
Ginny
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


Jenisis
Regular Member


Date Joined Jun 2007
Total Posts : 339
   Posted 2/8/2008 7:24 PM (GMT -7)   
Hi Ginny, I have not been diagnosd with Lupus, although I'm awaiting blood test results. I supposedly have Lyme disease and Fibromyalgia. I don't know what the heck is wrong.

I have this chronic groin pain that's been going on for a year...I now have GI issues, sometimes my bladder gets aggrivated, too. For years I've been breaking out in these really wicked rashes that come on my chest, arms, and legs, but recently I've been having hives. I think it's an allergic reaction, however. I haven't taken the aggrivator (mushroom capsules) since Wed.

The shooting pain in my head on one side, and sometimes painful Lymph nodes under my chin make themselves known.

I have no arthritic pain except for what comes from weather in areas where I've fallen or sprained...except my groin, that hurts non-stop.

Once I sit for a while after moving a lot, pain sets in, and hurts when I get up again. My Dr. said it's the Lyme disease toxins building up in my muscles again.

I don't have the classic butterfly rash, I'm not losing any hair, I don't have mouth ulcers (are they painful?), and my fingertips are just fine.

Sometimes I suffer from air hunger, and don't get me started on dry skin.

I just don't know what's wrong anymore. I don't have insurance, so it's difficult to constatly get my blood tested.

I feel like I'm dying, and maybe it's not that bad, ya know?
Brainfog is cruel.


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/8/2008 9:45 PM (GMT -7)   
Hi Jenisis,

There was a recent topic about symptoms. I found it and bumped it up for you. The topic title is "What were your symptoms when you were diagnosed?"

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Jenisis
Regular Member


Date Joined Jun 2007
Total Posts : 339
   Posted 2/9/2008 8:37 AM (GMT -7)   
Thak you :)
Brainfog is cruel.


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 2/9/2008 10:43 AM (GMT -7)   
Hi Jenisis. I don't know that I really get hives, but I do get rashes from the sun - like little raised red bumps and I also get rashes when I'm really flaring. I do have the classic butterfly rash - it fades a little when I am feeling a little better and gets really red and angry when I am flaring or having a really bad day, but it is always there. I do get the mouth sores - somtimes they hurt and sometimes they don't - some of them are white on the tip and some are just bumps I can see and feel. You also asked about kidneys. I had some mild trouble with mine, but it has resolved now, so I am just monitored every few months.

As far as food goes, I can't eat a lot of the suff I used to eat before I got sick. I especially can't tollerate any artificial sweetners. Some veggies make me feel sick too like broccoli and cauliflower, There are other foods I can't eat either, but I can't think of them now. My list of symptoms is on the thread that Rosie told you about.

Let us know how your labs turn out. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/9/2008 11:49 AM (GMT -7)   
Hi again Jenises,

I'm sorry, I forgot to answer your question about hives. I did get hives before I started doctoring for my symptoms. I don't get them often anymore. They popped out with stress. I also have the butterfly rash. Mine is always mildly present but it gets more red when I'm flaring. Its a great barometer for hubby. He tells me when he sees it, and warns me to slow down.

I don't have a definitive dx. I was dx'd with lupus by a derm doc and then the rheumies said no. But they've kept me on the plaquenil and anti-inflams and recently added prednisone for flares. So, I really don't have a dx, but I'm happy to have my medical charts clear of lupus because it will be easier to get health insurance should we ever lose the insurance we have. I'm just extremely thankful that my symptoms are being taken seriously and medicated properly.

I hope this helps! Looking forward to your update at the next Dr. visit.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Jenisis
Regular Member


Date Joined Jun 2007
Total Posts : 339
   Posted 2/10/2008 4:53 PM (GMT -7)   
Thank you for taking the time to answer my questions, everyone. I'll let you know what happens as soon as my labs come in.

Be well.
Brainfog is cruel.

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