aphthous ulcer = mouth sore???

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emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 2/16/2008 7:56 PM (GMT -7)   
Hi all,

Sorry I'm just showing up with a question when I haven't been around much. I've been having a time with my digestive system from the scleroderma. Pity party time. Just don't be a party pooper.....oy. Very bad joke!

Quickly, have any of your doctors ever called your mouth sores aphthous ulcers (that's a type of mouth ulcer, I guess). I've got a really sore one going on my tongue and that's what my dentist called it. I'm too wiped out to do any research, so just thought i'd research with the lupus experts here. Thanks everyone.

oh, I just remembered my other question: do any of you get sores on your tongue?

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


okie
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Date Joined Dec 2006
Total Posts : 2818
   Posted 2/16/2008 8:10 PM (GMT -7)   
Hi sweet Emmie, I'm sorry you have those lousey sores they hurt like heck. I was told mine were a yeast infection. They give me that nystatin swish and swollow stuff. I actually did try to catch you on the Gerd section when you asked that question about scleraderma. You are the only one here that I know of that has it and I wanted to talk to you about it. I had a horrible sore on my tongue that left a scar. I couldn't even close my mouth but that was years ago. I'm sorry you are so tired. I have missed seeing you around here much.
love ya
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
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Ides
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Date Joined Nov 2003
Total Posts : 7077
   Posted 2/16/2008 10:25 PM (GMT -7)   
Prior to getting my Crohn's under control, I had aphthous ulcers all the time. Aphthaous ulcer is the clinical name for a canker sore. People with autoimmune diseases seem to be more prone to getting them. I had them so bad one time my tongue got swollen and I could barely talk. I lisped so badly I was unintelligible.
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


hippimom2
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Date Joined Jul 2005
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   Posted 2/17/2008 8:09 AM (GMT -7)   
emmi. I'm sorry you are going through such a rough time. Also, you are welcome to vent here anytime you want to. You are going through so much and have some serious health issues and I hardly ever hear you complain, instead you are here being supportive and helpful to other members.

As far as the sores on the tongue, I have had a few times where I have had lots of sores or ulcers on my tongue - they were autoimmune related but I'm not sure if they were lupus or sjogrens related. Also I was never given a name for the sores, so I'm afraid I'm no much help. The tongue sores did hurt though. I was prescribed the magic mouthwash that was a mix of amlox, benadryl and lidocain.

Hang in there, emmi. ((((hugs))))
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

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jhmom
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Date Joined Oct 2004
Total Posts : 2244
   Posted 2/17/2008 10:50 AM (GMT -7)   
Hi Emmi,

Yes I use to get those sores on my tongue before my lupus was under control, they were so bad my tongue was swollen Thankfully my my rheumy was able to see it for herself. That's when she gave me the Rx for "magic mouthwash". I also get mouth sores and I take folic acid daily which really helps to keep them from occurring as often, however I do get them when I am flaring.

I hope you get some relief soon! Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


emmi
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Date Joined Apr 2005
Total Posts : 1529
   Posted 2/18/2008 8:31 PM (GMT -7)   
Hi Guys,

Thanks for getting back to me and sorry I didn't get back to you sooner. I ended up getting progressively sicker over the weekend. By last night, I had a fever of 103. Off to my PCP today. Well, the canker sore--thank you, Ides--was actually a herpes lesion. (by the way, it was my dentist who thought it was a canker sore; my rheumie didn't see anythink ulcerous about it althought that was on Thurs. afternoon to be fair--I'm looking for a new one anyway).

I also have the thrush (yeast or candidiasis) on my tongue, on my cheeks, in my throat and into my esophagus. Hey, Okie, I got the swish and swallow stuff too. He also gave me 2 anti fungals; one for the herpes and one for the esophagus. He also gave me some lidocane for the herpes that hurts so d*** bad. I never had one of them before. He said he figures I got all of this since I'm immunosuppressed. He did blood work and blood cultures along with a chest x-ray to be sure there's not fungal stuff in the lungs. The other stuff is to see if he can determine the cause of the fevers. If it's not the fungal stuff, he needs to treat for bacterial or let a virus run its course. I don't mean to whine--actually I can't whine, it hurts to talk and swallow and drink and I'm sick of having the chills and the sweats and being sooooo tired but can't sleep because everything hurts--oh! I did whine! Sorry!

Thanks for listening!

xoxo emmie
Limited scleroderma with lupus overlap, Sjogrens, Hashimoto's thyroiditis, Raynauds, GERD, Hashimoto's (or Autoimmune) Enchephalopathy, seizures due to encephalopathy, migraines, fibromyalgia


PattyLatty
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Date Joined Mar 2006
Total Posts : 2570
   Posted 2/19/2008 12:16 AM (GMT -7)   
((((((Emmi))))) You sound too sick to be posting. I'll see what I can find on the net. I have a 'canker' sore on my bottom lip that swelled up as though I had a huge marble in my lip and it hurts and burns like the devil. It's going away on it's own. I think a lot of what we get is caused either by our AI disease or because we're immunosuppressed. I get frequent vaginal infections and my pcp thinks it's because of the immunosuppressant drugs I take.

