Hi Jenna, not sre your name so I'll just call ya Jenna for the moment. Anyway welcome to the forum. Wow you have been through alot for such a short time. I started getting rashes when I was 13. They put me on valium. I've pretty much been on somthing for anxiety all my life.
From all the things you mentioned somthing is diffinently going on with you. If you have been reading posts here I'm sure you have noticed that many of us have had to go thru several doctors. I'm on my third rheumy now or I will be my appt isn't until april or may I can't even remember now. There aren't alot of doctors close by me either but if I couldn't get results from one I had no choice but to keep serching. I do hope you get one right off the bat that can help you though.
As for what to ask your rheumy first you need to make a list. Keep a tablet and pen close by for when ever you think of anything. I don't care if it's a hang nail. What might seem like nothing to you may be very important to your diagnosis. You might try going from the top of your head to your toes. You would be amazed how many little things we have on our body that we just live with because it's been with us forever. We never give it a second thought. Talk to yourfamily find out if they can remember anything that you might not remember. See if anyone cousins or grandparents whatever may have had any type of autoimmune disease. Keep a camera handy. If you get sores in your mouth that you can get pictures of or rashes or swelling or anything like that get a picture because it probably won't be there when you see your doctor. Take your tempture about 3 times a day and write it down. Somtimes we have a temp that goes up and down throughout the day.
I'm sure others will be along to give you some good advice and to welcome you to the group. Also we do have ladies in the group that have had lupus and still had more children without problems. Others have been on bed rest alot. Some have had miscarriages. All of those things can happen with perfectly heathy parents too though. I think that would be somthing to discuss further down the road with your hubby and doctor.
anyway my name is carol I live in oklahoma I'm 50 years old and I have been sick for years but still have not been completely confirmed with an auto immune disease. So like so like you and many others it's a long mostly frustrating process.
Hope this helps some
Hello......just took a minute to catch up and read your post and am terribly sorry you are going thru so much -----and with a child to look after.It is always a rocky road in this disease and much adjusting is needed ne thing I would mention that got picked up on me---avery much older lady--needed to put that in ---was a very low B 12 and am now on lots of vitamins and supplements to keep it up.We don't always realize that any disease can deplete our bodies of needed nutrients.Family Drs are not always the most informed so do your research-----
Now enduring an abcessed jaw after a filing and I had to make 4 calls --2 of them Drs in order to find out what to do if we go for an extraction......Platelets must be above 50,000 but the stress was left on me to get the answers and I already felt totally miserable but life goes on....So do take things easy and only do the essentials until you feel better.....I recently started another Happiness Journal.......I do keep track of the Bad..but like to look back an all the positive things that others do fo me..,Like a phone call from Florida yesterday....to Canada..loved it
In His Grip
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