My Hair is Confused!

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MJLD
Veteran Member


Date Joined Jul 2007
Total Posts : 1048
   Posted 3/10/2008 12:23 PM (GMT -7)   
It seems that there's been some kind of malfunction with my "hair regulation dept."!  It's growing in all the wrong places and falling out of my head!  I know this as been an issue for several folks.  Here's the kicker...i'm not flaring, i'm off all the "big gun" treatments, (except pred.) and my hair is falling out really bad!  I have maybe a third of the hair I used to have!
 
Now,  I know all you beautiful folks can afford to not have hair,  but I really need mine!  I am cosmetically challenged with it,  much less without it!  :)  Trust me,  it aint purty!!  Any advice, miracles, wonder drugs????

AlwaysRosie
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Date Joined Jan 2005
Total Posts : 8616
   Posted 3/10/2008 1:13 PM (GMT -7)   
(((((((( Judy )))))))))

I hope you aren't going INTO a flare. Mine sometimes start with noticeable hair loss.

I added Biotin (an inexpensive vitamin supplement) to my meds. It is good for your hair, skin and nails. You get this naturally from eggs and some other foods.

The added "bonus hair" in other areas is compliments of aging!! LOL . . . I'm not sure how old you are . . . but pre-pre-menopause brings us some great chin hairs!! I've been plucking away for many years. I had hoped the finally reaching the big M would end the extra hair . . . but NO!!!

Sorry I don't have any better options.

Blessings!

In His Grip

AlwaysRosie           "We can't control the waves, but we can learn how to surf!!"

Psalms 139

Co-Moderator - Lupus Forum

UCTD, Hashimotos, Inflammatory Bowel, Inflammatory Arthritis

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MJLD
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Date Joined Jul 2007
Total Posts : 1048
   Posted 3/10/2008 1:42 PM (GMT -7)   
I made 36 on the 7th, but i've actually been through a premature menopause at 18 because of a thyroid tumor. They restarted my periods, but they have been extremely irregular! My doc is actually hoping i'll go ahead and go through menopause and have "disease burn out". I'm hoping so too. If by some off chance Eve made it beyond those pearly gates, when I get there, we gonna roll!!!! :) Thanx, Judy

Ginny
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Date Joined Feb 2003
Total Posts : 5514
   Posted 3/10/2008 2:42 PM (GMT -7)   
I'm in agreement with Rosie.  You might be in a flare up.  You're not on the "big guns", except for pred, so that might cause your disease to act up.  My hair was falling out before I got diagnosed.  I'd see your rheumy on this one, get some blood tests done.  Just see where your lupus is at right now.
 
Hahaha, you're so funny.  I love your humor.  I wish I had some advice for you!  My "cure" was to get ON the big guns.  Then the hair stopped falling out. 
 
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus


redrose77
Veteran Member


Date Joined Sep 2005
Total Posts : 2573
   Posted 3/10/2008 3:00 PM (GMT -7)   
I am sorry I have no advice to offer. My hair has slowed down in how much I lose but I still clog the shower drain every time I take a shower. Nothing has really stopped it. My beautician said my scalp showed signs of irritation/inflammation. I would definately call your rheumy because loosing hair can be a sign of an inpending flare. It also can be a sign of serious malnutrition.
Dx:fibromyalgia 2002, systematic lupus 2005- definate CNS involvement dxed late 2005, psoriasis 2006, rheumatoid arthritis 2006, PTSD 2007, multiple allergies 2005, migraine, compression fractures T11 & T12, Sjögren's, damaged periphrial nerves 2007, pregnant due May 2008
Tx: plaquenil, Enbrel, Darvocet, Singulair, Flexeril, Baby Asprin, Imuran, Procardia, Prilosec


littleCookie
New Member


Date Joined Mar 2008
Total Posts : 8
   Posted 3/21/2008 5:54 PM (GMT -7)   
I do agree that you much of had a flare, my hair was coming out so much that when I would touch my scalp it would feel as smooth as a baby bottom lol....I think it has alot to do with the med that we take also. Hope that you hair will start to grow back.

Audrey Ann
Veteran Member


Date Joined Jul 2005
Total Posts : 815
   Posted 3/21/2008 7:58 PM (GMT -7)   
Hi Judy!

I agree with Rosie, you might be going into a flare and the hair loss is just a warning of things to come. My hair loss was quite extensive in the months before a major flare that, ultimately, led to my confirmed diagnosis. My lupus had been suspected for so many years but the hair loss and the protien in my urine were the last straws, so to speak! Please check this out with your rheumy. You might need the "big gun" meds again.

My prayers are with you.
Prayers,
Audrey Ann
 
Lupus and RA and LOTS of Medications!
 


 


Ides
Forum Moderator


Date Joined Nov 2003
Total Posts : 7077
   Posted 3/21/2008 9:15 PM (GMT -7)   
Prednisone is known to cause hair loss from the head and hair growth in all the wrong places. I lost 50% of the hair on my head and grew "peach fuzz" all over my face while on prednisone. Once I stopped the prednisone, the hair on my head began to regrow. Unfortunately the facial fuzz remained. The reason my doctors and I knew that prednisone was the culprit was because it was the only medication I was on at the time.

I find it really curious that this happened because steroid injections are used to treat alopecia [hair loss on the scalp].
Moderator Crohn's Disease Forum
CD, Ankylosing Spondylitis, small fiber peripheral neuropathy, avascular necrosis, diffuse connective tissue disease, Sjogren's Syndrome ?
 


