Lynnwood, Co-Moderator: Lupus Forum
Dx Lupus since '00, new Dr wants to Dx Fibro instead....SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Post Edited (doodlebee) : 3/3/2008 3:58:21 PM (GMT-7)
Like yourself, I also had an ANA Titer that was >1:1280 Homogenous. I also had a positive ESR (sedimentation) of 26. My doctor told me not to be alarmed but I have an appointment with a Rheumatologist. I heard these could both be signs of pregnancy. Has anyone else heard that?
I am in good health but have started experiencing vertigo, headaches, fatigue, the tips of my fingers will go numb and turn gray/blue, my eyes are sensitive to light, and achyness in my legs. Also, I have been struggling with very high cholesterol. None of these symptoms, however, interrupt my daily activities or are unbearable. I am very scared. I am 23, run, play sports, and am very active. I have a great diet b.c I am very conscious of my high cholesterol. My mother has MS and Epiplepsy so my doctor had me get an MRI and I am seeing a Neurologist to rule out MS.
Does anyone have any insight? Are my symptoms and test results reason for alarm? ANy information would be much appreciated. I cannot stop thinking about all the awful possibilities.
My ana was 1:160 and it was enough to gain attention from my DR ( that was 4 years ago). Your ANA is very high. I recently met with my DR and he actually told me that many docs do not take ANA into consideration when diagnosing Lupus because ANA is so unreliable. He said that it can change (go from pos to neg) he said he treats patients usually based on past ANA test and also current symptoms that they have.
Your test however is high and your symptoms are similar to mines. I tested positive for lymes so my DR did not officially diagnose me with Lupus, he wanted to treat me for lymes first and see what happened. Well I just finished a 21 day lyme treatment and I feel the same. Now I have to go back to see whats next.
I am in no way as expierenced as some are on this forum as all of this is still new for me too but I figure I can offer tibits here and there.
Write down every Symptom you have experienced over past two yesrs. Pay Attention to the following symptoms:
Short or long term memory loss
Weakness (Symetrical or on only one side)
Pain (Symetrical or on only one side)
Inflamation (Symetrical or on only one side)
Swelling (Symetrical or on only one side)
Rashes and where
Neuropathy (numbness and tingling) in feet or hands
Skin color changes due to temperature or stress
Dryness in eyes, mouth, and or throat
Vitamin D Deficiency (Are you on Prescription Vitamin D)