What kind of doctor

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redrose77
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Date Joined Sep 2005
Total Posts : 2573
   Posted 3/9/2008 7:59 PM (GMT -7)   
I am in a quandry. I need to find out what kind of doctor I need to see because of a problem that has been getting worse but have no clue where to start since no PCP will see me while I am pregnant in my area and all the OB doctors do is give me a blank stare.
 
I have always had problems with milk products, but could get away with them if I had enough lactaid or used lactose free ones in moderation. Translation- I could have a single serving once or twice a week.
 
Now I cannot even have 1/4 cup of lactose free milk on my cereal- with most of the milk dumped down the drain once the cereal was eaten- without severe problems. I am talking about spending a whole day with intestinal cramping and running back and forth to the bathroom.
 
I am pretty sure this is not a simple GI problem though the end result of exposure to milk products is a GI disturbance. I just don't know what kind of doctor I need to look for to begin figuring this puzzle out. I mean, I cannot have ANY milk product in even minute quantities without suffering no matter the accomodations. I had been told it was just lactose intolerance but this is happening with lactose free products.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


Audrey Ann
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Date Joined Jul 2005
Total Posts : 815
   Posted 3/9/2008 8:30 PM (GMT -7)   
Wow, this is a tough one, redrose! I am not sure, either, and would hate to give you the wrong advice. I hope someone comes along soon to help you through this. My thoughts and prayers are with you!
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 3/9/2008 8:48 PM (GMT -7)   
Redrose!!! I have the EXACT same issue!  I saw a G.I. specialist and an immunologist about this.  The G.I. doc said severe lactose intollerance.  Stay away from anything dairy or anything that says lactose free.  I am on a life long diet of soy products instead.  The immunologist did a skin allergy test of 156 different foods and airborn things.  That was fun....Not.  Milk products DIDN'T puff up.  So I don't have an allergy to dairy, just a really bad lactose intollerance.  Weird eh!  Try to see a G.I. specialist.  They look after our livers too.
 
So ya, soy is what I drink.  I use soy cheese (lovely, again - not.)  I've been like this for about 3 years now.  Just out of the blue, can't eat or drink dairy.  Frustrating!!!  Especially when hubby orders a pizza with extra cheese on it.  Big meanie... Hahaha....
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/9/2008 11:17 PM (GMT -7)   
Well, no matter what the problem I am really screwed because soy products cause GI distress as well. So basically it makes life miserable. I miss cereal and ice cream and such stuff. I mean if I could take something to make it work for me even in small amounts again I would be on cloud 9. The GI doc I did see a couple years ago said that problems with milk products are not for GI doctors to deal with. My immunologist said no sign of a flat out allergy. BUT there is a metabolic disorder that has several subtypes that causes problems with milk. I just have no clue how to get tested since it is not something routinely screened for, and worse endochronologists are not the ones who handle it.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec

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