In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
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Thanks Rosie, Debbie, Christy, and Patty.
I appreciate all your kind words encouragement and information.
Rosie I didn't know anything about regular sugar being a problem. It's too bad it couldn't be somthing like turnip greens or somthing like that. Maybe okra? but sugar. Life was bad before but I am heart broken. I'm glad to know it though because if I have to make a choice I'll choose no pain and a lung full of air every time.
Thanks Debbie, I hope you get to go to the shower. It's good to know that you have people standing behind ya though that know what you are going through. Somtimes it's hard to get people to understand how tough it is.
Christy, I see you're on o2 also huh? what do you have to use it for? I had to go shopping today and lug a tank on my back. My back just can't take that. Plus if I have to walk around in a store the o2 runs out much faster because I'm trying to compensate. I know I have told people they have to give me a warning ahead of tie if we are going some where because the days of me grabbing my purse and running out the door are over. Yes my bro and SIL are very thoughtful more lately than before. I was in the hospital 2 months ago and the first week I was really out of it. That was the first time they had seen me like that. It was a wake up call. Thanks for sharing with me hugs!
Patty thanks for the link you posted. Yes I really hate cook meals for me. I usually eat a sandwhich or soup or anything that cooks in the microwave in 2 or less minutes. I always heard if you don't like the weather in oklahoma give it a minute it'll change.Boy I certainly understand that now. I'm thinking of renting my neice my place and going back to arizona sometime in May. I can always count on 110 and dry as a bone. I have a rheumy appt next month in enid so I don't want to go anywhere until after I see him. I waited this long for a first appt: Plus I'll have a lot to do to get moved and the way I've been feeling just thinking about it wears me out. Thanks for holding my hand hun I appreciate it.
(((((((Stacie))))))), back at ya Stacie, How are you doing? I havn't caught up with you lately. I get sick of coming here whiney like a little girl. LOL well you know what I mean. I just get so frustrating. I just want it to go away. I want a magic drug. It's almost enough to make me start drinking again. I could pop vicodins like M and M's and do nothing. Now my lungs are to big for my rib cage and it's pushing my rib bones out. That ain't making things any better. I need a transplant but unless they figure out what is going on with this A/I I can't get on the list. They are afraid if they give me new lungs this lousey disease will attack them. I just sometimes loose hope.
anyway sorry I guess I was just feeling sorry for myself for a minute there.
love ya much carol
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Thanks Donna and Hippi, I appreciate you responding. I guess I just get upset on the days when I get so tired and my lungs are all clogged and my heart pounds. By the time I got home yesterday I couldn't get anything but frozen food put away. Than I feel asleep on the couch for 2 hours. I wish I could come here and say Hey I'm having a great day but I know I'm never going to get better. The doctors said I could live another 10 years. That was last year. But in that 10 years I will only get worse. I don't want to get worse. I don't want to be gasping for my last breath. That's not the way I want to go. When I start thinking like that it's very difficult. So short of a maricle I don't have much hope.
I still havn't gotten my application for counseling. I have to fill out. I just hope it will be somone who knows about chronic illness. They increased my effexor to the highest dose but it doesn't seem to be helping much. May the counselor will have a better idea.
The only bad thing about going back to arizona is my mom is in complete denial. I'd probably have to stay with her until I can get a place. She gets upset if I stay in my room there and sleep or rest and watch t.v.. That's some stress I really don't need.
Anyway as of a couple of hours ago my breathing isn't as labored. I think I need to get into the doctor and have some blood work done. It's been a couple of months and I just don't feel right. I am going to try to slow down on the sugar. I have never been a candy bar type person. I don't like sweets as a rule but I really need it for my coffe. So I'll give raw honey a try. Ya never know it may help.
well i'm tired and gonna go lay down
love ya guys
Gee thanks a lot Rosie, you're just full of happy information aren't ya. I have seen the stevia in the health food stores before and it's too expensive for me. I'll learn to drink my coffee with out any kind of sweetner if I have to. I think I can at least try it to see if I feel any different. Maybe I can grind up an apple in it lol.