Anti-Ro and Anti La question

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Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 2/8/2008 7:03 PM (GMT -7)   
Ok its me again trying to learn what I can. My anti Ro came back 500 and my anti La 200. My Rhuemy told me these titers are very high. I looked them up online and they are indicators for Sjogrens. I do not have any typical symptoms of Sjogrens , no dry eyes or dry mouth. Any of you have titers like mine ? Any of you have similiar titers and not have Sjogrens? Is there a book that will explain much more in depth about Lupus? I get all the literature off the internet but it doesnt not go into much detail in a serology sense. I want to know more about this disease as I cant wrap my head around this. My Rhuemy is not the nice bed side type. I am very limited in how many we have in our area ( less than 5 ) and none of them have a rep for being kind. I like GI DR.'s better!!!!

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/8/2008 9:51 PM (GMT -7)   
Hi Chaya,

Your quest for answers is a good thing.

The results of your blood work need to be compared to the numbers on YOUR lab sheet. Each lab has a slightly different "normal" range and that range is posted with each lab result.

Labtestsonline.org is a good place to get info about labs, but you won't likely see the range of normal. Some of these anti-body tests can be whacko one day and not so bad the next. They don't always indicate degree of symptoms either. Very frustrating. But, because you have the positive anti-bodies, you will have a head-start learning about Sjogrens so you could recognize the symptoms. Actually, the symptoms sneak up on you sometimes and the patient doesn't even realize they are dry until it becomes painful. Make sure to keep all of your dental hygiene appointments because dry mouth can cause tooth loss before you are aware there is an issue.

Hopefully someone more knowledgeable about Sjogrens will see this post and give you more info.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/8/2008 11:46 PM (GMT -7)   
The Lupus Book by Dr Wallace is a good one. He wrote another book that is very technical and expensive as well as kind of outdated.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Chaya
Regular Member


Date Joined Mar 2007
Total Posts : 194
   Posted 2/9/2008 9:19 AM (GMT -7)   
Always Rosie,

The labs range was 1-100 on both and as I said before mine were 500 and 200. Dr said they were very high and they did not nec. mean I had sjogrens but that it indicated more for the LUpus I had already tested for. If sjogrens is defined by anti Ro and La then how is it not meaningful? I do not have anything dry as a Dr and oral surgeon have agreed.


Thank you redrose. Going to amazon.com to look for Wallace now.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/9/2008 10:29 AM (GMT -7)   
(((( Chaya )))) I know how frustrating this is for you, hang in there and keep asking questions!!!

My Anit-Ro (SSA) was 838 and my Anti-La (SSB) was 11. At that time I had no symptoms of Sjogrens either but I do now, mostly dry mouth. However, these tests CAN be positive in lupus too.
www.uklupus.co.uk/tests.html

Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)

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