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jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 2/27/2008 4:13 PM (GMT -7)   
having one next fri, really nervous any suggestions
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1551
   Posted 2/27/2008 4:50 PM (GMT -7)   
Hi JessieRose.  I've had a spinal tap aka lumbar puncture and know the basic procedure. The doc numbs your skin for the tap, but when the needle reaches the cord, you need to grit your teeth. Sometimes this takes 2-3 minutes and you will be gritting teeth the entire time. Once the doc hits the space and starts filling the tubes, the pain is dull.  After the needle is removed there is no more pain than an injection site. You will be told to lie still with your head flat to avoid headache. Docs seem to differ about how long you must lie still, 30 minutes to 4 hours. Please don't be frightened. It should be over in a few minutes, but if you have any questions just ask. Let us know how it goes, okay?  Love, Butterflake

Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


AmyTx
Regular Member


Date Joined Dec 2006
Total Posts : 185
   Posted 2/27/2008 4:57 PM (GMT -7)   
i had to have a spinal tap done but i was out of it after seizers and strokes..so i dont remember much but my sister said i was really restless before getting it but doing the procedure i laid still.. good luck im sure you will do fine..
DX: Lupus (dx:'03) MCTD, Raynaud's, Antithyroid antibodies, Lupus Cebritis, Lupus CNS, Lupus Pneumonitis and Stage II Lupus Nephritis. mitral valve and tricuspid valve regurgitation, 9 tia's and one pontine stroke('06)Seizures('06)steroid induced diabetes and pancreatitis, Photosensitivity since childhood, vasculitis, gangrene left thumb had amputated aug of 07,had mediport put in aug '07, discoid lupus sept 07
Meds: Lisinopril,Hydrochlorithiazide,Keppra, Plaquenil,Prednisone 30 Mg/Day,Miracle mouthwash,Xanax, Darvocet,Lidocaine cream, Xopenex inhaler, Xopenex Nebulizer, prevacid solutabs
 


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/27/2008 5:58 PM (GMT -7)   
I had one recently and it really was not near as bad as I thought it would be. Try not to freak out about it, it's not my idea of a good time but it's not that bad! God luck and God bless you, Judy

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7020
   Posted 2/27/2008 7:47 PM (GMT -7)   
CATZZ said...
Hi JessieRose!

I'm not going to lie to you it hurts...badly...try to take someone in with you to hold your hand and take your mind off of it. This may sound silly but focus on one thing like a happy place. When its over follow all the instructions for after to avoid the possible headache. Fortunately I didn't get a headache I was just a little sore for a few days. But having the tap is the hard part after those few minutes your home free.

Good Luck [img]/community/emoticons/smile.gif[/img]

Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 2/27/2008 8:02 PM (GMT -7)   

Hi JessieRose... I had one way back in 92 with a bout of meningitis.  Just be very still and lay flat for as long as they tell you.  I remember a lot of pressure, but not really any pain except for the numbing medication.  It will be okay, just breathe through it and stay calm.  Its over pretty quickly.  If you've ever had an epidural for the birth of a baby... its very similar.

Please let us know how it turns out!

 

 


 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


kncb95
Regular Member


Date Joined Jun 2007
Total Posts : 40
   Posted 2/29/2008 5:55 AM (GMT -7)   
I had one last month it was not as bad as I thought it would be. But, after your lumbar puncture make sure to drink alot of water and caffiene to prevent a lumbar headache. If you do begin to have a severe position headache the next day call your doctor you may need to have a blood patch which will seal the hole made by lumbar puncture needle. I don't tell you this to scare you because the chances of this is rare but it happened to me and I was not given any of this information from the medical professional that did mine.
But, I do want you not to worry because the procedure is not that bad.
let us know how it goes.
-Kasey
Dx: Mixed connective tissue disease '05, sjogren's '05, GERD '05, insulin resistance '01, ADD '01, major depression '98, polycystic ovarian syndrome '97 Hypoglycemia '07 hypothyroid '07

adderall, prozac, synthyroid, multivitamin


jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 2/29/2008 7:20 AM (GMT -7)   
Did you have lay down for a certain amount of time? And how long should I wait to call the doctor, and was your back sore after like to walk around and do stuff
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


kncb95
Regular Member


Date Joined Jun 2007
Total Posts : 40
   Posted 2/29/2008 10:55 AM (GMT -7)   
I had to lay flat for one hour. When you get home lay flat on your back for the next 8 hours they may tell you that before they do the lumbar puncture. My back did not bother me at all. If you wake up the next day with a severe lumbar headache call the doctor right away and ask what he or she thinks you should do. You will know it is a lumbar headache because it will be severe pressure in the top and front of your head and it will only hurt when you sit up or stand up. I really would not worry about this happening just follow all the post instructions you are given it will help to prevent this.
positive labs for MCTD and sjogren's 10/05-2/06, Since then all labs normal, Doctors refuse to make diagnosis right now! Rheumy medicating me as if I have fibro but I do not have any sensitive trigger points.
DX: poss. MCTD and Sjogren's, PCOS '97, Depression '98, ADD '01, Hypoglycemia '07 Hypothyroid '07
Meds: Lyrica, Skelaxin, Prilosec, Adderall, Prozac, Synthyroid, Multivitamin


