New Rheumy-it was terrible..

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sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 2/21/2008 2:38 PM (GMT -7)   
I seen a new Rheumy yesterday, he asked me why I thought I had lupus? I told him the on-set symptoms I had when first dx, he said if I had no kidney involvement,  seizures and phycosis (sp?), then he said I don't have Lupus.  I told him 3 diff. DR's have confirmed that I do.  He then said 'Well, I will do bloodwork, and that a pos. ANA does not comfirm Lupus'.   He then asked my why I was there?, I said I have new symptoms-neck and pain gets stiff and I hve elec. feeling pain running frm neck to left leg, almost daily, left hip pain, I can barely walk on some days.  I asked him for something for the pain, he then said 'What type of Norco do you want?' I couldn't believe he told me that. I told him "I'm not here for Norco meds!!" I acually felt like he didn't believe me". DR. said any med I give u the side effects are bad especially on your stomach.  I felt this is ridicoulos!! when I first told him about my back, he started saying "there are thousands of people w/back problems, everyone has back issues" It got to the point that I started to cry a little and I told him I just want something for my body pain.  He then said I def. have Fibromyalgia, I said yes, I know. 
In the end. he didn't give a refill for the pain med I do have which is for muscle spasms. I had more bloodwork done (Lupus panel), I had one done last month, for new primary Dr. which did show inflammation, I told him I already had it done. 
 
I felt I wasted my time there, HB was very upset, wanted to see the DR. and ask him why he didn't believe I Had Lupus, when other DR's confirmed it and that I needed some pain med, but Dr. wasn't avail. anymore.  Also, I have never heard of phycosis, as being part of Lupus. Has anyone?
 

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/21/2008 3:12 PM (GMT -7)   
It is fairly rare but yes psychosis can be a symptom of CNS lupus. I would find a different rheumy or go back to one of the doctors you saw in the past. This one is a total idiot.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 2/21/2008 3:23 PM (GMT -7)   
I'm def. going to ask for new Rheumy. I also, agree w/you. its just so fruastrating. Believe me I wish I didn't have Lupus.

tink 2
Regular Member


Date Joined Jan 2007
Total Posts : 371
   Posted 2/21/2008 3:25 PM (GMT -7)   
I had one tell me to go take oscal and go on the south beach diet and do not take any more meds.
Lupus since 2005, Fiberomyalgia since 2006,  sjogren's syndrome since 2005,  diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7018
   Posted 2/21/2008 3:26 PM (GMT -7)   
It does sound like you ran into a very bad doctor.....with a lousy bedside manner, to boot.

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 2/21/2008 3:27 PM (GMT -7)   
(((( hugs)))) I am so sorry to hear you had to go through this but unfortunately it's a necessary evil. It's time to move on to the next doctor. Most of us have seen multiple rheumy's before getting a proper dx. There are SO many rheumy's that are NOT up to date on Lupus and there are a lot of them that only look at blood test results, not symptoms not family history, etc. It's totally ridiculous. Also when you go into a doctor's office telling them you think you have lupus, some of them get offended and I think some doctors (the good ones) appreciate all the research we do.

What doctor dx you? Did he put you on meds? Can you get a copy of your medical records and take with you to your appt with your NEW rheumy? I would suggest after you find a new one that you drop in one day to see what kind of patients are sitting in he waiting room. If they are ALL elderly I wouldn't waste my time, I know that may be harsh but I learned from experience.. those are the ones that are NOT up to date on lupus and want to see everything in black and white, they want to see kidney damage, pleurisy, etc. Simply asking when you make the appt if the doctor specializes in lupus is not enough, they will tell you anything. Their opinion of specializes may be 2 patients. I am only speaking from experience maybe not all docs offices are like this.

I do hope you get some answers soon! Take care
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


sunshinesyl
Regular Member


Date Joined Apr 2006
Total Posts : 169
   Posted 2/21/2008 4:08 PM (GMT -7)   
Thanks for the responses!! The DR's that Dx me 1st was my Cardiologist (due to my mom had Lupus too). Waited 6 mos, for primary DR to DX, she then sent me to a Rheumy, which was my 3rd.
No, this new DR did not give any new meds, he said to wait till bloodwork comes in. I will take my old rhuemy's med records to the next new DR.
I just wish I had my old Ins. plan, it was an "PPO", only because I didn't have to wait for referrels like I do now. I also had a GYN appt same day, new DR did a Pelvic exam and said I don't have an Ovarion Cyst, I told her in May of 07' I was told I did. DR had my records on computer frm old Gyn. Then she said ok I'll do a sonogram, she pulled it into the room, she found a Cyst on left Ovary, Dr said there was a CYst w/in a cyst, she then said you have strong muscles in there thats why I didn't feel one. This upset me too, because I was going to leave thinking I didn't have a Cyst anymore, I was able to have an ultrasound and another sonogram w/in 1hr by another examiner.
These Drs were ridiculos, I was thinking may the rhuemy could have sched. an x-ray and the GYN wanting to do an ultrasound. Sorry my spelling has been very bad lately, I use to be good,,

redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 2/21/2008 4:18 PM (GMT -7)   
I am so sorry you no longer have PPO insurance. My having PPO was the only way I was able to see a rheumy and finally get dxed. Hubby hates his job, it pays minimum wage which means no money, but he won't leave because the insurance is so darned good. Plus he works for a non-profit which means if/when he leaves no cobra insurance. So he would have to get a really good paying job so we could pay for health insurance for the wait time for a new policy through a new employer. It sucks big time.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/21/2008 9:48 PM (GMT -7)   
There is no reason for this kind of insanity to still exist in the medical profession! It is beyond ridiculous! Even if a physician thinks you don't have a "condition" the condescending remarks, the sarcasm is uncalled for. Just do the test and make a diagnosis or rule out!! How about some professionalism at least, if you can't have compassion. And by the way, when you don't have compassion maybe you should consider another vocation! ARRRRGGGGHHHHH, sorry for the rant. I really think it's time we start calling their hand on this junk! Judy

hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 2/22/2008 8:12 AM (GMT -7)   
Uhg!!! I get so frustrated when I hear about docs like this who seem to want to believe that people aren't sick and that you have to prove it to them. Obviously this doc isn't aware that there are plenty of people who have lupus without organ involvement.

Run, run, run to a new rheumy who respects you and the previous docs who diagnosed you. It really stinks that your insurance changed.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/23/2008 8:45 AM (GMT -7)   
Hi sweetie, I'm so sorry you went thru all this. I agree with stacie ask how old the doctor is and if they know anything about autoimmune disease. Not all rheumys do.
My first rheumy was born before the dead sea was even sick! What a jerk.
He told me that he read in a newpaper that people with a possitive ANA means that they are perfectly healthy. Gee imagine all the time he spent in school. Just to turn to the newpaper for all the answers.
Like the others said run do not walk to the nearest new rheumy. I know insurance is such a hassle. I hope you can find a new rheumy that actually doesn't have his head where the sun don't shine.
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 

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