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New Member

Date Joined Jan 2008
Total Posts : 8
   Posted 2/9/2008 11:55 PM (GMT -6)   
    Hi ALL! nono     I've been lurking the last few weeks and learning a lot! THANK YOU  Ginny, Firebabe, Okie, Dakota0917 and Redrose77 for answering my first post I took your advice got my lab work and found a different Rheumy! After spending over a hour with me and looking over my labs she did diagnose me with Lupus, even though I suspected it, it was still hard to hear, strange isn't it? I have been all over the net and this is the BEST BOARD in my opinion. I have so many questions but I'm still trying to get my thoughts together.
I just wanted to update you!!

     Age 45
    Dx :Lupus 2008, IBD-Gastritis 2005,  COPD 2004
Hypertension 2002
    Rx Prenquenil, Prenzide, Aciphex, Relefin, Albutural

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 2/10/2008 12:09 AM (GMT -6)   
Hi Redhands,

So sorry sis . . . yes, it can be bitter/sweet to get dx. But now you know what you are aiming at and you can focus on solutions.

I think I must have missed your first post . . . so welcome to the forum.

I'm glad you posted your update. How are you feeling this week??


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Feb 2003
Total Posts : 5514
   Posted 2/10/2008 12:17 AM (GMT -6)   
Hi Redhands!
Wow.  I know it's a hard thing to wrap your head around isn't it. But also a relief to know what it is that you have.  I"m so glad you are here to share with us and get the suppport you're going to need. I agree. This board has been a blessing to me too.  I've been here for a long time now.  I think about 4 years. Maybe longer!  Take the time you need to reflect on this new life you will have.  We're always here for you, any time.
Do you like your new rheumy?  How long have you been on your new meds?  I have heard great things about plaquenil.  I hope it works really well for you!  Lots of members here are on it.
Looking forward to getting to know you more!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 2/10/2008 1:31 AM (GMT -6)   
I am glad you got a dx now follow the tx plan your new rheumy develops.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia

Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 2/10/2008 10:30 AM (GMT -6)   
Hi Redhands. I'm glad you found a rheumy who really took time to look over your symptoms and labs and put all the pieces of the puzzle together. Like Rosie said, it can be bittersweet to hear a diagnosis. On the one hand it's a relief to have a doc who finally "gets it" but overwhelming and scary to know you are dealing with something like lupus.

If you have questions, please ask away and we'll do our best to try to answer them and also know we are here for support during any rough times. I agree with you about this being the best forum around. When I first got sick and docs suspected lupus I was all over the internet and when I found this site it just felt like home.

Take care and thanks for the update.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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