pain managment questions

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kncb95
Regular Member


Date Joined Jun 2007
Total Posts : 40
   Posted 2/14/2008 7:35 AM (GMT -7)   
I hope someone can answer some questions for me.
First a little back story positive ANA, SSA, SSB, and MCTD antibodies 10/05-1/07. All labs negative ever since. Having to change PCP due to PCP thinks I am crazy.
 
Questions:
1. I have pain everyday PCP and Rheumy think it is impossible for me to have pain with negative labs and refuse to give me anything for pain. Ibuprofen no longer works to control pain. Should I see a pain management doctor?
 
2. I am worried about taking pain meds because I don't want to become addicted. Is this a resonable fear?
 
3. When I do take a pain pill I am able to get things done like I could before I got sick. I feel normal and productive. When I don't have anything for pain it takes all I have to just clean my house. Then the next day I am even more exhausted and in more pain than I did before cleaning. Does anyone else deal with this?
 
I have tried other meds such as:
Lyrica, mobic, neutronin: makes me so sleepy I feel drunk I have trouble even walking!
cymbalta, zoloft, and wellbutrin: causes me to have involintary movements so bad I look like I have parkinsons.
I am extremely sensitive to meds and I know it frustrates doctors but it frustrates me too. I would love to be able to just take anything they want to give me but a I can't.
 
I have an appt with new PCP what  questions should I ask him to interview him for the ability to be compassionate to the patient with confusing symptoms?
 
Thanks,
Kasey

Dx: Mixed connective tissue disease '05, sjogren's '05, GERD '05, insulin resistance '01, ADD '01, major depression '98, polycystic ovarian syndrome '97 Hypoglycemia '07 hypothyroid '07

adderall, prozac, synthyroid, multivitamin


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/14/2008 8:28 AM (GMT -7)   
Sounds like you need a new rheumy too. If you hurt, you hurt. The question is: what is causing your pain? inflammation? nerve damage? etc.

Ibuprofen will generally not work for inflammation if you take it "as needed". It must be taken round the clock for an extended period of time. In other words, it needs time to work to reduce the inflammation, which won't happen after one or two doses if you have chronic inflammation.

Yes Kasey . . . I would ask the doctor to help determine the source of your pain so that it can be best managed.

As far as pain pills making you more productive . . . . that is exactly why I rarely use pain meds. I simply do too much while I'm taking them and I end up causing a flare or the worsening of the flare. So, when I do use them, I'm really careful how I use my energy.

Your new doctor should get a good overview of what has been happening. Something like what you've written above but more detailed. It should be typed and written with as few words and as much detail (I know, contradictory) as possible. A list form works well.

If he is disinterested in your history . . . that is not a good sign. Because he should be happy to be able to get up to speed with your needs.

Hope this helps.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/14/2008 11:52 AM (GMT -7)   
I am in pain every single day with negative labs. The pain without medication is so bad I wanted to die, not because I was suicidal but because it hurt so much and I couldn't even breath without making it worse. Now I am in pain every day but it is managable. Addiction and physical dependancy are two entirely different things. I suggest if your new doctor is open to trying pain medication asking for tramadol and a prescription for anti-inflammatories for use every single day. You need to give a good history, but keep it short enough the doctor doesn't feel overwhelmed. A list of current symptoms, a history of how things got to where they are with any important medical events timelined, and copies of the past positive blood work.

You also need a new rheumetologist ASAP! Yours is an idiot if he/she thinks negative labs automatically means no symptoms or pain. I wish you luck, but remember the doctors work for you. That means if they aren't helping you then you have to fire them.
Dx:fibromyalgia 2002, systematic lupus 2005, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin,Prednisone, Imuran, Procardia


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/14/2008 1:07 PM (GMT -7)   
Hi Kasey, I agree if your doctor thinks your crazy than you need a new doctor that has a clue what you are going thru.
I have heard that about cymbalta. I'm supposed to take it for depression and nerve pain but I had the same (jerking) sensations from percocet and between that and changing anti -d's to begin with bothers me.
Do you take predisone? That actually seems to help me more than anything when I am hurting really bad. I do take vicodin. Some times it works somtimes it doesn't. It's so easy to reach for them though that I put them away from my other meds because I want to have to really think about it before I take them.
I hope your new doctor will be more helpful. You aren't on plaquenil or anything?
let us know how the new doctor goes
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


kncb95
Regular Member


Date Joined Jun 2007
Total Posts : 40
   Posted 2/14/2008 1:21 PM (GMT -7)   
Carol,
I took a short round of prednisone last week. My PCP gave me a 5 day round of it because she was frustrated by my unexplained fever for 2 weeks straight ranging from 99.5-102. When she could not find a reason for fever and antibodies came back normal again she just gave me that. I took plaquenil when first diagnosed with sjogren's and MCTD 10/2005 but it made me to sleepy and I worked at the time so I was unable to function and take it. Now with normal labs even with all my doctors knowing about and having a copy of over a years worth of positive labs no one will give me any medication. I just want to feel human again. Of course it seems all my doctors just think it is in my head!!
Dx: Mixed connective tissue disease '05, sjogren's '05, GERD '05, insulin resistance '01, ADD '01, major depression '98, polycystic ovarian syndrome '97 Hypoglycemia '07 hypothyroid '07

adderall, prozac, synthyroid, multivitamin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/14/2008 1:32 PM (GMT -7)   

Yep it's time for a new rheumy as well. Most everyone I have spoken to gets treated for symptoms. If you're in pain some one needs to do somthing for you. You shouldn't have to live that way.

hugs

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 

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