I want a steroid shot in every joint in my body!

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okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/5/2008 9:22 PM (GMT -7)   
40mg percocet 30mg vicodin. heat, warm bath, even prayers nothing is working. I've tried to over come this lousey pain today with some sort of a sense of humor. but it even hurts to laugh! Why does it do that? Some days things are pretty good than other days I feel like I got hit by a bus only to wake up possibly feeling fairly good again. What makes one day so much different from the next? I keep looking in my pill box thinking maybe I forgot to take somthing. But nope, that ain't it.
I'm invited to my brothers news house which is an hour away from here for easter. Guess what I said??????? Yep I'll have to let ya know when it gets closer. Bless their hearts though they want me to stay a little while bring my dog and they said I could have their bedroom downstairs and they would sleep in a spare one upstairs. Between the pain and tired and lugging my home oxygen with me plus tanks it's such a hassle to try to do anything. I'm sorry you guys are all going through your own private hell with this stuff. I'm just ranting. If I'm gonna be in pain I might as well punch on the keypad for awhile. Life Sucks!
love ya
carol
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/6/2008 5:51 AM (GMT -7)   
((((((((( Carol ))))))))))

Oh no! You sound so miserable. I hope you have a better day today.

Don't forget that sugar causes inflammation. Its not fare . . . but its true. Waking up feeling like you were run over by a truck is often preceded by a sugary day or evening. My daughter actually helps control her asthma by eliminating sugar from her diet. Fruits are ok because they pack their own phytonutrients to help our bodies use the sugar properly.

Sounds like a daunting task to go anywhere. Would you need to manage all that on your own? or will your brother come and pick you up? If you can manage all the preparation it would take to go . . . you really should GO and get a little change in scenery. It would be a huge effort, but may be worth it to spend some time away from home. If things go well you'll be glad you went. If things go poorly, you'll have a greater appreciation for the daily grind at home.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


joinery
Regular Member


Date Joined Oct 2007
Total Posts : 323
   Posted 3/6/2008 5:57 AM (GMT -7)   
Carol: It's ashame that we have to deal with all this. I'm the same way if I'm invited somewhere I have to tell them last minute. I have a baby shower to go to this weekend, my sister daughter, but they do understand If I can't make, I'm sorry you are having a bad day. I hope you feel good enough to go. ((((((HUGS))))) Debbie
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Reglan,Protonix,Synthroid,Plaquenil,Quinacrine,Flexeril,Zetia,Zoloft,Xnanx,Celebrex,Abuterol,  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     
 
 
 
 


eviltang
Regular Member


Date Joined Jan 2007
Total Posts : 64
   Posted 3/6/2008 10:40 AM (GMT -7)   
Carol, It sounds like your brother is going out of his way to be accomidating. It must feel great knowing that he kind of understands and is trying. I too have to take it one day at a time. Oxygen is a pain in the butt to lug around. It may be worth the trouble. Easter is a day for family to be together. I hope you have the strength and are pain free to enjoy it.

Huggs & best wishes
Christy
DX: Sarcoidosis, Addisons Disease, Renal Insufficiency, IBS, GERD, Hashimoto Thyroiditis, Degenerative Disc Disease, Autoimmune Hepatitis, Hypoglycemia, Secondary Raynauds, Erythema Nodosum, Migraines, Depression
 
RX: Effexor XR , Zebeta, Flonase ,ASA, Hydrochlothiazide, Hydrocortisone, Tramadol, Naproxen,  Prevacid, Gabapentin, Levothroxine, Tricor, Actonel, Oxygen  
 
 
 


PattyLatty
Veteran Member


Date Joined Mar 2006
Total Posts : 2570
   Posted 3/6/2008 11:59 AM (GMT -7)   
Carol, I hate to hear that you're in so much pain. With this cold front coming through it's bound to make your pain even worse. Doesn't an island in the Pacific sound heavenly. If you had the energy to get there, that is.

I think Rosie is right about sugar. It's hard to prepare healthy meals when you're feeling especially bad, isn't it. A big pot of hot green tea helps me when I'm feeling especially achey and when the weather is like it is now.

Reaching out over the air waves to hold your hand.

Love,

Pat
Lupus, Sjogren's, osteoarthritis, fibro, renauds, restless leg, hiatal hernia, double vision, migraines.
cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, tramadol, actonel, tri-est, imitrex, cymbalta, lunesta, multivitamin, calcium w vit D, fish oil, aspirin


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/6/2008 7:09 PM (GMT -7)   

Thanks Rosie, Debbie, Christy, and Patty.

I appreciate all your kind words encouragement and information.

Rosie I didn't know anything about regular sugar being a problem. It's too bad it couldn't be somthing like turnip greens or somthing like that. Maybe okra? but sugar. Life was bad before but I am heart broken. I'm glad to know it though because if I have to make a choice I'll choose no pain and a lung full of air every time.

Thanks Debbie, I hope you get to go to the shower. It's good to know that you have people standing behind ya though that know what you are going through. Somtimes it's hard to get people to understand how tough it is.

Christy, I see you're on o2 also huh? what do you have to use it for? I had to go shopping today and lug a tank on my back. My back just can't take that. Plus if I have to walk around in a store the o2 runs out much faster because I'm trying to compensate. I know I have told people they have to give me a warning ahead of tie if we are going some where because the days of me grabbing my purse and running out the door are over. Yes my bro and SIL are very thoughtful more lately than before. I was in the hospital 2 months ago and the first week I was really out of it. That was the first time they had seen me like that. It was a wake up call. Thanks for sharing with me hugs!

Patty thanks for the link you posted. Yes I really hate cook meals for me. I usually eat a sandwhich or soup or anything that cooks in the microwave in 2 or less minutes. I always heard if you don't like the weather in oklahoma give it a minute it'll change.Boy I certainly understand that now. I'm thinking of renting my neice my place and going back to arizona sometime in May. I can always count on 110 and dry as a bone. I have a rheumy appt next month in enid so I don't want to go anywhere until after I see him. I waited this long for a first appt: Plus I'll have a lot to do to get moved and the way I've been feeling just thinking about it wears me out. Thanks for holding my hand hun I appreciate it.

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


jhmom
Veteran Member


Date Joined Oct 2004
Total Posts : 2244
   Posted 3/6/2008 7:21 PM (GMT -7)   
((((( Carol ))))) you have had such a hard time lately, it's time you started feeling better! Hang in there, hugs and love to you!
Stacie

Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (AKA: gluten sensitivity) 2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
RX: Imuran, Plaquenil, Methotrexate, Flexeril, Piroxicam, Levoxyl, Folic Acid, Lortab (as needed), Magnesium Citrate and magic mouthwash (as needed for mouthsores)


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/6/2008 7:42 PM (GMT -7)   

(((((((Stacie))))))), back at ya Stacie, How are you doing? I havn't caught up with you lately. I get sick of coming here whiney like a little girl. LOL well you know what I mean. I just get so frustrating. I just want it to go away. I want a magic drug. It's almost enough to make me start drinking again. I could pop vicodins like M and M's and do nothing. Now my lungs are to big for my rib cage and it's pushing my rib bones out. That ain't making things any better. I need a transplant but unless they figure out what is going on with this A/I I can't get on the list. They are afraid if they give me new lungs this lousey disease will attack them. sad I just sometimes loose hope.

anyway sorry I guess I was just feeling sorry for myself for a minute there.

love ya much carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


Butterflake
Forum Moderator


Date Joined Jun 2006
Total Posts : 1547
   Posted 3/7/2008 6:21 AM (GMT -7)   
(((Carol))) I'm so sorry you've been in such pain.  I haven't kept up here for a few days and I just read your posts.  Keep on ranting, you go girl!  Let it out and share with us okay?  Remember that I love you and will always send you prayers, positive energy and visualize you comfortable under a nice warm blanket with your dog resting next to you.  Love, Butterflake
Dx: SLE ('05), depression, diabetes, fibromyalgia, gerd, sleep apnea (use a CPAP), hypertension, IBS
Tx: CellCept plaquenil methotrexate prednisone prozac celebrex lisinopril actos lipitor nexeum seroquel arthritis tylenol multi vitamin C calcium/D flaxseed oil  PRN: ambien neurontin promethazine xanax
             Better living through chemistry :D    Donna
 


hippimom2
Veteran Member


Date Joined Jul 2005
Total Posts : 5403
   Posted 3/7/2008 8:25 AM (GMT -7)   
(((((Carol))))) I hate that things are so bad for you and I wish you could catch a break. I really do hope you get to go to your brother's for Easter - maybe he could help you get your things packed up. My father in law is on oxygen 24 hrs a day and when they travel, they have to lug around lots of tanks and the big machine and I can tell what a big pain in the rear it is for them.

Going back to Arizona might help a lot, but I can understand how overwhelming it must be to think about packing up.

Hang in there and know that we are always here for you. You are going through so much and have such serious health issues that no one here thinks that you are whining. I think you have amazing strength to deal with everything.

Sending you lots of love and hugs and prayers.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears

 

Clickable:  LUPUS INFORMATION & LUPUS RESOURCES.

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Co-Moderator: Lupus and CFS Forums



okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/7/2008 2:38 PM (GMT -7)   

Thanks Donna and Hippi, I appreciate you responding. I guess I just get upset on the days when I get so tired and my lungs are all clogged and my heart pounds. By the time I got home yesterday I couldn't get anything but frozen food put away. Than I feel asleep on the couch for 2 hours. I wish I could come here and say Hey I'm having a great day but I know I'm never going to get better. The doctors said I could live another 10 years. That was last year. But in that 10 years I will only get worse. I don't want to get worse. I don't want to be gasping for my last breath. That's not the way I want to go. When I start thinking like that it's very difficult. So short of a maricle I don't have much hope.

I still havn't gotten my application for counseling. I have to fill out. I just hope it will be somone who knows about chronic illness. They increased my effexor to the highest dose but it doesn't seem to be helping much. May the counselor will have a better idea.

The only bad thing about going back to arizona is my mom is in complete denial. I'd probably have to stay with her until I can get a place. She gets upset if I stay in my room there and sleep or rest and watch t.v.. That's some stress I really don't need.

Anyway as of a couple of hours ago my breathing isn't as labored. I think I need to get into the doctor and have some blood work done. It's been a couple of months and I just don't feel right. I am going to try to slow down on the sugar. I have never been a candy bar type person. I don't like sweets as a rule but I really need it for my coffe. So I'll give raw honey a try. Ya never know it may help.

well i'm tired and gonna go lay down

love ya guys

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/7/2008 6:59 PM (GMT -7)   
(((((((((( Carol ))))))))))

You might want to try Stevia. It is a natural sweetner and is a dried, powdered plant. It doesn't have the inflammatory affect either. Its available in Health Food stores or grocers who stock a health food section. Our lovely Food and Drug Administration considers it a "supplement" so it can't be sold as food. Go figure! It has been used for hundreds of years as a sweetner. Check it out.

Sorry sis . . . the raw honey is abused if you heat it. sad Check out the Stevia.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator


okie
Veteran Member


Date Joined Dec 2006
Total Posts : 2818
   Posted 3/8/2008 11:01 AM (GMT -7)   

Gee thanks a lot Rosie, you're just full of happy information aren't ya. tongue I have seen the stevia in the health food stores before and it's too expensive for me. I'll learn to drink my coffee with out any kind of sweetner if I have to. I think I can at least try it to see if I feel any different. Maybe I can grind up an apple in it lol.

love ya

carol


God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!
 
 
 


AlwaysRosie
Veteran Member


Date Joined Jan 2005
Total Posts : 8616
   Posted 3/8/2008 1:22 PM (GMT -7)   
Carol . . . the Stevia IS expensive. But there are different concentrations. Some of the really expensive containers you'll only be using a pinch of it. But you are right about learning to like coffee w/o the sugar. I stopped using sugar in my coffee when I tried an Atkins-

like diet many years ago and after a few weeks drinking it w/ creamer only, I can't stand sugar in my coffee anymore. Tea and iced tea taste WAY better to me w/o sugar. Your taste really does adjust.

I actually do not use the Stevia, just because I've gotten used to less sweet everything. I make pumpkin pie filling and bake it in a glass casserole or custard cups and I use 1/3 the recommended sugar. W/o the pie crust and way less sugar, its not a bad snack.

I hope you feel better soon!

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

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