New Topic Post Reply Printable Version
[ << Previous Thread | Next Thread >> ]

doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 3/2/2008 11:15 AM (GMT -7)   
Is vitamin D deficiency common in people with lupus?

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 3/2/2008 11:34 AM (GMT -7)   
It often happens with lupus -- because we are usually light & sun sensitive, we don't get as much Vit D as most people. (Vit D comes from the sun.)

But I don't recall if it is something they notice and use as part of dx -- I don't think it is.

Cheers,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 3/2/2008 11:38 AM (GMT -7)   
Thanks for your reply. My vitamin D is very low, and my rheumatologist wants to treat that first and then go from there. I just wish I could get all this off my mind. Hopefully the vitamin D will correct my symptoms too, and I'll be better, but I'm having trouble believing it will be that simple.

doodlebee
Regular Member


Date Joined Mar 2008
Total Posts : 60
   Posted 3/2/2008 2:56 PM (GMT -7)   
Speaking of sun sensitivity...what kind of sun sensitivity do people with lupus usually have? Is it just rashes, or more easily sunburned, or other things like sickness, tiredness, fever, etc. too?

I have had a rash on my face for awhile. It's reddish on the cheeks and splotchy, and there are little bumps pretty much all over my face (doc said it looked like rosecea). But I haven't noticed whether it gets worse in the sun because I haven't been out much at all since I've had it. I don't remember getting rashes from the sun before, but I am definitely more sensitive to burning than I used to be, and being in the sun has always made me extremely tired. Years ago, I laid in a tanning bed one time and broke out with tiny red dots (I called them blood dots because they looked like little specks of blood under the skin) all over my torso. But I never asked a doctor about it — I just never laid in a tanning bed again.

P.S. I'm new, so I don't know if maybe I should post this new question in a new thread or not. If so, feel free to move it. I don't want to post too many threads and take up the board because I sure do have a lot of questions! It's so frustrating having all these different symptoms all through the years and feeling so bad and not knowing much of anything.

AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/2/2008 3:16 PM (GMT -7)   
Hi Doodlebee,

The sun affects us each a little differently. For most of us it can increase disease activity and even cause a flare. I get rashes from the sun. Back of my hands, neck, behind my knees. Like you, it also makes me very tired. But I've also found that it has a cumulative affect and can induce a flare. Some members are so sensitive that fluorescent lighting is a problem.

You are welcome to start a new topic with your questions. I usually go back a few pages to see if the question is asked in another topic. You might get your answers much more quickly that way.

Also, don't forget to check out "Lupus Resources" (link at the end of my signature). Lots of member tips in there.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


littleCookie
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/21/2008 6:36 PM (GMT -7)   
I have been told that there are studies going on now for vitimain d and lupus.  Hopefully through the studies they can link the two to find out if it is.

jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/21/2008 6:43 PM (GMT -7)   
Hi Doodlebee,

I don't know if my docs have checked my vitamin levels, I am going to my PCP Monday, I'm going to ask her to check them.

I've had rashes on my chest and legs from the sun (lace like and welts). I also get a headache, very fatigued and just feel terrible for many hours. Feel free to ask more questions, that's what were here for yeah
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 3/21/2008 7:51 PM (GMT -7)   
Hi doodlebee! The sun makes me feel like I am coming down with the flu and has also induced a flare. I begin to feel extremely fatigued and this is a feeling that can last for days afterwards. Sometimes, like Rosie, I break out in hives or, at the very least, a rash on all parts of my skin exposed to the sun. I always make sure I have on at least 30 SPF sunscreen all over my body. I do this every day, even if I am not planning to be in the sun because I never can be sure I won't be in the sun. Even in winter! I have problems with the sun even from driving and having one side of my body in the sun. It only makes sense that people with lupus would have vitamin D deficiency. But, taking care of the vitamin D deficiency will probably not help the lupus.

Good luck to you, though!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/21/2008 8:01 PM (GMT -7)   
I become ill, like a flu, and very tired within 10 minutes of sun exposure with SPF 50 sunscreen. I also get a pink to red rash on my checks and nose (butterfly or malar rash).
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


gloryroad
Regular Member


Date Joined Oct 2006
Total Posts : 193
   Posted 3/22/2008 9:33 AM (GMT -7)   
I get a rash on my hands, forearms, face, lower legs,and upper chest. Some areas become scaly like psoriasis and they take forever to go away - particularly on my hands and lower legs. My rash gets is very itchy. I have found that protopic is working well. My face is completely healed now and I wear sunscreen everyday. I hate every single sunscreen that I've bought and have had a reaction to some of them.
Gloryroad


phndoc
Regular Member


Date Joined Oct 2003
Total Posts : 495
   Posted 3/22/2008 6:09 PM (GMT -7)   
I was told that it is very comman in women...about 85-90% by my doctor. He said that men aren't so bad...Now, with that said I too...have a low Vat-D
PLAQUENIL, FLEXERIL, CELEBREX, CYMBALTA, BENICAR, ALLEGA, SINGULAIR, PROSCAR, LEVITRA, METROGEL, PORTONIX, NASACORT, CALTRATE-D, CENTRUM AND CREAMS
Enjoy what you can today and leave the rest for another day.
 
