Ever since I read Canuckgirls' postive response to LDN (low dose Naltrexone) I've been doing a lot of reading about it and it's something I'm very interested in asking my rheumy about when I see him in April. It looks like it works well for a lot of autoimmune diseases and is not toxic like so many of the other meds we take.
I have some questions though and didn't know if anyone could answer them. One of my big concerns is that you can't take any kind of opiod (sp?) pain meds or tramadol either. I'm wondering if LDN controls pain well enough that you don't need these pain meds. Canuckgirl, did you have much pain previous to LDN and did the LDN help with pain? I was also wondering how much it helps with fatigue because I've had some really crushing fatigue lately, which is why I haven't been here as much lately. I know everyone responds differently to meds, but I'm eager to hear from people who have tried this medication. I know it's not a cure, but it sounds promising in controlling symptoms and in slowing progression of these diseases. If anyone wants to know more about it you can use any search engine and type in LDN and you'll get some good information about it. It's a prescription and sounds like the low dose of naltrexone has to be mixed by a compounding pharmacist.
Canuckgirl, I was going to e-mail you, but it wasn't listed. Feel free to e-mail me - I have my e-mail available on the forum.
Diagnosis: UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds: Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears
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