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lifesworth living
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Date Joined Jan 2008
Total Posts : 28
   Posted 2/10/2008 7:32 PM (GMT -7)   
hey everyone i am curious about something,when i was in grade school i was always sick with tosilities, high fevers and trouble gaining weight, i also was anemic alot. i eventualy had tonsils removed and my health inproved. it wasnt untill around 5 yrs ago that i started having my other health problems im 41 now. could it have been lupus thenand did anyone else have problems with there tonsils.        sheshe

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/10/2008 7:44 PM (GMT -7)   
I had chronic headaches from the time I was pre-teen. At about 18 years old, I was told by family doc that it was my tonsils, so I had them removed . . . but it didn't help the headaches . . . duh!! I also had painful finger joints by age 20 and sun sensitivity (rashes) since then too. Other symptoms escalated from there.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 2/10/2008 9:12 PM (GMT -7)   
Hi Sheshe,
 
Yes, I did.  Right from being a very small child, I had constant strep throat.  I was almost never without having it.  When I was 8, they finally took out my tonsills.  I seemed to be a much healthier child after that, but when I was about 13, I started having problems with my knees, and my jaw.  I had TMJ, which is now linked very closely with Fibromyalgia. My periods have always, right from day one, been a nightmare to deal with.  Hormones do play a roll in lupus. 
 
Looking back to my early childhood and early teen years, we really see where my health issues started.  I was really young.  Things didn't get out of control until I was into my 20's.  But I do believe very much, that my strep throat as a toddler, and youngster, predisposed me to lupus.  I might have had all the other triggers and genetics to make me have lupus, no matter what had been done to me to make me well.  I probably have had lupus most of my life, but didn't know it and didn't see the symptoms as a problem until they became a very big problem. 
 
Ginny
 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

33 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/10/2008 9:35 PM (GMT -7)   
hi ginny and rosie, i also have had awulful periods all my life, i had to have a hestericdomy last year, a complete one. so i have to take hormone pills. i just feel like all these things are connected. i think maybe im looking for answers. im so glad i have found others to talk to. my family depend on me alot and they just expect me to be the strong one, sometimes i just need someone to talk to about all this,thank youall. sheshe

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/11/2008 6:18 PM (GMT -7)   
((((((((sheshe)))))))))

So sorry you are having such a hard time. I hate to bring up a difficult topic, but the hormone pills you are taking *might* be part of your problem. They are a controversial topic for lupans. Some of us are negatively affected although there was one member who said they helped her. Just a thought, in case there is any room for adjustment of the dose or type of hormones. I really don't know much about this topic, but your rheumy may be interested in this aspect of your meds.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/11/2008 7:32 PM (GMT -7)   
Hi Sheshe,
   Constant strep throat was the beginning of my problems when I was 19. I still have my tonsils though. After about a year of strep throat it stopped just as fast as it started...strange!
   I had a hysterectomy when I was 28 but, still had my ovaries. My OBGYN put me on estrogen when I was 32 and thats the year I got dx'd with Lupus. My syptoms got really bad while I was taking estrogen. Since we are all different, some people do okay with hormones.
   The only things I can think of in my younger years before 19 are being anemic at 16 and having Scarlet Fever when I was 2. Other than that I had a very active life as a young child and teenager.
   I hope things get better for you soon. Take care and keep us updated. You will be in my thoughts and prayers.
                                                          Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/13/2008 2:41 PM (GMT -7)   
thanks everyone for all the info, it makes me feel better to share and compare info with you all, i just came home from work and made a pot of coffee, hope you all have time to relax this afternoon. sheshe

redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 2/13/2008 4:20 PM (GMT -7)   
I was sick from birth, but no one is sure with what. I also had migraine headaches from as far back as I can recall. I was on antibiotics at least once a month for throat, ear, and/or lung infections during my childhood right up until I was 12. I couldn't seem to shake whatever it was causing the tonsilitis, ear infections, broncitis, and pnemonia. Then by age 14 I had 4 of the 11 criteria for a lupus dx but doctors and family thought I just wanted attention.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/13/2008 7:53 PM (GMT -7)   
redrose, my family seems the same way, they dont want to talk about lupus at all with me its realy hurts my feelings .but i just keep it to myself and leave them alone about it . when i go to the doc its by myself. he has not been helping me much, i think maybe i need a different doc. he just doesnt seem like he is listeng to me. why is it that women seem to have a harder time with docs than men. the first thing they uasualy ask a women is are you depressed sheshe

