I am 28 years old and I was recently diagnosed with Lupus. This came after years of searching so I thought it would ultimately be a relief when they gave it a name; but I don't feel relieved I feel scared. I had planned to attack and beat whatever it was that was making me sick, but now I realize that it will never go away. The thought of feeling like this forever is terrifying. I have been reading this site for a long time and it has often helped me feel less alone or like somebody truly understood, I thought I would finally introduce myself. I started getting sick about 9 years ago, my husband, family and friends have been very supportive but it’s nice to chat with people who experience similar things, so thank you all. I
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Hi Catzz, I like you had a long road before I was finally diagnosed. Unfortunately my family and most of my so called friends decided I was making it all up to get attention. My husband was the only one who actually saw what was going on. I also had a pretty good idea what was wrong with me, given the fact autoimmune diseases run in my family and that the student doctors all seemed to think lupus fit my situation only to be shot down by their supervising doctor(s) all because my ANA was negative. I actually had a single positive ANA test only after treatment began and that was very low positive. I also got my diagnosis 2 years ago when I was 28, though a few months later I turned 29. Treatment will help you feel better. You will have good days and bad days, and you will need to learn to listen to your body and what your limitations are. I was in my early teens when I met 4 of the criteria, but have never really been what most people consider healthy or normal.
I suggest you look at The Lupus Book by Dr Wallace. It might help you understand more.
Finally, WELCOME to our little support group that has for some become a substitute for family at times.
Welcome! Glad you posted...but sorry you are not well. It is all overwhelming at the beginning...but try to learn as much as you can...the people here are a WONDERFUL resource. I was diagnosed in July, 2007 and joined this community in October 2007. I have posted many questions and learned so much here. And, then, there is the occasional "vent"...which all of us need to do. And, you won't get judged...everybody here has "walked in those shoes".
You will have your ups and downs... My best piece of advice is learn to pace yourself and listen to your body. When you are tired - rest.