But you obviously have a lot more than that going on. I have a close friend in Indiana who has scleroderma and I'll ask her about it. What do they think the fevers are caused by? Do you have the flu or is it the disease?

I'm so sorry you're having such a rough time right now and I'll be praying for you and thinking of you. Don't apologize for whining!!! That's what we do all the time. We're here for you Emmi.

Take care,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
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aminur
New Member


Date Joined Jan 2014
Total Posts : 1
   Posted 1/12/2014 12:55 AM (GMT -7)   
I've recently found a solution for aphthous ulcer. At least it works for me. I mixed salt in drinking water( it should be very salty) and then gurgle with it. You have to do it at the very early stage of the ulcer, or it might not be helpful later. And try to gurle on night just before you go to sleep and don't eat or drink anything after the gurgle till the morning. So the salty taste remains. That's why I choose to do it just before go to sleep. Do this for 2-3 days in a row. I've try it everytime when the ulcer attacks, and it's working so far. I'll be happy if this could help anyone to lessen the pain of aphthous ulcer.

TXplowgirl
Regular Member


Date Joined May 2010
Total Posts : 66
   Posted 1/12/2014 2:21 AM (GMT -7)   
Hi Emmi,

I get the mouth sores on my tongue, inside my cheeks, on the roof of my mouth and on my lips. Thank goodness not all at the same time though.

I've got a big 1 on my upper lip I've been treating for 4 days now. Very frustrating.

My dr has said that the sore are Lupus related due to a small flare, could be from stress, something we ate or our immune system just out of whack.

How I get rid of the sores on the inside of my mouth is I use Listerine mouthwash. Just get a small lid full and swish it around just like you do for mouthwash. Kind of painful but it works pretty good and they're gone within a couple of days.
Systemic Lupus, Connective Tissue Disease, Fibromyalgia, Chronic Fatigue Syndrome, Raynauds, Anxiety and Depression.

GabbyChick
Regular Member


Date Joined Jan 2014
Total Posts : 27
   Posted 1/12/2014 7:04 PM (GMT -7)   
Hello!

I used to get mouth sores ALL THE TIME...Sometimes it's just one more thing. Our mouths are full of yucky bacteria. Seems a lot of us have had this issue. (Hmmm)

I use Lysterine, pour out about 1/2 cup. Top up with peroxide, shake well. Use as usual. I have no more sores. Really keeps your whole mouth cleaner too!

Hope this helps.

GB

loopie89
New Member


Date Joined Sep 2013
Total Posts : 14
   Posted 1/13/2014 11:24 PM (GMT -7)   
I have been getting quite a few over the years - had one under the tongue a couple of times. about halfway through last year it got much worse - like 7 ulcers at one go followed by 5 the next round and so on. Turns out it was because my blood count had dropped quite a bit (particularly neutrophils) which led to (along with other symptoms) the SLE diagnosis a couple of weeks later. Prednisone in, blood count up, no ulcers for two months!! I do get a couple now and again but waaayy better than previously. When I was in the midst of excruciating pain from all the ulcers, there was one thing that was an absolute lifesaver: a steroid cream, Oracort (Triamcinolone acetonide 0.1%).

Hope it's not causing you too much grief!

LadyOSteele
New Member


Date Joined Jun 2014
Total Posts : 6
   Posted 6/1/2014 8:25 AM (GMT -7)   
One hyphenated word: L-glutamine. Break open two capsules and swish it in your mouth three times daily. Swallow.

I wanted to reply here about tongue ulcers. I had three ulcers come and go over three months that were DEBILITATING. It was very painful to swallow, eat and talk. I saw an oral surgeon who performed a biopsy, have had a ton of blood work drawn, got two second opinions, ruled out infectious diseases (fungal, viral, parasitic) with an infectious diseases expert, and am now in the hands of a GI doc.

I can provide photos of these tongue ulcers. They are no fun. What healed me up quick, though, was swishing L-glutamine in my mouth. I mean, "less than 24 hours almost completely gone" quick. I cannot recommend this enough! The prescription mouth wash was only helpful for about 20 minutes.

Malabsorption has been confirmed by stool samples and blood work shows a deficiency in fat-soluble vitamins. I'm on the docket for an endoscopy and colonoscopy to determine what type of IBD I have. But, tongue ulcers, fatigue and skin rashes were my first symptoms of something out of whack. Good luck!
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