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/13/2008 10:34 PM (GMT -7)   
I tend to have better luck with female doctors.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


monkeyme
Regular Member


Date Joined Mar 2007
Total Posts : 153
   Posted 2/14/2008 10:09 AM (GMT -7)   
I too had strep throat and tonsilitis from the time I was 12 until I had them out when I was 16. I would have a case of tonsilitis nearly every month.

I always wondered if having my tonsils out somehow messed up my immune system.
Chronic Fatigue 1990 * Migraines 1990 * Restless Legs 1995 * Fibromyalgia 2001 * UCTD/probable Lupus 2007* Clostridium Difficile 3/07


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/14/2008 11:54 AM (GMT -7)   
I still have my tonsils so I dunno that it would have made a difference. I wish I didn't have them but am too aware of how bad the surgery is as an adult- I watched my husband have it a few years ago.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/14/2008 8:23 PM (GMT -7)   
hi everyone its interesting how many of us have had problems with our tonsels as children, it makes me wonder also if its related to lupus as adults, happy valentines to everyone. sheshe

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/14/2008 8:55 PM (GMT -7)   
Hi sheshe,

We've had topics like this where many of us seemed to have a similar illness or issue in childhood. The only fair way to evaluate it, would be to know what percentage of the "normal" population had tonsil issues. It could be fairly common in the general public. Not sure.

Also, I'm not sure I would have posted in this topic if I hadn't had my tonsils out. Add to that, having my tonsils out did not "fix" my problem. LOL Very confusing!!

But interesting!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/14/2008 9:06 PM (GMT -7)   
You know what's interesting? My sister and I, she is 15 months older than me, shared a room all of our lives. My sister had chronic strept throat and I never got it. The doctor said I had been exposed so much that I had probably built up an immunity to it. When I was 27 I was working at a youth camp and caught strept throat. That is when I went into kidney failure and my troubles began. I also had to have my left thyroid gland removed due to a large tumor when i was 22, and my gall bladder removed at 25! My brother has Crohn's /colitis, I have lupus and my sister is healthy!

lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/15/2008 10:01 PM (GMT -7)   
my sister and i also shared a room , she never got sick either. but now she is sick all the time also, they have dxed her with fibermalgia, we have a brother also he is the youngest he has always been healthy. i was just trying to find out if there might be a connection to my childhood tonsil problems and lupus, if 5 people with lupus answered and all 5 had the same problem with there tonsils, then that answered my ?, its very well possible . sheshe

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 2/16/2008 10:29 AM (GMT -7)   
Anything is possible, however remember that this is not a controlled statistical sample of all possibilities -- this is a subset of (all humans) * (all with lupus) * (all w/tonsils) == so it's far, far, far from saying most people w/lupus have tonsil trouble.

I DO NOT have tonsil problems, nor have I ever had. And NO relatives of mine have ever had an lupus or auto-immune problems.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/17/2008 11:19 AM (GMT -7)   
thanks for all the responses i guess im just looking for answers or at least reasons. im not feeling very well today not sure why, i felt pretty good yesterday and did alot of outside stuff i had been neglecting, so last night my hand went to stinging and this morning i feel like i was in an accident or something im aching all over and just feel bad. i think today i will just be a coach potatoe, i just never know when to slow down untill i hurt so bad i cant do anything, i keep saying i will find a balance, but havent yet. sheshe
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