applesk82
Regular Member


Date Joined Oct 2003
Total Posts : 262
   Posted 2/29/2008 4:07 PM (GMT -7)   
Hey JessieRose,
i had a lumbar punture done in Feb of last year, and my experience with it was awful. But i think alot of it had to do with me then the actual procedure. They did the procedure with x-ray guidance or something like that, and they gave me some something to keep me calm and some pain meds through an IV. But i have a great fear of needles near my spinal cord or it still freaked me out. Then the technician (sp) had trouble getting the right spot so he kept poking me and i felt it, so i was crying and they had to give me more medicine but it still didnt calm me down and if the man didnt have a needle in my back i would have kicked him. but he did finally get it and let me tell you how relieved i was. But like i said i have an awful awful fear of needles in that area so i think the procedure would have been easier if i wasnt alreay sooo scared. But since then, looking back at it, it really didnt hurt and i didnt have any pain afterwards they just told me to take it easy. Good Luck, sister, i'll keep you in my thoughts.
Hugs and prayers,                      If it was easy being a lupie, 
   ~Suzanne~                                      the whole world would be one     
                                                             
diagnosed in May '95 with lupus nephritis, hypertension, hypothyroidism, avascular necrosis (knee) '98, kidney transplant April '06, pseudo-cerebral tumor '07, AVN ankles and hips '07
prednisone, cellcept, prograf, lopressor, allopurinol, synthroid, diamox, OsCal +D, lunesta, celexa, percocet for pain


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 2/29/2008 9:35 PM (GMT -7)   
I had mine with only local anesthetic, under x ray guidance. It really didn't hurt that bad at all. I had to lay flat in recovery for 2 hours and then went home and just tried to be still until the next day. I chatted with the radiologist and the tech. They were real sweet. I used to work with them when I was nursing and so he showed me the pic up on the screen of the needle in my spine. It was pretty cool. I had no backache or soreness at all, or headache. The post spinal tap headache is actually pretty rare. Try not to panic. Judy

okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 2/29/2008 11:20 PM (GMT -7)   
Hi Jessie, was your spinal tap today or next friday?
hugs
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 3/1/2008 8:40 AM (GMT -7)   
it is the 7th of march. thank you everyone for being so caring :-)
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/1/2008 10:27 AM (GMT -7)   
Jessierose,
That's my b day! One year I had chemo on my birthday. O what fun! God Bless You, Judy

cjt18
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/1/2008 11:40 AM (GMT -7)   
Hi,
I had a spinal tap on Monday (2/25.) Went fine, pain was manageable. My problem is I developed a THROBBING headache on Thu night and it has not gone away. My head throbs if I sit up, if I move, if I cough, if I bend down, etc. Yesterday afternoon, I called the neuro radiologist at the hospital who did the spinal tap, and he dismissed me and told me that this headache can't be related to the spinal tap since it didn't come on until 3 days later. I called my neurologist and he said of course it's related and put me on vicoden for the pain. Has anyone else experienced this? How long does it last? I have a husband and 2 kids to take care of, not to mention the fact that I work full time. If anyone can shed any light, I'd really appreciate it!

jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 3/3/2008 5:43 AM (GMT -7)   
Did you lay flat after wards? Im so nervous! my doctor told me that I would get a blood patch done if it bothered me a few days after.
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/3/2008 8:33 AM (GMT -7)   
Jessie, I don't have any experience with a spinal tap, I just wanted to tell you that I'll be thinking of you and hoping that things go smoothly for you.

Take care
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

Please allow HealingWell to continue helping others by donating: http://www.healingwell.com/donate/

 

Co-Moderator: Lupus and CFS Forums



jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 3/3/2008 10:11 AM (GMT -7)   
thank you very much. that really means alot to me..
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 3/3/2008 5:18 PM (GMT -7)   
Judy, I just want to say Happy Birthday before I forget.. We all know how that can be. I hope you have a great day you deserve it... Also thank youfor all the kind words,and support I will def be back in touch with everyone after friday to let you know how it goes..

Jessie
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


chucha
New Member


Date Joined Mar 2008
Total Posts : 4
   Posted 3/26/2008 11:37 AM (GMT -7)   
is it normal for my back to hurt 3 days after getting a spinal tap??
 
please help

jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 3/26/2008 1:46 PM (GMT -7)   

Hello

Yes mine still hurts a little it feels like bruise. But only when  I put pressure on it the right way. but other than that its good.


JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


SabrinaK
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/14/2008 8:29 AM (GMT -7)   
I'm having a spinal tap next Tuesday to check for MS. My boyfriend said he ahd to lay flat for 8 hours, but the nurse said I would probably only be at hospital for 2-3 hours. Have things changed that much in the last 20 years? What else do I need to know about this procedure? Will I be able to go to work the next day? I never had an epidural with my children so I have no idea what to expect. I'm a little nervous.

jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 5/14/2008 8:48 AM (GMT -7)   
It was very easy. I was very worked up over nothing I had mine done on a friday so I could take it easy on the weekend. I wouldnt work the next day because you just don't know how you will feel. I was a little sore. And I didnt have to lay flat they told me to lay low for the rest of the day my suggestion is drink lots of coke/ caffeine it helps with the headache after. I drank a case in one weekend. good luck to you hope all goes well.. :-)
JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.


SabrinaK
New Member


Date Joined May 2008
Total Posts : 2
   Posted 5/14/2008 9:50 AM (GMT -7)   
thank you. How long did you stay in the hospital the day you had it done?

jessierose
Regular Member


Date Joined Jan 2008
Total Posts : 102
   Posted 5/14/2008 1:37 PM (GMT -7)   
In and out in a hour! The Doctor I had was awesome. She talked me through the whole thing my anxiety attack was worse then the actuall procedure. Just take it easy for a couple of days. I will tell you that for a couple of weeks the spot hurt like a bruise it so dont be alarmed by that. But other than that it was easy.

JessieRose
 
 
SLE, APS, Food Allergies, Gerd, Migrains
Prilosec, zoloft, Plaquenil, asprin, predisone, Imuran, noratriplyine.

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