Hi sweetie, (((((((Barb)))))), Loosing a friend and loved one is very difficult. Especially when it's unexpected. There is no reason to apologize for venting. If you just stay in the back ground and keep it all inside you will never be able to cope with this.
When you realize also that you and she have very simalair problems it's even more frightening. It could of been you. Facing our own mortality is a very frightening thing. Even though I say I'm ready to go I still knw in the end it will be a battle.
I'm sorry in some ways to know you are getting worse but glad in other ways. At least your doctors will move forward with some help for you. All though we have talked on the phone and I know what all that means with the odds involved. I know Tash had as much to live for as you have but it wasn't to be. I'm sure she is looking at you saying you gotta go on on Barb! You gotta win this one for both of us.
As for your breathing ,sweats , shortness of breath, chest pain. I't could easily be a problem arising but it could be nothing as well. I have the same thing. Every time I cough or make my bed or do any with the least bit of effort I have sweat pouring off my face with chest pains and SOB. I do have some build up of fluid around my heart and some harding of my right side heart due to my breathing problems. But at this point they don't seem to be to worried about it.
I hope they run these tests and set your mind at ease. I'm sure after Tash that you would be even more worried. It's just so not fair to have to always fight every day to just get by.
Let us know how the test go.
you are in my thoughts and prayers
Lynnwood, Co-Moderator: Lupus Forum
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I am Dumplin and new to the forum. I read your post and want to extend my thoughts and prayers to you on your condition and your friend Tash. I recently lost my brother and realize the pain that accompanies something as great as this. I believe that my brother and Tash are in a better place, totally pain free. This doesn't take the pain away from me, but helps me go on from day to day. You always have a shoulder if you need one with me. Stay strong. Regards, Dumplin
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AlwaysRosie "We can't control the waves, but we can learn how to surf!!"
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Do your doctors check your sugar often? With the symptoms you mentioned the first thing that popped in my mind was Diabetes or low blood sugar. I know you don't need another disease, so hopefully its something simple causing the odd symptoms.
I know your dreading the trip to the in-laws...Bless your heart!! I hope the trip won't be too bad on you and they treat you right for a change. Update us when you can and take care. You are in my thoughts and prayers.
Love you, Babs
Barb, i'm with Patty, you just have to say NO!. I realize that it's hard to not be able to do all the things that you used to do but you'll end up in the hospital again if you don't be careful. You don't need that. Your immediate family is the only one that really matters and i know your husband has seen how sick you are and he will understand. If we could only snap our fingers and choose when we will be sick life would be great. Unfortunately it doesn't work that way. If you feel up to it than by all means go but if you don't just say No!