Frank
 


AnnieRae
Regular Member


Date Joined Nov 2006
Total Posts : 76
   Posted 3/24/2008 5:19 AM (GMT -7)   
Hi, when I go back to my Rheumy in July he said he wanted to check for Vit D deficiency.  Not sure why now.  He's never checked it before and it's been almost three years.  I do take a multi vitamin but probably not enough.  I will be anxious to see if I do need extra. 

There Is Always Hope


Harmony
Regular Member


Date Joined May 2003
Total Posts : 56
   Posted 3/24/2008 6:57 AM (GMT -7)   
There probably is a link between staying out of the sun and having a vitamin D deficiency. I was just put on a once a month high potency Vitamin D capsulea couple of weeks ago. It might be coincidence, but I've been feeling better since I started taking it. I could barely get out of bed before, and actually got out of the house for a bit this weekend.

Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7022
   Posted 3/24/2008 8:50 AM (GMT -7)   
If you are taking prednisone, usually they want you to be taking some sort of calcium supplement. Our bodies need Vitamin D or else we can't absorb the calcium supplement. All this stuff links together!

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
Links: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions



debimum
Veteran Member


Date Joined Feb 2006
Total Posts : 712
   Posted 3/24/2008 10:37 PM (GMT -7)   
Hi, I have not been dx with lupus, although  my GP thinks thats what it is. How ever it does not show up on blood work.  But I have not been to a rheumy for well over a year.  I just go frustrated with the rheumies and the GP.  I have a very love hydroxy 25 vit. D level. But the rheumy I last saw told me it was because of being in perimenopause. She said that studies have found women in perimenopause are low in vit. D.  I had to the doctor check mine again last week.  My vit. D is fine, but the hydroxy 25 vit. D is very low.  I didn't get a chance to ask anyone what the difference is.   The chiro has told me to get liquid drops, they are the best he said.  But it's like needing mega doses to try to see if it goes up.    there is a doctor at Hershey medical in PA that specializes in Vit. D deficancy, he is also a rheumy.  Our insurance will be changing April 1, I am hoping I still can make an appt. with him so it's covered and try to get some answers.   I have a friend who has lupus and she said my symptoms sound like hers in early stages.  But the symptoms of fibro are so much like lupus.  The ironic thing is, I have been having major back pain, mid to lower. I saw the orthopedic doc and he did a spect scan and MRI and he said that my arthritis isn't from the fibro, he said there is something else going on that I am to see a rheumy and get checked out.  I have never seen a serious face on a doctor since dealing with these symptoms.
  As for the sun.  After being out in the sun for a little bit, I get exhausted, my face turns bright red and I feel flu like sick.  I get these little red spots for a couple of days, not many, but they are red for a couple of days, then they turn a crusty light brown, after a while they will look like they are a light colored mole or a birth mark color light brown.  Some of them grow larger in size as time goes on.   My joints swell and ache.  I have a lot of back pain and shoulder pain. 
   It's been frustrating so I have not gone to a doctor specifically for these things.  the GP has given me vicodin for the pain, so I was taking an ibuprofin and vicodin to get me jump started in the morning along with a glass of Dr. Pepper.   I was doing ok and could at least get up in the morning at a decent time7:30, but since I had a sinus infection back in Feb. I seem to not have come out of that, then  1 1/2 weeks ago I got the flu, major flu. It's like taking two steps forward then ya get sick and take 12 steps back and have to drag yourself around to try to work.  Just unreal. 
  I was also treated for pneumonia  the other week, which I have asthma and COPD and the doc nor the CPA did not do a chest x-ray, I had to insist on one today.  I am thinking there is pleurisy in there. I get very short of breath.   I get jabbing pains in the chest into the back.  the CPA did a EKG Saturday and felt my heart was ok.  She said they are doing a study on zithromax how it may help fibro.  
Do you get bouts of not being able to sleep at night?   this happens while in a flare for what ever I have. 
    I will be trying the new rheumy though. I want her to take the blood work all over again and see what she says.
take care  and thanks for listening.  I just don't know where I should be, here or on the fibro forum or the lyme forum 
  
 
back to square #1- off meds for now-dx with fibro.  Have a positive ANA. . Pain reliever. lodine- possibly neurotin 300mg, (not sure about that yet) sublingual B-12 , Chronic shortness of breath, sinus infections.  Asthma/COPD.
 
 

New Topic Post Reply Printable Version
Forum Information
Currently it is Saturday, December 10, 2016 3:31 PM (GMT -7)
There are a total of 2,736,058 posts in 301,351 threads.
View Active Threads


Who's Online
This forum has 151448 registered members. Please welcome our newest member, Twingirldc.
282 Guest(s), 13 Registered Member(s) are currently online.  Details
Dsimms, NM12, Michael_T, Gear, astroman, Atomium7, jdm99, OldSalty, Twingirldc, joavila92, bdavis, lapilot, UCmas


Follow HealingWell.com on Facebook  Follow HealingWell.com on Twitter  Follow HealingWell.com on Pinterest
Advertisement
Advertisement

©1996-2016 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer