Question, not for myself this time

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/12/2008 2:34 PM (GMT -7)   
Okay, I am not sure if I said anything here or not but my husband now sees my rheumy because of a severe episode of arthritis and a positive ANA. She initially thought he had palandromic (SP) rheumetism but since his symptoms from that major flare never fully subsided she has begun to suspect he is in the early stages of RA. She started him on plaquenil back in October. He is feeling much better. Now here comes the question.
 
Since he was a teen my husband has gotten ulcers in his mouth- at least one a week and often 5 or 6 at a time. His doctor back then said he had a virus and it would clear up in a few months. It never did. The ulcers were very painful so I never made any connection between them and an AI disease until recently. The reason I made the connection is that in late November the ulcers began to happen less often and by the end of December he wasn't getting them anymore. It is now Febuary and he still hasn't gotten one. The question is should we credit the plaquenil or is the virus his childhood doctor dxed only just now going away- believe me I do not buy that one for ten seconds. Also, if the plaquenil is helping the ulcers as well as his constant stiffness and pain along with the fatigue he never said anything about could this be something other than RA? I know his thyroid is underactive and has been for quite a while. I know his blood pressure is now under control with only 1 medication which is highly unusual. I just don't know what to think.
 
I really didn't want his problems to be autoimmune. It is just to horrible to ponder for any length of time. The one good thing is that plaquenil and celebrex seem to be controlling his symptoms wonderfully. I envy that. I really wish my diseases were so easily controlled. I am just having such a hard time processing it. What are the odds? I mean seriously, I watch him carefully because of the little we know about the medical history of his birth family but arthritis and autoimmune conditions were not part of what we learned. I just knew something was seriously wrong when he swelled up like that, it looked too much like my hands did before I got treatment though not exactly the same. If I didn't know better I would wonder if I was contageous. His mother does, and she worked as a respritory therapist for years.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Daymay
Regular Member


Date Joined Sep 2007
Total Posts : 36
   Posted 2/12/2008 4:56 PM (GMT -7)   
I'm definitely no expert, by any means, but have you looked at hypothyroidism? I know there is sometimes swelling and aches and pains with that, as well as fatigue and Raynauds.

Good luck on figuring this out!

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/12/2008 5:14 PM (GMT -7)   
He has been treated for hypothyroid for a little under a year now, only because I insisted his thyroid be tested. The doctor he was seeing kept insisting he was depressed. Yet his eyebrows were disappearing and that is a very definate sign something is wrong. So long as he takes his thyroid meds he will be okay on that. The rheumy has pondered aloud if the thyroid issues are autoimmune because it would make sense. I am just having a hard time figuring out how the plaquenil helped his mouth sores if he has RA or a similar arthritis condition because the mouth sores do not fit the initial PA or more recent RA potential dxes. He has no definate dx as of yet because his symptoms are not quite perfect for either of the conditions our rheumy suspects might be the problem.

Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 2/12/2008 6:43 PM (GMT -7)   
Plaquenil could be helping keep some minor temperatures in check - the temperatures were just enough so that the virus (herpes simplex 1?!) could "flare". That would match my experiance, anyway. Just a thought.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions


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