Heating pads back, heating bags on knees

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okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/15/2008 11:27 PM (GMT -7)   
Lousey weather is turning again. I can't sleep. Were supposed to get snow/ice storm over night and I can feel it creeping into my bones. I took vicodan earlier and percocet just now after laying in bed with heat on me for two hours. I can't wait for this winter to be over with!
Plus they came today and put my alert system in. You know the one. "i've fallen and I can't get up!" so I have this stupid plastic knecklace to wear around all the time. She said wear it under my clothes never take it off because I might forget to put it back on. Between the last month of hospitalizations and the people coming in to clean, now this I am beginning to think I'm fighting a loosing battle. 
You know I guess there are times I can tell myself I'm really not that sick. Now all this equipment plus they handicapped my bathroom. It's hard for me to have my days of denial.
Somtimes we need days that make us feel (normal).
I'm sure they are just being extra careful because I live alone.
 I'm feeling rather depressed about it all though. I do have a  psychistrist or cologist or somthing that I can see. I don't know if they deal with chronic illness though. I imagine they do because he was recommened by the nurse that ordered all the equipment.I think I'm gonna try to make an appt: next week.
Maybe they can help me get my head on straight. I know alot of what we go thru deals with coping skills. So I think that is a goal I really need to work on.
anyway I couldn't sleep and thought maybe if I got up a little while it would help me get tired.
love and prayers
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 2/16/2008 1:03 AM (GMT -7)   
(((((((Carol))))))) I'm so sorry this cold weather wears on you so much. I hope the heating pads and percocet have helped you fall asleep. Your "stupid plastic necklace" might be a godsend one of these days since you live alone. I worry about falling but I know someone will eventually come home and find me, but you have a better safety net than that now. You have a way with words Carol. Although I feel so bad for what you're going through, I almost had to laugh when you said it's hard for you to have your days of denial. You always crack me up even when you're feeling so down.

Your depression is so understandable Carol. It's a good thing that you're going to talk to someone who might be able to help with the depression. I hope it's a psychiatrist because he or she can get a clearer picture of what antidepressant you should be on. And a good one can help you lean how to cope with the feelings you have about your illness.

Love and prayers to you too, and here's to a good night's sleep and a warmer day tomorrow.

Hang in there sweet girl.

Hugs,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


hippimom2
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Date Joined Jul 2005
Total Posts : 5403
   Posted 2/16/2008 7:36 AM (GMT -7)   
Carol, my heart goes out to you. You said something so true when you said that sometimes we just need days where we can feel normal. I am really sorry you are going through all of this - it's kind of like your illness slapping you in your face everywhere you go. I do think talking to someone about everything is a good idea and hopefully it will be someone who understand chronic illness.

This winter really stinks doesn't it? I usually do better in the winter than in the summer because the sun and th heat make me so sick. But all the severe weather and cold has been hard on my bones. I'm sitting here under an electic blanket throw I have by my recliner. It feels so good on my aching joints and bones (I sound like I'm 80 instead of 40).

Hang in there Carol. Hopefully this weather will be over soon. You are always in my thoughts and prayers.

Love and hugs
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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mom46
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Date Joined Dec 2004
Total Posts : 8198
   Posted 2/16/2008 7:36 AM (GMT -7)   
(((Carol))),
    Bless your heart! I'm sure you are overwhelmed with everything your going through. I agree the "life alert" is a good thing with you living alone. Hopefully, you were finally able to get some sleep last night or this morning. Not sleeping when your so sick drains us mentally, physically and emotionally....((Gentle Hugs)). I hope your pain has eased up some this morning as well.
   I'm glad your making an appt to talk to a specialist to help you cope with all of this. I hope and pray things get better for you soon. Hang in there, rest and take care. You are in my thoughts and prayers.
                                                      Love, Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/16/2008 9:47 AM (GMT -7)   

Hi Pat, Hippi, and Bab's. Thanks for the encouragement. No I still havn't slept but the pain has eased up. Now I feel like a zombie. I keep laying under the covers with a heating pad but I can't sleep. I have had quite a few restless nights but I really don't want any kind of sleeping pills. It would be just another drug I have to worry about becoming habit forming. I guess it will be be a weekend of laying around and staying warm. (hippi the electric blanket sounds nice). Pat I really wasn't trying to be funny but when you repeated it I must admit I did chuckle. LOL. Bab's you are so right not sleeping is really terrible for a mind frame. I think I'd rather have just about anything than insomnia. I'm totally worthless and really out there when I havn't slept.