Lynnwood
Forum Moderator


Date Joined May 2005
Total Posts : 7019
   Posted 3/22/2008 6:52 AM (GMT -7)   
I'm guessing that the steroid injections are treating the cause of the scalp hair loss, not the hair loss itself? Interesting, in any case.

My hair is thinner from either the 15mg of pred I was on, or the Cellcept. Probably a combination. Definitely more facial hair, fortunately all very blond.

Systemic diseases are a drag -- never know what might be affected, when, or how!

And not the kind of surprises to look forward to, huh?

Cheers,

Lynnwood, Co-Moderator: Lupus Forum

Dx Lupus since '00, new Dr wants to Dx Fibro instead....
SLE(’00), Sjogren's Syndrome, Raynaud's Syndrome, SAD, Depression, Herpes Simplex 1
Piroxicam, Plaquenil, Prednisone, Xanax, Trazodone, Boniva(3mth shot), Wellbrutrin SR, Valtrex
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sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/22/2008 10:33 AM (GMT -7)   
eyes  Oh great lots to look forward too.  I was losing lots of hair, I mean lots of it, in the last 9 months, now that im feelinf a little better its stopped. Also cutting it some has stopped some of it from falling out.  I have a lot of thick hair, but the amt I was losing was like handfuls,not good, not even with my thick hair. I was getting pretty scared.
Now that it has slowed down abit I feel better, I wonder if the hair loss runs with the seasons too? It seems everytime there is a seaon change something new comes up, or something worsens.
What about rogaine for women, has anyone tryed that? Is it worth the try?
I would call your doc and tell him your concerns and see if ther is not something that can help. Good luck... smurf ....
Excema, hypermobile...
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar(8), she takes Abilify, Buspar, Celexa
MY son(13) is bipolarw/migraines, he takes ,Topamax,150mg Zantac-acid reflux,
....God Bless...and have a Great Day!!..........Love.....Sheryl


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/22/2008 10:38 AM (GMT -7)   
Ginny please email me, I have seemed to lost your email address.....Mine's listed on my profile..... smurf .....Sheryl
Excema, hypermobile...
Fibro-05
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06
Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07
Gastroparesis-08
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar(8), she takes Abilify, Buspar, Celexa
MY son(13) is bipolarw/migraines, he takes ,Topamax,150mg Zantac-acid reflux,
....God Bless...and have a Great Day!!..........Love.....Sheryl


mom46
Veteran Member


Date Joined Dec 2004
Total Posts : 8198
   Posted 3/22/2008 12:04 PM (GMT -7)   
Hi Judy,
   I noticed some hair loss starting about 3 wks ago just before my rheumy called me and said my labs show I'm in a flare. I'm on some big gun meds but wasn't on pred at the time but, she told me to start a taper. My hair loss has gotten worse in the last week. I have two spots close to the front and I can feel one in the back. It's so frustrating. I'm sorry your dealing with this as well. Hang in there and keep us updated. You will be in my thoughts and prayers.
                                                            Babs
 
Dx: Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Neuropathy,CAD
Meds:arava,prednisone,plavix,aspirin,protonix,,zanaflex,xanax,
mirapex,advair,foxamax,Vytorin,folicacid,lunesta,Tramadol
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Weleetka
Regular Member


Date Joined Oct 2007
Total Posts : 184
   Posted 3/23/2008 3:44 AM (GMT -7)   
I've lost a lot of hair also... My hair loss seems to be mainly on the top... It is getting harder to cover the top now... I hope it starts slowing down soon.....

sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/23/2008 4:20 AM (GMT -7)   
Im really glad mine started slowing down now, I was getting really scared as this really hadnt been a problem for me til the llast 6 or so months, I was not used to it. It can be kinda frightening grabbing handfuls of your hair out of your head.  I thought I would never have that problem because my hair is so thick and course, guess I was wrong. Can stress cause it? Im a litttle less stressed now, I had been vomiiting for about 6 months straight, thats when my hair was falling out, not I feel better, It has stopped.
Judy I am praying yours stops too, Love and prayers.....Sheryl smurf
Excema, hypermobile,Chronic Bronchitus,Fatigue, Positive ANA
Fibro-05--Had surgery one left knee, then on right knee, they are doing better!!
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08---Occasional Migraines
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar(8), she takes Abilify, Buspar, Celexa
MY son(13) is bipolarw/migraines, he takes ,Topamax,150mg Zantac-acid reflux,
God Bless,and have a Great Day!!.......Love.....Sheryl
God plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."


sheryl=jk
Veteran Member


Date Joined Oct 2004
Total Posts : 4083
   Posted 3/23/2008 4:23 AM (GMT -7)   
Someoen help Im having a hard time with my signature staying the way its suppose to look,
It looks fine within 10 lines, then when i post its all choppy, what I am doing wrong??!!!!
Excema, hypermobile,Chronic Bronchitus,Fatigue, Positive ANA
Fibro-05--Had surgery one left knee, then on right knee, they are doing better!!
Interstial Cystitis-06  implanted Interstim-06 hysterectomy & IBS-06 Arthiritus-04 Depression-04
GERDS/ Hiatial hernia -07   Anxiety-07 Gastroparesis-08---Occasional Migraines
Reglan,Protonix,Prozac,Effexsor, Erthomyicin, klonipin, occasional phernergan
Im marrried w/2 children, one with mild autism and Bipolar(8), she takes Abilify, Buspar, Celexa
MY son(13) is bipolarw/migraines, he takes ,Topamax,150mg Zantac-acid reflux,
God Bless,and have a Great Day!!.......Love.....Sheryl
God plz grant me the serenity to accept the things I cannot change, the courage to change the things I can, and the wisdom to know the difference..."

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