Welcome new member Sussie

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Veteran Member

Date Joined Jul 2005
Total Posts : 5403
   Posted 3/7/2008 10:53 AM (GMT -6)   
sussie, I saw that you responded to another post and I decided to start a new topic for you so that more people would see it and be able to welcome you.
sussie said...

hi im a 29 year old that is at the moment waiting to find out if i have lupus.  I have tested positive twice for lupus anticoagulant twice during my two pregnancies which both ended in deliveries before 30 weeks.   i have been suffering from a chest infection for 3 months, and just cant shake it, my legs are hurting all the time. Every night i am up late because the pain is starting to get really bad and it stops me from sleeping.  I have had a really bad rash for the last 4 years, always gets worse when i am run down.  My mother has krohns and has had it before i was born. My hair is falling out and becoming very dead very quickly.  As a young girl and up untill i had surgery to fix it, my monthy cycle basically went for the hole month ( only ever had 4 days off). i have had dizzy spells and actually fainted for the last six months. I spent most of my time feeling like death warmed up and i really struggle to get up in the mornings. i have bruises all over my body and i cant even remember ever knocking it on anything.  I have had bad memory problems, when normally i would be on the ball. There are lots of things that are and have happened to me medically that makes the docs think its lupus.  We are holding hope that its just side effects to something else but i dont want to hope to much. I really dont know lots about lupus and really cant give you any advise.  i will give you hope that its allright and that you can get the help you need


sussie, you can check out the links in my signature - there is a lot of info there about lupus.  Please ask any questions you have.  All the information can be overwhelming and hard to take in.  Lupus can be hard to diagnose because the symptoms are present in a lot of diseases.  I really hope you get some answers soon.  I'm glad you joined us.
Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Doxepin 25-50mg; Prevacid; Evoxac; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Artificial tears



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Co-Moderator: Lupus and CFS Forums

Regular Member

Date Joined Oct 2007
Total Posts : 323
   Posted 3/7/2008 11:51 AM (GMT -6)   
Sussie, I want to welcome to the forum. You have alot of things going on I feel for you , hopefully that can find out whats going and put you on the right meds.
Asthma,Lupus,H.B.P.,Dermatomyostis,Gastrparsis,Acid Reflux   
                Panic Attacks,Osteopenia,Thyroid  
  Advair,Diovan,Actonel,Prednisone on and off Eye Drops,VitaminD.     

Veteran Member

Date Joined Dec 2006
Total Posts : 2818
   Posted 3/7/2008 4:54 PM (GMT -6)   
Hi Sussie, welcome to the group. You will find a wealth of support and information here. I hope you keep coming and asking questions and letting us know how your are doing.
God Bless
Lupus like symptoms, with pbc symptoms, stage 4 COPD w/CHF,  Cancer survivor.  Osteoporosis,osteoarthritis
Prednisone,Plaquanil800mg,vicodin 4x5mg,Evista60mg, Effexor 150mg, HCTZ25/Triamterene37.5mg,Xanax 1.0 x3,Singular,nitro spray, aciphex, percocet 10mg.x4. 
I will never leave you nor forsake you!

Regular Member

Date Joined Apr 2003
Total Posts : 104
   Posted 3/7/2008 5:07 PM (GMT -6)   
  Hi Sussie and welcome to the forum. There are wonderful people here who understand how  you feel and may have tips to help you cope. Please keep us updated on your condition and if you need someone to rant to, go for it! We all need to sometimes. You will find valuable support here. I know I certainly have.  Hugs....
Mixed Connective Tissue Disease, SLE, Scleraderma, Polymyocitis, Reynaud's, Hypo-Thyroidism, Pericardial Effusion, Irregular  heartbeat
Prednisone, Procardia XL, Methotrexate, Reglan, Lasix, Nexium, Potassium, Folic Acid, Synthroid, Cellcept, Toprol, 81mg Aspirin, Vitamin D, Multivitamin, Extra Strength Tylenol, Vicodin.

Regular Member

Date Joined May 2003
Total Posts : 56
   Posted 3/7/2008 5:32 PM (GMT -6)   
Hi Sussie. Thanks for joining us! I'm sorry to hear you are going through such a difficult time. This is a great forum and I hope you feel right at home here, and hope you are able to get on some meds soon that will help you to feel better.

Regular Member

Date Joined Mar 2008
Total Posts : 60
   Posted 3/7/2008 6:40 PM (GMT -6)   
Hi Sussie, glad you're here. This really is a great forum. I'm new here too and am in the process of being diagnosed. Everyone here understands what you're going through and is so helpful. I hope you will find answers soon so you can get the treatment you need and feel better.

Veteran Member

Date Joined Jan 2005
Total Posts : 8616
   Posted 3/7/2008 8:43 PM (GMT -6)   
Thanks for catching this Hippie . . . and posting for Susie!!

Welcome to the forum Susie!!


In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

Clickable Links:  Lupus Resources    Lupous.Org   Lupus Criteria (4 of 11)   Lupus Chapter Locator

Veteran Member

Date Joined Jul 2007
Total Posts : 1048
   Posted 3/9/2008 8:55 PM (GMT -6)   
((((((((((Sussie))))))) Welcome and God Bless yOu!! Judy

Audrey Ann
Veteran Member

Date Joined Jul 2005
Total Posts : 815
   Posted 3/9/2008 10:53 PM (GMT -6)   
Welcome to HW, Sussie! I am so sorry for all the pain you are experiencing. The many symptoms you describe are simialr to how my disease reacted when I was first diagnosed. Lupus is so difficult to diagnose and it takes so very mush time for a final diagnosis that you begin to think you are imagining the whole thing!. Try not to let this get you down. They will figure everything out sooner or later. In the meantime, my thoughts and prayers are with you!
Audrey Ann
Lupus and RA and LOTS of Medications!


Veteran Member

Date Joined Sep 2005
Total Posts : 2573
   Posted 3/10/2008 1:21 AM (GMT -6)   
Welcome. I hope you find answers and support here. I know what it is like to have high risk pregnancies. Mine before diagnosis were a disaster. Now, well we will see.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sj√∂gren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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