i understand...a little

New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

poohbear37
Regular Member


Date Joined Feb 2007
Total Posts : 98
   Posted Today 7:53 AM (GMT -7)   
I just wanted to post and say that I had a "lupus-like" reaction to remicade, a drug I was taking for ulcerative colitis and it was absolutley debilitating for months.  I am finally feeling so much better and am thankful to not be living in that constant pain anymore.
 
I had gone to so many doctors who didnt believe me and made me think it was all in my head, im sure a frustration alot of you deal with.  Please know that I have felt the pain and it is NOT a good feeling.
 
Goodluck to you all and take care!
~*~Kristyn~*~
Age - 24
Diagnosed w/UC at age 18
Fibromyalgia & Chronic Fatigue at age 16
Acid Reflux & Drug Induced Lupus 10/07 (from Remicade)
Current Meds - Asacol (12 pills daily)
-Nexium 40mg/day
-Canasa suppository (1000mg at bedtime)
-Lexapro (10mg)
-Prednisone (40mg when flaring)
-Multivitamin, Aloe Vera Gel


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted Today 11:41 AM (GMT -7)   
Ii hate that that you had that experience. My brother was diagnosed with Crohn's and UC at age 16. So, although I have not experienced, I watched him suffer immensley. He finally had his colon and 6 feet of his small intestines removed. He has the j pouch. So, no more colitis; occasional flares with Crohn's. He has 2 beautiful kids and one on the way! He's a tuff guy! God Bless you, Judy

mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted Today 10:25 PM (GMT -7)   

Hi Pooh,

   I'm sorry you had to go through so much. It's good to hear you are doing so much better now. I hope you continue to improve with each passing day. Take care and keep us updated.

                                                             Babs


 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

New Topic Post Reply Printable Version
Forum Information
Currently it is Sunday, February 26, 2017 4:57 PM (GMT -7)
There are a total of 2,766,232 posts in 304,225 threads.
View Active Threads


Who's Online
This forum has 150881 registered members. Please welcome our newest member, boringjim.
492 Guest(s), 15 Registered Member(s) are currently online.  Details
goshawk, ResilienceR, Alcie, skeye, ACF612, Purrrsiankitty, island time, summer16, Scaredy Cat, Starlight*, SoloHatesLyme, Redwing57, pmedic, LymeIsWorseThanCancer, iPoop


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer