Lynnwood, Co-Moderator: Lupus Forum
Dx Lupus since '00, new Dr wants to Dx Fibro instead....SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, ValtrexLinks: DIAGNOSING LUPUS (4 of 11), LUPUS INFORMATION, LUPUS RESOURCES, Donate to HealingWell, Drug Interactions
Hi Natalie, I'm sorry your doctor freaked you out like that. I think alot of them were absent during the chapter on bedside manners.I agree with the others to try to relax and wait. I do however feel a little different about the research thing.
I have been diagnosised with so many different things that I would study about and get a handle on just to find out later I didn't have what they thought I had. You can drive herself crazy looking up all this stuff. I beleive that until you have a real reason to find out all you can that you should go by how you feel. The truth is that you are the same person you were before you doctor called ya. It sounds like you are feeling good so that's the biggest thing we all want to acheive here.
However having said that there are things that you can do to prepare for your rheumy appt:. Take your temp. at least 3 times a day and write it down. Even if it's normal. Keep a journal. Ask your family if there is anyone that they know of with any type of auto immune diseases. Write down every symptom that you have noticed. Even if you have lived with it for years and it just seems to be nothing at all to you. It could mean somthing to a specialist.If you do have anything appear like a rash or swelling and sores in your mouth take a picture of it because you probably won't have it by the time you go to the rheumy. Like the others said there are many things that can cause a possitive ANA. In fact some people that don't have anything wrong with them have a possitive ANA. One quick glance at a lab test is not going to do it. It could take years to be diagnosised. Most doctors will treat your symptoms long before you get a Diagnosis.
Try not to stress too much if possible. If you do have lupus the worse thing you can do for yourself is to stress about it.
Please keep us informed and welcome to the group. I hope your rheumy is a good one and can answer all your questions. Which you should write them all down too. That way when you get there you won't forget what you wanted to ask.
In His Grip
AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
Co-Moderator - Lupus Forum
UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis
Clickable Links: Lupus Resources Lupous.Org Lupus Criteria (4 of 11) Lupus Chapter Locator
I just want to say thanks for everyone's advise and support. As you can imagine Im scared and very anxious but trying to keep it cool for my husband and daughter (who will be turning one next week). Good news finally got my refferal to a rheumatologist, going to call him first thing monday morning and hopefully with any luck get an appointment within a reasonable time. Will definately keep you all posted!!!!
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