In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Post Edited (Nanda) : 2/11/2008 8:48:11 AM (GMT-7)
Post Edited (Nanda) : 2/28/2008 7:18:59 PM (GMT-7)
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Post Edited By Moderator (Lynnwood) : 11/29/2008 10:10:07 AM (GMT-7)
Hello, new member here reading the pericarditis issues. I'm 50 yr old female, completely healthy until one year ago with sudden bladder pain (biopsy shows chronic inflam from I/C) and numerous bouts of pericarditis with thickened pericardium and constant small amount of fluid. Almost every month another episode flares. Also have severe headache (constant with no relief,) fatigue, joint and muscle soreness. All labs are negative (sed rate is 1) ANA and ANCA negative, CRP, etc. This has been going on for 14 months, since Aug 2007. Nobody in Seattle area able to identify cause. I have a very difficult time tapering steroids, having to taper 1/2 mg every two weeks, then go back up again... Steroid withdrawl symptoms almost everyday. Reacted to mtx po, Imuran and Arava didn't work, Cellcept shut down lungs, now injecting 15 mg mtx but can't increase dosage due to sensitivity to medications and onset of severe headache. (Brain MRI shows spots, recommended angiogram with possible biopsy.)
Looking back, I was taking sulfa antibotics for months before becoming ill, lost 25 lbs in 8 weeks, had red petechiae on feet and inner arms, dark purpura on lower legs, raised blood pressure (140/94 from normal 95/70) and increased blood sugars to 135 morning fasting. But nobody put any of these symptoms together and all have now disappeared.
I leave on Sunday for the Mayo clinic in Rochester for cardio work-up and consult with rheumatology. Haven't worked since Christmas, on disability and the LTD did the mandatory SSD paperwork. I just want to feel better and go back to work - If I have a job left...
Anybody had success with the Mayo clinic finding causes for obscure recurrent pericarditis?
Hi Nanda -
Just a thought about the palpitations (skipped or extra beats) - I've had them for decades - sometimes worse than others - with no obvious reason for them determined after multiple Holters, EKG's, echo's, and finally a heart catheterization after having some weird spells that led to another stress test that showed something "abnormal". The cath result was a clean slate, no blockage, no narrowing, etc. I even had a 2 week Holter after that! Finally, the cardiologist told me that he didn't think there was anything wrong with my heart - that the palpitations were caused by GERD - that I should talk to my internist about a scope. Apparently the Gerd problems can irritate the vaso vegal nerve enough to create the palpitations. I pay attention now - and they often do correspond with some bloating and reflux - indigestion, etc. You are under an awful lot of stress and on a lot of medication. Perhaps this is part of that problem, anyway - so I just wanted to mention it.
I'm sorry you are going through such a hard time right now.