Whats wrong with my feet??

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Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 2/11/2008 7:48 AM (GMT -7)   
Last week I had the strangest pain start in the bottom of my left foot.  It was like a stone bruise and hurt like Hades to walk on.  Then, just when that started to get a tad bit better, the other foot started the same thing.  Now, it feels like someone took a baseball bat to the bottoms of both of my feet.  It hurts so badly to walk, and seems to hurt worse when my feet are cold. 
 
I know I seem to be the queen of the unusual symptoms, but I was wondering if anyone knew what this could be?  I do have a call in to my Rheumy, they just take so long to get back with us.  sad
 
 
Blessings,
 
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 2/11/2008 8:12 AM (GMT -7)   
I would suggest a foot doctor. It is entirely possible you have plantar faciitis- which involves inflammation in the tendon that supports the arch of your foot. I felt exactly like the bottoms of my feet had been beaten when I was experiencing severe symptoms. Now, I wear a certain kind of shoe that depending on brand is called motion or stability control. I also do whatever it takes to ensure my arches have enough support. The simple fact is that it took doing this combined with a special pain relieving rub and injections to get my feet to improve. Only a foot doctor can know for sure and only they have the experience needed to help with many of the problems you can run into with feet.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Victoria72
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Date Joined Oct 2006
Total Posts : 221
   Posted 2/11/2008 9:05 AM (GMT -7)   
Rose, thank you SOOO much. Is this something that is common to Lupus patients? It seems the Plantar Facia is a connective tissue within the body, there have to be more ppl than us who have this, if in fact this is what is wrong. Its just so painful.

It never ceases to amaze me the things I take for granted until Lupus takes something else from me.
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Nanda
Regular Member


Date Joined Aug 2007
Total Posts : 101
   Posted 2/11/2008 9:30 AM (GMT -7)   
Hi Victoria,
 
Even tho' I don't have Lupus I too seem to be having something like you're having in the feet. I ended up describing it to others as if I had run barefoot for 20 miles! And Rosie also suggested that it might be plantar faciitis. I have heard of this before as I know that those who have thyroid problems can suffer from this also.
 
Cynthia
 

Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 2/11/2008 1:24 PM (GMT -7)   
I had pain on the foot but it was the top of the foot... nothing helped but hot water for me....

jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 2/11/2008 3:42 PM (GMT -7)   
((((( Victoria ))))) I am not experiencing the same problem as you describe but I do have a lot of problems with my feet, mainly in the tiny joint on the top of my feet..... thanks to lupus. I can't wear cheap shoes anymore, my rheumy suggested Clarks which help a lot but I still have a lot of pain in those joints. I feel like I have the feet of an 80 year old. confused

I hope you get some relief.. it sounds very painful. Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 2/11/2008 5:24 PM (GMT -7)   
I had bone spurs on my feet a few years ago. I could not wear any shoes...I had 2 removed from my left and 1 from my right.

just check with you doctor....Best always
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, CALTRATE-D, CENTRUM AND CREAMS
Enjoy what you can today and leave the rest for another day.
 
Frank
 


AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 2/11/2008 5:32 PM (GMT -7)   
Yuppers . . . plantar fascitis IS a common problem in those with connective tissue diseases. My rheumy did a study regarding this issue. I was cursed with 2 years of very painful feet.

I was into backpacking before the flare that came with the BIG foot issues and I had ordered a pair of "trail trekking shoes". They are made to support your feet on an unimproved trail including the extra weight of a backpack. When they arrived, I was in such pain that I didn't even want to try them on. After a few days, i decided I needed to make a decision about keeping them or sending them back. To my surprise and shock, they were the best medicine for my feet. They are a bit of a struggle to get on, but the support is amazing. My rheumy said they are as good as orthodics. I found them at a way discounted price online at Sierra Trading Post. They are an outlet store for sport clothing and shoes. Look for Vibram soles. The brandnames I've purchased and liked are Merrill and Vasque.

I hope your feet don't hurt as long as mine did. I'm happy to report that while I do have some other painful issues, my feet have done surprisingly well for the last year. So there really IS hope that they will improve. Mine were most painful when I'd first stand in the morning and each time I got up after sitting. So bad that I'd be forced to limp and gasp at times.

I hope your feet feel better soon. Make SUrE to tell your rheumy about this.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 2/11/2008 8:31 PM (GMT -7)   
For me I spent months in horrible pain. Now I have some pain but only hurt a lot if I am on my feet for more than 15 minutes, given my restrictions that is not an issue and won't be until the baby comes. BTW Thanks Rosie cause I may end up needing new shoes. I have a spare pair but decided not to switch until the baby comes because they fit funny right now and I don't want to ruin a brand new pair of 100 shoes. I may need something with more support though since my feet do hurt even on bedrest, though no where near what it used to be.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 2/12/2008 7:41 AM (GMT -7)   

THANK YOU SO MUCH!!!!

