Cellcept & Evoxac

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1bucfan
Regular Member


Date Joined Jul 2005
Total Posts : 183
   Posted 2/19/2008 11:31 AM (GMT -7)   
Hi-
 
It has been a while since I have been able to get back on here.  Between my own health and helping my family as we deal with my father being back on Life Support - I am lucky to get anything accomplished.
 
I saw my Rheumy last Friday and she has me on two new meds.  I have started the Evoxac and I think it may help with the dryness from the Sjogrens.  I should be able to pick up the Cellcept this evening.  Are any of you taking either of these meds?  If so, would you mind sharing your experiences with them? 
 
Oh, and just to update you guys - I think the Orencia is helping.
 
Many thanks.
 
Blessing to all.
 
~Laurie  confused
Live Well, Love Much, Laugh Often & Be Happy...
~Never Underestimate the Power of Influence~
 MVP, Chronic Bladder & Kidney infections(including stones) since 1983, Hypothyroid since 1997
CONNECTIVE TISSUE AUTOIMMUNE DISEASE & RA since 2002
FIBROMYALGIA since 2007
SJOGREN'S SYNDROME since 2008
POSSIBLE SLE
 Meds: Armour Thyroid, Arava, Plaquenil, Celebrex, Nasocort, Astelin, Allerx, Detrol LA, Rozerum (when nedded), Xanax (when needed), Prednisone (when needed),Orencia, Wellbutrin, Cellcept & Evoxac


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/19/2008 12:20 PM (GMT -7)   
Hi Laurie, I can't answer your question since I don't take either of these drugs. I just wanted to say Hi and it's good to see ya posting. I'm so sorry about your dad that must be really hard on you and your family. I glad the orencia seems to be working for you. I know alot of people take cellcept but I don't know about the other one. I'm sure others will share their experience real soon.
take care
hugs carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 2/19/2008 2:35 PM (GMT -7)   
I found Cellcept to be a miracle drug for me. My life was seriously impaired by cognitive dysfunction -- not only couldn't find words, complete sentences, or remember what the subject we were talking about was -- but couldn't track well enough to read an article, a book, or watch a movie. Couldn't make out where anything was to drive -- lost map reading ability - couldn't place street names -- obviously couldn't work.

Within 2 weeks of starting Cellcept my brain function began to improve -- that was in the fall of '06. Now I have been totally off of Cellcept for 6 weeks -- and my brain function is the best it has been since I was dx w/Lupus in 2000.

I never suffered from any side effects at all -- always took in AM with food. Mine was an off-use of Cellcept, but I'm really glad my rheumy decided to try it!

Cheers,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/19/2008 3:37 PM (GMT -7)   
Hi Laurie, bless your heart you sure have a lot going on (((hugs))). I have tried Evoxac, it seemed like it was going to work really well, but I decided to wait to take it. My Sjogrens is not that bad right now, I just make sure I always have some sugarless gum or water to sip on, hopefully it won't ever get worse but if it does I will use the med then.

I have heard great things about CellCept, I pray both of these meds help you!!! Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/20/2008 5:23 PM (GMT -7)   
Laurie, I started Evoxac not long ago and it has made a uge difference in my sjogrens symptoms. My mouth was so dry that it was about to literally drive me crazy. It is such a relief to have saliva again. The only thing I notice with it is that I get a brief hot flash a little while after I take it, but it goes away pretty quick.

I hope you have good luck with both of your meds. Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



1bucfan
Regular Member


Date Joined Jul 2005
Total Posts : 183
   Posted 2/21/2008 11:34 AM (GMT -7)   
Hippiemom-

I have noticed the same thing - the hot flash - but other than that there is no problem and having saliva again is nice.

Thank you Stacie for the hugs.

Lynnwood - so far so good on the Cellcept. I have only taken it for a couple of nights though. I am most hopeful.

Thanks to all of you and big hugs to each of you.

Sincerely,
~Laurie
Live Well, Love Much, Laugh Often & Be Happy...
~Never Underestimate the Power of Influence~
 MVP, Chronic Bladder & Kidney infections(including stones) since 1983, Hypothyroid since 1997
CONNECTIVE TISSUE AUTOIMMUNE DISEASE & RA since 2002
FIBROMYALGIA since 2007
SJOGREN'S SYNDROME since 2008
POSSIBLE SLE
 Meds: Armour Thyroid, Arava, Plaquenil, Celebrex, Nasocort, Astelin, Allerx, Detrol LA, Rozerum (when nedded), Xanax (when needed), Prednisone (when needed),Orencia, Wellbutrin, Cellcept & Evoxac


dragonfly-2
Regular Member


Date Joined Feb 2006
Total Posts : 437
   Posted 2/21/2008 2:21 PM (GMT -7)   
I have been on Cellcept since February 2005 and agree with the others--it has been a wonder drug: few side effects and good results. I wish I could say it had put me into remission or stopped organ damage, but it hasn't. It has slowed it considerably and given me my life back. Without it, I don't think there is anyway I could be planning my graduation from graduate school in May. Best of luck to you--I hope you see good results as well.

Amy
**SLE since April 1987, age 10 with suspected TIA, neuropathy, joint pain, fatigue. Lupus Nephritis, October 1992, Remission 1993-2000 Major Postpartum flare, 2000-2002, haven't been the same since.**Current symptoms: clotting disorder, vasculitis, joint pain including avascular necrosis in my hip, fatigue, high blood pressure, edema, liver and lung infiltrates, mostly likely caused by the lupus. Meds: CellCept 1000 mg/2x day, Plaquenil 400 mg, Lisiniopril 10 mg, Encora (a prescription Vitamin supplement), Prevacid, 2 x 30 mg day, Xanax ER 1 mg, Xanax .5 mg, PRN, Cymbalta 90 mg, Singluair 10 mg, Zyrtec 10 mg, Potassium Citrate 2 x day. Asthmanex, Advair 250/50, abuterol PRN, Cinnamon 500 mg b. i. d., Flax seed oil 2 x day, lycopene q d. **Chronic anemia, migraines, GERD, Bile reflux, asthma (or lupus induced lung problems), Chronic Pelvic Pain, unexplained infertility x 10 years with one biological miracle son and one adopted miracle daughter!**

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