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joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 3/1/2008 8:32 PM (GMT -7)   
 I had a bone density test done 2006, I do have osteopenia. Rhumey put me on 35mg of Actonel, 400Iu vitamin d. Seen my Rhumey yesterday she said my vitamin d levels are still very low,she put me on 50000unt of vitamin d persciption. Iwas on and off with preds. for a couples years,she said preds related.I would think actonel,drinking milk, yogart and exercise when posible would have help me.Does anyone else have this problem.       
 
 
           
 
 
 
 
 
 
_______________________________________________________________
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Barbara Lee
Veteran Member


Date Joined Sep 2003
Total Posts : 2889
   Posted 3/1/2008 10:18 PM (GMT -7)   
Hi Joinery:

I've got very low vitamin D levels, I'm take 100,000 units of the vitamin D for my levels for the next 4 or 5 weeks. This years bone density test was 16% worse than last years so I'm taking the vitamin D, calcium and I was given a once a year bone builder called zomaida to help boost my bone density.

It's common if we're taking prednisone for our bones to have osteoporosis. I hope the vitamin D helps you and you start feeling better.

Hugs,
Barb
dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, RA,MDS (Blood Cancer). Tons of meds.


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 3/2/2008 7:26 AM (GMT -7)   
Thanks Barb:
If this doesn't work I'LL have to ask her about zomaiaida. She gave me three shots of cordisone, one in each shoulder and one for my thumb. Thumb swells and locks. She said I have (tendenitis) in thumb. Horrible joint pain in shoulders mucle spasam in back.
 
 
           
 
 
 
 
 
 
_______________________________________________________________
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 3/2/2008 10:46 AM (GMT -7)   
Hi Joinery! I have osteopenia also. I have been taking Actonel for about three years now. Fortunately, my DEXA scan last November showed an improvement in my bone density even thought I have been on prednisone for almost three years. My rheumy just started me on the Actonel right when she put me on the pred because I was already in the danger zone in my spine and in full osteopenia in my hips before we started the prednisone. The Actonel seems to work for me so she wants me to continue with it even though they usually only keep you on Actonel for two years.

Good luck!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 3/2/2008 12:23 PM (GMT -7)   
Hi Audrey Ann: I'm hoping with the vitamins she put me on will help. Thanks you.
 
 
           
 
 
 
 
 
 
_______________________________________________________________
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 3/2/2008 1:56 PM (GMT -7)   
Joinery,

It seems your signature has a lot of extra space in it before the actual words. Since this takes up a lot of space in your posts, could you possibly edit your signature & omit the extra space? (Control Panel / Edit Profile / Signature)

Thanks,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/2/2008 2:32 PM (GMT -7)   
Joinery,

It is very difficult to maintain bone density while taking prednisone/steriods. Your doctor is doing you a huge favor by being proactive with the calcium and vitamin D. I applaud her for addressing this before you are in a huge bone deficit.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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