Anyone else have a EGD done? I'm scared!

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Crystal Visions
New Member


Date Joined Feb 2008
Total Posts : 17
   Posted 3/4/2008 10:15 AM (GMT -7)   
Hello everyone. I have been diagnosed with Lupus after all symptoms and blood work coming back possitives. I feel like I know you all already as I have been reading the posts on here for awhile and just haven't said anything cuz I was waiting on my blood work. I also have Raynauds and APS.
Well, now my doctors want to do an EGD on Friday and I am scared to death! I am having it done because when I have flares I get really bad stomache problems, pain and lose weight. Down to 112 from 140 right now. I also have lung scarring and other lung problems from Lupus so I'm scared I wont be able to breath because I have breathing issues already! I am really chicken. Please if anyone who has done this could let me know what it is like I would really appreciate it. Truely.
Thank you all and I hope everyone is having relief of symptoms today :-)

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/4/2008 12:26 PM (GMT -7)   
Hi Crystal,
I've had several EGDs and I can tell you they are one of the simpler procedures I've gone through; you will receive strong sedatives that will essentially "knock you out" even though it's not general anesthesia, and you most likely will not remember anything about the actual procedure. They will attach a heart monitor, start an IV, and give you oxygen through nasal cannula, and then you'll be out like a light and wake up in the recovery room. They will closely monitor your breathing and oxygen saturation during the test so hopefully knowing that will help minimize your anxiety about it. During the test they will insert a flexible tube into the stomach and be able to look around to see if you have any ulcerations, bleeding, etc. that might explain your pain and weight loss; it's a very good test. I hope it goes well for you and I'm sure you won't have any problems! Good luck!
Co-moderator - IBS Forum


Victoria72
Regular Member


Date Joined Oct 2006
Total Posts : 221
   Posted 3/4/2008 12:38 PM (GMT -7)   
Ive had three..... easy peazy!! Dont worry!
 
Victoria
 
Mother of four, full time Systems Analyst
 
Crohns, Lupus (SLE) Jan 08, Pancreatitis Dec. 2005
 
Meds:  Medrol injections, Cellcept, Vicodin, Benadryl, Zyrtec


Crystal Visions
New Member


Date Joined Feb 2008
Total Posts : 17
   Posted 3/4/2008 1:11 PM (GMT -7)   
Thank you both. I feel a little better about it now. I almost called and canceled a little while ago but I think I will go ahead and do it. My next one will be a colonoscopy in a couple months. Have you or anyone else done that one? I had a lot of rectal bleeding and am back on blood thinners , after the bleeding, so they want to see what that is about too. Thanks so much..
Lupus, Raynaud's, APS (cardiolipin), Protien c+s Deficiancy, COPD emphysema and who knows what else!
 
May The Lord Bless everyone that all have some relief of symptoms


MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/4/2008 3:59 PM (GMT -7)   
Crystal,
It is not that bad at all as the others said, but don't hesitate to voice your fears to your doc and those doing the procedure! Judy

Sarita
Veteran Member


Date Joined Mar 2005
Total Posts : 2486
   Posted 3/4/2008 4:54 PM (GMT -7)   
I've always had EGDs and colonoscopies at the same time. It may be too late but you might ask if they could just do both of them at the same time and kill two birds with one stone! The only difference in the tests that a patient will really notice is the prep for the colonoscopy, for which you have to totally clear out your colon with a bunch of laxatives...that is definitely the worst part since you're actually conscious for that! I think it's good that you are getting the tests done. Weight loss and rectal bleeding are not to be trifled with so this is a positive step you are taking for your long-term health. Keep up the strength and courage, you'll pull through just fine :)
Co-moderator - IBS Forum


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/4/2008 6:33 PM (GMT -7)   
 I agree with the others that the EGD is not bad at all. You should be knocked out like Sarita said. I have had several EGD's and Colonoscopy's done over the last few years. The colonoscopy isn't bad either. Drinking the prep is the worse part of that.
  I always get both procedures done at the same time like Sarita. Good luck and let us know how it goes. You will be in my thoughts and prayers.
                                                                Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Crystal Visions
New Member


Date Joined Feb 2008
Total Posts : 17
   Posted 3/4/2008 8:40 PM (GMT -7)   
Thank you for your helpful and much needed advice.I am feeling cheered up now and a little less nervous. I am going to call them tomorrow and see if I can't do them at the same time. Even if they have to delay it, I'd rather delay them and get it done at once :) I am just so tired and sick that I dont feel stronge enough to do this right now. My body is shot. I have been in this terrible bout now since December. I have had flares for years but this one is the worse. I was wondering how long do any of you flare for? Also, they want to put me on Prednisone , has it helped you? I am also having psych problems from the nerve damage and am hoping the meds from Lupus wont make it worse. Thank you all

Michelle
Lupus, Raynaud's, APS (cardiolipin), Protien c+s Deficiancy, COPD emphysema and who knows what else!
 
May The Lord Bless everyone that all have some relief of symptoms


Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 3/4/2008 9:10 PM (GMT -7)   
Hi Michelle! Flares are all very different and it is hard to say how long one will last. Taking prednisone is very effective for many of us. Unfortunately, prednisone seems to be the only med that really works for me at slowing down and ending my flares. That is the problem with the prednisone. It is hard to stop using it because it works so well. My rheumy tries to only use the pred on me when I am adjusting to a new medication. I just started Arava last month and am finding it difficult to taper down on the prednisone just yet.

I would think the prednisone is at least worth a try for you, though, as it will most likely help to suppress your immune system so you can get over your flare.

Good luck and my prayers are with you!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 

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