Does anyone remember me -another question for you all.

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jdeet
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 2/18/2008 7:59 PM (GMT -7)   
Hi.
I don't know if anyone remembers me.  I was on your forum writing a number of posts regarding my brother within this last month.  He had the swollen ankles and then nose bleeds.  He finally had all his blood work done and an MRI of his ankles and got the results today.  The rheumy said that all his test results came back negative(normal) EXCEPT one that shows he is a blood disorder.  My brother said the rheumy said it's a Lupus blood disorder where you develop clots.   He didn't know the name but the nurse told him the name of it sounds worse than it is.  He is getting his blood work mailed to him so he will get the definite name of what he has.  The rheumy said to my brother "you should be happy with your results".  Meaning he wasn't diagnosed with Lupus, lymes, etc.  He told my brother that he has to take a baby asprin once a day and then wants him to start FIsh oil vitamins. 
Is anyone familiar with this?  It sounds ridiculous that he didn't get the exact name of what he has.  Again, just worried  and confused.
Thank you in advance,
Take care, Jen

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/18/2008 8:38 PM (GMT -7)   
Hi Jen, I'm very interested in finding out just what the DX was. Shoot I forget things all the time. They should have written it down for him. He could call tomorrow and ask them to spell it for him.
I don't under a rheumy saying that anyone should be happy they have any type of A/I disease. Also if he has one there is a chance that he will have more. It sames most people have over lapping diseases. Don't let your brother or doctor slack off if he develops other symptoms.
Let us know if you find out the name
hugs carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


jdeet
Regular Member


Date Joined Jan 2008
Total Posts : 32
   Posted 2/18/2008 8:45 PM (GMT -7)   
I'm taking a guess at this but I bet this is it "antiphospholipid antibodies".  I was just doing research and this is linked to Lupus(which the dr. told him).  The dr. said my brother doesn't have Lupus but he does have this..  This "antiphospholipid antibodies" is a i think catergorized as a Hematologic disorder .  Hematoglic disorder is 1 of the 11 in the criteria for lupus.  I hope my brother lives the rest of his life with no other symptoms arising but I just am doubtful.  :(  I just think this all looks like it's red flags for autoimmune disease.  I understand what youa re saying about all other diseases that arise from having just one.  With all the research I have done on this I found that out pretty quickly.  It's so unfortunate and not fair.  take care

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 2/19/2008 7:20 PM (GMT -7)   
That sounds right jdeet. Antiphospholipid antibodie or Anticardiolipid antibody. Also called APS or Hughes Syndrome.

I really hope the baby aspirin does the trick! Thanks for the update and keep us posted on his recovery.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 2/20/2008 12:56 PM (GMT -7)   

Hi Jdeet,

   I agree that is the test the doctor did. I hope he gets better answers soon and on the right treatment plan. Please keep us updated. You and your brother will be in my thoughts and prayers.

                                                             Babs


 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 2/21/2008 7:37 AM (GMT -7)   
My Rheummy has me on one low dose asprin.. He said , that my blood has the clotting factor... No one had ever told me that... I was shocked and I take that asprin every day....
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