My dog wanted out real bad this morning I opened the door he took one look and went back to bed! He hates the wet and cold as much as I do. I swear when the weather is like this he can hold his pee for days. LOL>

anyway I think I'll go snuggle up with a good book or somthing. Than again my eyes are tired so maybe not.

ok now I'm rambeling I'll go now

love ya and thanks

stay warm and dry

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/16/2008 10:27 AM (GMT -7)   
(((( Carol ))))) bless your heart. I am sorry you are going through this rough patch, I pray things get better for you. Maybe talking to someone about what you go through each day will help. Hang in there sis , take care of yourself and stay warm. You are in my thoughts and prayers.
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds: Imuran, Plaquenil, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Ann Ireland
Veteran Member


Date Joined Apr 2006
Total Posts : 511
   Posted 2/16/2008 1:59 PM (GMT -7)   
okie, can I make you chuckle again? I have been awful sick too and a counsellor was provided for me who comes to my home. she's is lovely. She sat opposite me on the sofa and I sat wrapped in throw and hot water bottle.
Over her head were some of my paintings and on one was a wee cheepie budgie my twin had bought me as I used to keep budgies.
I had stuck it there and it wasnt there!
Oh NO, I said in alarm. The counsellor looked. "MY budgie! I hope he hasnt gone and cracked his head!"
She asked me what I meant. "I stuck a budgie on a painting and he's fallen off and down behind your sofa and onto the radiator. I hope his head's not knocked off!" I began to laugh hysterically and she began to titter.
I couldnt stand the suspense of not knowing so I got up and leant behind her and found my budgie.
"Oh my baby, come here, Ah, no, she hasnt lost her head .... but her tail....!"
By this time we were both in uncontrollable giggles and it was SO funny.
I gave my plaster budgie a kiss on the nose.
"come here pet....well at least I can stick on the tail!"
I put him on the table beside me and without the tail for balance she sort of rolled sideways, didnt fall off, just flopped. Again more laughter and then down to the business of counselling.
Okie, it does one good to both have a counsellor and to laugh.
At times both can be just so exhausting but even so, I think to let it all 'hang out' is worth the ensueing exhaustion.
Okie, I live alone too, ain't very nice when sick. Yeh, know what you mean when you want to have a normal day or feeling.
I am screaming for that. Sorry, okie, I cannot reassure you that will come, even though I foolishly think it will for me...not a chance!
Ann Ireland

Congenital Rubella Syndrome (CRS) Severely Deaf, Hypothyroidism, Pes Cavus, Crohns Disease, scoliolis, Hiatus hernia, diverticular disease, neuromuscular disorder (?parkinsons) movement disorder, ? another autoimmune disease.
Excema.

150mcg tyroxine, 20mg pantoprazole, 10mg Cipramil, 500mg 2 3times a day Mesalazine, 3mg Entocort, 62.5 Sinemet, 30mg Tamazipam, mystatin, sudocream


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/16/2008 5:23 PM (GMT -7)   
(((((((((Carol))))))))))

OK now sis!! This topic is well deserved. You HAVE had it rough. I can truly identify with your resistance to the "stupid plastic necklace". YES it is necessary and potentially life-saving . . . but also might feel like a symbol of defeat. I hope you can become friends with the necklace sis. I was picturing a pocket inside your pj's or shirt to slip it into so it doesn't hang. Or, if you are wearing a *low whisper* bra . . . you might try tucking it in there so it would still be around your neck, but it would sit still and not swing back and forth or pop out. *sigh*

Sometimes its the small things that really hurt. I think talking about it is great therapy!! Counseling?? You bet. Go for it sis!!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/16/2008 7:51 PM (GMT -7)   

Hi Stacie, Ann and Rosie. Thanks for the response. Stacie, thanks for the thoughts and prayers You know I really appreciate all of them I can get. Right back at ya too.

Ann, that was so cool that your counselor comes to your house. Yes you did give me a chuckle. I could just thing you trying to set that poor thing up on the table and it kept falling over. Laughter is such good medicine isn't it. And hey if I needto stay possitive you have to too. So no negative thinking! thanks for the laughs!

Hey ya Rosie Gal! Your right I gotta figure out somthing to do with this thing. The plastic is so hard. I had fallen asleep for a little bit lasty night. I woke up because the stupid thing was caught under my b@@b and was jabing me in the side. I pulled it out of my pj shirt but then I never get back to sleep. I still only slept about an hour total today. I am gonna take advantage of the counseling and like Patty said it will help me to figure out what anti d's I really need to take. IF it's a doctor that uses drugs.

thanks again ladies I hope you are having a good weekend and staying warm. It's been raining here all day and suppose to snow tonight. My dog that hates the rain took off in it today. So I had to go out and get him. I don't have a fenced yard. Of all the days. If I get sick from the cold it's no more doggie treats!

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/18/2008 11:59 AM (GMT -7)   
*brrrrrrrr* Out in the rain??? I hate that!!! I have tie-out that I can reach from the door. I can snap it on the dog and let her out w/o going outside. I wonder if you have a friend or someone from church who would install such a tie out for you. If your dog will jump up on a chair or a box to have the lead attached, you won't even have to bend over!

That plastic thing!!!! I wonder if you could use a big pin and pin it to a good spot under your shirt, above your B@@Bs . . . it sounds really annoying!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 2/19/2008 12:29 AM (GMT -7)   
How are you doing Carol? The weather has gotten better and I hope you have too.
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, multivitamin, calcium w vit D, fish oil, aspirin


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 2/19/2008 3:21 AM (GMT -7)   
Hi Carol.  I was wondering how you're doing. My pets can be a nuisance, but I love them.  Still, I hope you don't get sick from using all your energy chasing your dog in the rain. NO treats for him!  I can really see that the med alert disc would be depressing, but I laughed that it got caught under your b@@b!  I hope you're staying warm and pain free.  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 

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