My weakness creates a shaking thing. I wasn't weak at first it started with a burning pain and then regular pain and then i lost a lot of muscle in my arms and legs i'm sort of excess skin and flab now. I can barely hold my arms above my head to shampoo, sometimes its worse than others. Sometimes a cup of tea seems like 1,000 pounds and when i go down a set of stairs my legs shake and quiver like noodles. Lastly i get this inner tremor feeling through the muscles its very weird.
What type of weird things do you experience?
I'll be wishing you the best.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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One of the first symptoms I experienced was intense muscle weakness and burning. Honestly, if had persisted for longer than a few weeks, I dont know if I could have handled it. It threw off my diagnosis for over a year. My rheumy wasnt so sure that it wasnt myositis or fibromyalgia. My thighs are the worst, and will ache and burn for no apparent reason. At first, my muscles burned from head to toe, mostly my arms and legs. Now, it seems to have settled in my legs. I have those days that the stairs turn me into jello, and even standing in the kitchen cooking dinner will do my muscles in. I usually take a half of a Soma and a Tylenol and go to bed. There really isnt a day that goes by that my muscles dont ache and burn.
My rheumy suggested at my last visit that he has seen a connection between inflammatory bowel diseases (my mild Crohns) and myositis. I intended to look further into this, but have not had a chance, since that was just last week. I have noticed that when I eat spicy foods or anything that I know that I am sensitive to, the burning seems to be a bit worse. But then again, it happens for no reason as well. I so hate this disease. I wish I had more answers for you, just know we are in this together.
((HUG)) I hope you get clarification on this soon. You are in my prayers tonight.
Post Edited (jhmom) : 2/16/2008 7:24:04 PM (GMT-7)
Well, the day after I read this post, doesn't something happen along these lines? I'm walking back from class down the stairs with my bag full of textbooks when my legs decide to turn to jelly. Any other day, and i would have been able to catch myself but of course on this day I am wearing particularly high heels for a presentation. Man did I look like a fool. Luckily, I only tripped one step and clung to the railing for dear life. As far as I know, I don't have myositis or anything like that...just a few weak moments. High heels are evil!!
Stacie- I hope all goes well with your tests!