I do believe this is plantar fasciitis, with the rarity of it being in both feet at the same time.  I read that it can take 4-18 months to clear up, so the timing that all of you gave fits perfectly.  I also read that CTD's definitely pre-dispose you to the condition.  I will be sure to tell my rheumy, who by the way still hasnt called back.  Theres not too much I can do about it besides resting my feet and good shoes... and I sooooo love cute shoes, which we all know are never good for our feet.  Oh well... sad

And heres the real  bummer... I am supposed to fly in to NYC on Feb 24th. Its a business trip, but I'm going a day early because a friend is giving me the whirlwind tour since I have never been.  I was supposed to see the Empire State Building, Ground Zero, the Statue of Liberty, and then dinner in little Italy.  Now what do I do?  I cant even walk from my van to the house without hobbling and cursing the pain.  I so hate Lupus.

Thanks again all... I honestly couldnt do this without you.  ((((HUGS))))

 

 

 

 


 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 2/12/2008 8:07 AM (GMT -7)   
An easy remedy that helps relieve some of the pain/tightness is: take an empty water bottle, fill with water, and freeze (leaving room for the water to expand into ice). Then lightly roll your feet over the bottle. (Wear socks to keep from freezing!)

Later, once your foot isn't so tight, put golf balls under your desk and roll your feet on them as you work. They are just the right size to 'massage' the foot, esp. into that point just forward of the heel.

When driving or sitting, leave your heels on the floor and gently lift your toes off the floor. This gentle stretch helps that plantar muscle get back to normal by strengthening the Achilles tendon.

When you sleep or lay down, try and make sure your foot is at a 90% angle to the leg, NOT pointing downward. As it becomes looser, it is even beneficial to point the toe upward a little if you can.

Stand with your toes on the edge of a stair, and slowly let your heel drop below the edge of the stair a little - then bring the heels up even with the chair, or slightly above if it feels ok.

These are all things to do as the foot improves, starting from the top down. I haven't had symptoms for years, but still do the golf balls and the stair raises as preventative measures. It works!

(I used to be a runner -- this is a typical runners problem.)

Cheers,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 2/13/2008 8:53 AM (GMT -7)   

The rheumy finally called back last night.  He wants me to come and have xrays done of my feet today.  They are worse than ever.  I will let you know what happens....

 

 


 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 2/13/2008 2:31 PM (GMT -7)   
I am to see the 'feet' guys here in Dublin tomorrow. We are NOT an expert on that either here! It is all hit and miss.
I have whats called Pes Cavis, too high an arch and floppy ankles so need special shoes, it has something to do with Rubella, I am a Congenital Rubella Syndrome adult. I also have very small feet for my height and weight.
MY problem is that the feet are SO painful now with raynauds and neuro probs that I cannot wear the support shoes or boots AT ALL.
They are too hard on my feet. I can only tolerate sheepskin booties, slippers. I even go out in them to the shops!
I find ANything on my feet unbearable now. Even when one foot touches the other it is unbearable.
Even walking on them is painful, cos they feel as if I am walking on glass.
Does it every end do ye think!
Do other people have this awful sensitive feet and how do you deal with shoes and what should I say to the feet guys?
I have had such bad fittings over the years. It could take a few goes to get it right. And that was when the feet were alright, so to speak.
xAnn
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


lifesworth living
Regular Member


Date Joined Jan 2008
Total Posts : 28
   Posted 2/13/2008 2:59 PM (GMT -7)   
victoria, i have also had problems with my feet, i went to foot doc and they made me inserts that fit in my shoes perfectly, they have realy helped me. my feet still hurt some but not near as bad. if you do go to foot doc. and he recomends something like that dont just start out wearing them all the time, only wear them a hour or so a day for about a week, they will make your feet hurt more untill you get use to them, hope your feeling better. sheshe

Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 2/13/2008 3:06 PM (GMT -7)   
Rheumy's report: bilateral Metatarsalgia-like inflammation. He is not sure what triggered it, but is convinced after seeing the xrays that its not plantar fasciitis. Thats such a relief! He prescribed Indocin for ten days and said that should help it resolve. Once again, I am the Queen of the Rare!

He is also assuring me that the Cellcept will not kill me and that I really need to take it. No, I have not started it yet, even though he prescribed in January. I know, I know... its supposed to help me. I am still so scared of the side effects, especially the suppressed immune system. For example.. my daughter just got over a terrible bronchitis with 102 fever for three days. Of course, I took care of her. If I had been taking the Cellcept, I would have been at much more risk from beng exposed to her illness. So... I am thinking maybe of starting it in April, when flu and pneumonia season is coming to a close.

Anne: I am so sorry about your feet. It makes me feel better about my situation. At least mine has resolution on the horizon. By the way, you are such an encouragement to me. You have such a hard way, but it never fails that I find something encouraging or positive in your posts. Thanks for being such a blessing to all of us. {{{HUG}}}

Blessings,


 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 2/13/2008 3:24 PM (GMT -7)   
I took Cellcept for about 15 months -- no side effects and it really, really helped my health. I would definitely take it again if needed!

I'm not around children, so have minimal risk, and haven't been sick "that way" since the Lupus dx -- if you are careful and wash hands & don't get sneezed on it was certainly well worth the risk to take it.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


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