Hi Cher, welcome to the group! I'm sorry you have had such a rough time of it. Lupus and other autoimmune is so hard to DX and than to have an insurance company like that is frustrating.
I would have to say that any time you start on meds is a good time. The reason you are in a flare 24/7 is because you are not taking meds for it. Most but not all of us take predisone and plaquenil alone with various other drugs. Those first two have helped me alot. All though I hate what the predisone does to my body. Plaquenil takes about 6 months to really get the full effect. I'm not sure why the doctor didn't start you on something right away but hopfully your bone scan will come back soon.
Most of us have gone through several doctors of all specialities before we got one that would work with us or listen to us. So hopfully this one will be a good one for you and get you on some meds soon to help with all of your symptoms.
Hang in there and don't worry about how much you wright. You can feel free to rant and rave and get mad all you want. We get it. We really do.
Oh my names Carol, 50 years old. I live in oklahoma now but I'm from arizona. I've only been here about 18 months. I'm ready for az and the warm weather again lol.
I'm sure others will be here soon to welcome you. Any questions just feel free. You're gonna love it here.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Lynnwood, Co-Moderator: Lupus Forum
Dx Lupus since '00, new Dr wants to Dx Fibro instead....SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
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Hi:) Your information helped to much, thanks lynnwood!! I told my eye dr that I dont want my glasses changed cause i knew that wouldnt fix the problem, i just got glass's 6 months ago after having good eyesite my whole life. Atleast he's doing a MRI on the eye nerves in a few weeks first. 3 years ago i was having my major glands tested by an encologist and he ruled out one (thyroid) and the next 1-2 were in the brain. I changed insurance companys and never picked up were we left off due to the lupus getting worse. Your eye problems sound just like mine. I've been using OTC eye lub's for many years and now to need to get a prescription one. to be honest I'm kinda scared to find out what is causing it...like you said it life is grand, thank god for my baby dog kenna:).
Your message really helped and i'm going to have my lupus dr check this out also. he's my new doctor and is really good (so far, I pray it stays that way:) So we are dealing with getting the lupus under control, then the migraines & nerve damage in ankles. Now though I'm going to add the eyes to the top of the list after the lupus.
Sorry for any spelling errors but i only can type with 2 fingers and it hurts my eyes to much to re-check what i wrote.